Patrick Risha CTE Awareness Foundation

Stop CTE

aka StopCTE   |   Doylestown, PA   |  stopcte.org

Mission

The Patrick Risha CTE Awareness Foundation was created in Patrick's memory to help prevent CTE in future athletes and veterans and provide a resource for understanding the disease, how it is caused, and its relevance in sports and the military. CTE is an acronym for Chronic Traumatic Encephalopathy. It is progressive brain damage, which is caused by repeated blows to the head. This insidious disease slowly and painfully destroys your brain. And it destroys the person in the process. This foundation seeks to save every beautiful mind, like Patrick's, and to give families the chance to understand what is happening if they are confronted with this horrific disease.

Ruling year info

2015

Principal Officer

Karen Zegel

Main address

3 Atkinson Dr

Doylestown, PA 18901 USA

Show more contact info

EIN

47-2570014

NTEE code info

Diseases of Specific Organs (G40)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The main goal is to prevent CTE in youth sports. Our fifth campaign will target high contact sport areas with informational social media commercials.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Youth Football Awareness

The Patrick Risha CTE Awareness Foundation will be targeting, as it’s first campaign, youth football organizations. This will be done by producing and distributing awareness materials to athletic staff, administrators and parents. This information will be in the form of letters, pamphlets, and cards directing people to the website and our videos. Please help us reach these people and make a difference because in this case ignorance is not bliss and every hit hurts.

Population(s) Served
Adults

Where we work

Awards

Advocacy Award 2018

Council on Brain Injury

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We hope to make $15,000 for at least half a million views.

We will continue to fundraise with this goal in mind.

We are confident those seeking to protect children will help us.

We reached 300,000 with the campaign from 2021

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • Who are the people you serve with your mission?

    Everyone that will listen

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    We created a healthcare management for to help those disabled from CTE and brain diseases and we recently did a complete rehab based on feedback

  • With whom is the organization sharing feedback?

    The people we serve,

  • How has asking for feedback from the people you serve changed your relationship?

    It allows us to get more help to spread awareness

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to get honest feedback from the people we serve, It is difficult to identify actionable feedback,

Financials

Patrick Risha CTE Awareness Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Patrick Risha CTE Awareness Foundation

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Mrs Karen Zegel

Patrick Risha CTE Awareness Foundation

Term: 2015 - 2025

Amanda Walton

Rich Walton

Steve Risha

Randi Patterson

Kerrie Kinzle

Doug Zegel

Jackie Cain

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/1/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 02/01/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.