MYCARECONNECT FOUNDATION
"Stay In The Loop"
Programs and results
What we aim to solve
Children diagnosed with Type 1 Diabetes and their families face enormous problems managing, and paying for, this complex disease the moment they leave the hospital. It is the only disease known to man where multiple times every day, complex dosing decisions are made with a drug that is not only expensive, but if not dosed properly can be fatal.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
BlueLoop Care Coordination
BlueLoop® is a web and mobile tool that enables care coordination among caregivers, improving a child’s and family’s ability to manage diabetes, especially when the child is away from home. The BlueLoop® platform was founded on the premise that communication, not just data, is the key to positive health outcomes. As data is entered, it’s instantly shared with designated caregivers (mom, dad, school nurse) through email and text notifications. As a result, knowledgeable caregivers are always “on call”, ready to offer real-time, expert advice and assistance.
Diabetes Education in Schools
We provide diabetes education and support to school personnel - school nurses and other designated school caregivers. We accomplish this through online and in person education as well as presenting at school nurse conferences throughout the United States.
Family Outreach: Newly Diagnosed Children with Diabetes
We are able to work with hundreds of parents of children newly diagnosed with type 1 diabetes. We estimate we spend 600+ hours of phone support and also are able to attend family events throughout the year reaching even more children and families
BlueLoop Educational Scholarships
We now serve approximately 1,500 families, hundreds of school nurses and several dozen Providers each and every day through the use of our care coordination program, BlueLoop®, and provide much needed direct support soon after a child's diagnosis.
Where we work
Awards
Parents Magazine Top 20 Innovations 2018
Children's Hospital Association
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Evaluation documents
Download evaluation reportsNumber of Family/Caregivers served
This metric is no longer tracked.Totals By Year
Population(s) Served
Adolescents, Young adults, Caregivers
Related Program
BlueLoop Care Coordination
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
We capture, through our BlueLoop software, the number of families that are using our services based on them logging into the system and making entries.
Number of school nurses served
This metric is no longer tracked.Totals By Year
Related Program
BlueLoop Care Coordination
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We know the number of school personnel who use our system based on the metrics collected within the software.
Hours of expertise provided
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Caregivers
Related Program
Family Outreach: Newly Diagnosed Children with Diabetes
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
We communicate with families every day through phone calls and emails correspondence.
Diabetes data shared among caregivers annually
This metric is no longer tracked.Totals By Year
Population(s) Served
Children and youth, Caregivers
Related Program
BlueLoop Care Coordination
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Every day, diabetes data is entered and stored on BlueLoop and we are able to measure the type and amount of data shared among caregivers and stored on our system.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Reports and documents
Download strategic planLearn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goals are to first solve each families specific care coordination needs., address their specific challenges they are facing and align the proper resources they need to set them off on a positive health trajectory.
We exist to address each families challenges, offer our free care coordination tools, ones we created soon after our own daughter's diagnosis in 2003. In most cases we also work with their school and provider, all in an effort to lessen their burden.
What are the organization's key strategies for making this happen?
First, we need to gain access to newly diagnosed families around the country so a major strategy we have is create partnerships with Children's Hospitals so that they can recommend our free services to their newly diagnosed families. Secondly, we attend school nurse conferences where we provide the latest in diabetes education and introduce our care coordination services. Lastly, we continue to educate ourselves, give presentations and write papers on the subject of caring for children with Type 1 Diabetes.
Today, we serve 3-4 new families every day. We utilize a family-centered approach that considers engagement, care coordination and the psycho-social impact to be critical in the health trajectory of a child with T1D as well as their caregivers.
What are the organization's capabilities for doing this?
We developed our care coordination software, BlueLoop, in 2004 and have kept the technology current as the needs of the T1D community shift. We have grown the number of free subscriptions each year of our existence topping 20,000 subscribers in 2019.
We have established relationships with leading authorities on the subject of T1D and had evidence-based, peer reviewed research conducted on the services we provide.
What have they accomplished so far and what's next?
We begin 2024 with gratitude and anticipation for having served a record number of families and school nurses for over 20 years. Serving 4,000 plus new people every year means we are growing and the need for our services are great. Providers, CDEs, school nurses and now research all attest to the effectiveness of our delivery model a triad of care coordination tools (BlueLoop), diabetes education and emotional support focused on newly diagnosed families.
What's next is forming as many new partnerships with T1D organizations as possible to get the word out.
We are hoping to raise more funds in order to expand our reach through additional marketing and communication channels. There are 50 children diagnosed each day, and we only are able to get to 3 to 4 of them, so we have a lot of work to do.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
MYCARECONNECT FOUNDATION
Board of directorsas of 01/18/2024
Mr. John Henry
MyCareConnect Foundation
Term: 2018 - 2025
Pam Henry
MyCareConnect Foundation
Term: 2018 - 2025
Warren J Smith, III
Murphy & Company
Donna Rice
Chief Strategy and Population Health Officer, The Root Cause
Larry K Ellingson
Global Diabetes Consulting
Dr. Esteria Miller
Chief of Community Engagement, The Root Cause
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes