Health—General & Rehabilitative

PINK Concussions

Female Brain Injury

aka PINK Concussions

Norwalk, CT

Mission

PINK Concussions is the FIRST non-profit focusing on women and girls with concussions from sports, domestic violence, accidents or military service. We facilitate online support groups and information for over 3,000+ women, teen girls, and their parents/spouses/caregivers which are available and active on a 24 hr/7 day a week basis. We organize international medical summits on Female Brain Injury to train civilian and military medical professionals. To date, our six summits have provided training for over 1,000 medical professionals. We also inspire researchers to expand their brain injury studies to include sex and gender differences. Most of our summits have been free or have had heavily discounted admission for over 500+ younger researchers.

Ruling Year

2015

Executive Director

Ms Katherine Price Snedaker

Main Address

15 Shorefront Park

Norwalk, CT 06854 USA

Keywords

Female Brain Injury

EIN

47-2220386

 Number

2629829330

Cause Area (NTEE Code)

Health (General and Financing) (E80)

Brain Disorders (H48)

Women's Studies (V32)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Social Media

Blog

Programs + Results

What we aim to solve New!

It is essential to raise awareness of female brain injury since brain injury is not the same in women as in men. Decades ago, research identified significant sex differences in brain injury; yet due to overall male TBI numbers and the reproductive cycles of female lab animals disturbing results, TBI research almost exclusively focused on men and male lab animals with their findings applied to females. Women are the invisible patients in the field of brain injury. Women suffer brain injury from sports, domestic violence/assaults, accidents and military service. And when seeking care, the lack of sex and gendered medical information seriously inhibits diagnosis and intervention across the care continuum and affects the development and provision of appropriate healthcare services. PINK Concussions is the first non-profit 501c3 to focus on female brain injury including concussion and post-concussion syndrome from sport, domestic violence, accidents or military service.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

PINK Concussions Women's Support Group

#PINKBrainPledge

PINK Concussions Summits and PINK Panels

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

PINK Concussions' mission is to educate the general public as well as civilian and military medical professional specialists on the sex and gender differences in brain injury in order to improve the pre-injury education and post-injury care and support for women and girls. When women, families, communities and doctors are made aware of these differences, we can improve the pre-injury education and post-injury care for women and girls.

PINK facilitates patient education, medical professional training, research trials, medical/research summits and ongoing support groups for women, young women, veterans, and caregivers/parents as well as medical professionals. For more information see PINKconcussions.com . PINK Summits - are traditional 1-2 day events lasting 8-10 hours, where medical professionals and researchers share published papers via Powerpoint presentations. PINK Panels (PINK Science punctuated by PINK Patient Voices) - are symposiums of 1-2 hours consisting of a scientific presentation of differences in female brain injury by Katherine Snedaker with a panel of female patients who will share sound bites of their experience.

PINK Concussions is a 100% all volunteer organization: - Six member Board of Directors - a top brain injury expert (Dr. Ron Savage), two mothers with daughters with post concussion syndrome, a woman with PCS, a CEO of a national sports organization, and a VA doctor who is a father whose daughter has post concussion syndrome - Three part-time volunteer staffers plus 20 interns, all women and young women who have suffered PCS - Scientific Advisory Committee lead by Dr. Chris Giza and Angela Colantonio, PhD, OT, FCAHS, FACRM, includes over 75 top concussion doctors & scientists in North America

Continued growth in membership in our support groups for women, teen girls, female veterans and their parents/spouses/caregivers, and medical professionals. Holding at least 2-3 international medical summits per year on Female Brain Injury to train civilian and military medical professionals. Continue to have free or heavily discounted admission for younger researchers to spread awareness to include sex and gender variables in their studies.

PINK Concussions is the FIRST non-profit focusing on women and girls with concussions from sports, domestic violence, accidents or military service. We facilitate online support groups and information for over 3,000+ women, teen girls, and their parents/spouses/caregivers which are available and active on a 24 hour/7 day a week basis. We organize international medical summits on Female Brain Injury to train civilian and military medical professionals. To date, our six summits have provided training for over 1,000 medical professionals. We also inspire researchers to expand their brain injury studies to include sex and gender differences. Most of our summits have been free or have had heavily discounted admission for over 500+ younger researchers who are now aware of the need to include sex and gender variables in their studies.

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Financials

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Operations

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Sexual Orientation

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Disability

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity
Diversity notes from the nonprofit
Three board members are women who have experienced a brain injury. One member is a father of a daughter with a brain injury,