The Sumaira Foundation for NMO

Illuminating the darkness of neuromyelitis optica

Brookline, MA   |  www.sumairafoundation.org

Mission

The Sumaira Foundation for NMO is a 501(c)(3) organization dedicated to generating global awareness of neuromyelitis optica spectrum disorder (NMOSD), fundraising to help find a cure, and creating a community of support for patients + their caregivers.

Ruling year info

2014

Founder / Executive Director

Sumaira Ahmed

Chief Communications Officer

Melissa Herman

Main address

P.O. Box 161

Brookline, MA 02446 USA

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EIN

47-2398246

NTEE code info

Public Foundations (T30)

Fund Raising and/or Fund Distribution (G12)

Fund Raising and/or Fund Distribution (H12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Voices of NMO

An online storytelling hub for patients, supporters, caregivers, and clinicians to illustrate their respective journeys with neuromyelitis optica spectrum disorder.

Population(s) Served
People with diseases and illnesses
Academics

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Financials

The Sumaira Foundation for NMO
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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The Sumaira Foundation for NMO

Board of directors
as of 10/20/2021
SOURCE: Self-reported by organization
Board chair

Sumaira Ahmed

Melissa Barash

Gabriela Romanow

Michael Devlin

Lauren Michaels

Jennifer van Amerom

Marissa Shackleton

Stephanie Hamzo

Organizational demographics

SOURCE: Self-reported; last updated 10/20/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Asian American/Pacific Islanders/Asian
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

The organization's co-leader identifies as:

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data