PLATINUM2023

Power of Pain Foundation Inc (dba: International Pain Foundation)

Hope is True

aka International Pain Foundation, iPain Foundation, iPain   |   Apache Junction, AZ   |  www.internationalpain.org

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Mission

International Pain Foundation's (iPain) mission is to educate and support chronic pain patients, specifically those with neuropathy pain conditions. Our foundation serves the pain community around the world.

Ruling year info

2015

Immediate-Past President

Mrs Barby A Ingle

Vice President

Mr Ken R Taylor

Main address

4980 N. Ironwood Dr

Apache Junction, AZ 85120 USA

Show more contact info

Formerly known as

Power of Pain Foundation

EIN

47-3080556

NTEE code info

Alliance/Advocacy Organizations (E01)

Nerve, Muscle and Bone Diseases (G50)

Neurology, Neuroscience (G96)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

International Pain Foundation (iPain) is your Power of Pain headquarters. We recognize the value of every person who makes up the chronic pain community. We are guided by our commitment to excellence, leadership and patient empowerment. The foundations objectives are reached through important educational events, support, resources, and enhancement projects that are funded through private donations and grants. The Power of Pain Foundation (dba: International Pain Foundation) demonstrates its commitment to the chronic pain community by promoting new knowledge in the cause and treatment of chronic pain conditions involving nerve pain. The ultimate goal is to provide tools and life skills to chronic pain patients giving them the ability to perform their regular activities in the community and to bolster society's ability to provide full opportunities and appropriate supports.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

NERVEmber

NERVEmber™ is officially used to represent Neuropathy Awareness Month, RSD, Reflex Sympathetic Dystrophy, CRPS, Complex Regional Pain Syndrome, and Diabetes Awareness Month (November) by the International Pain Foundation. The word NERVEmber™ for this purpose was created by Barby Ingle in Oct. 2009. These awareness activities all started as back in 2007 by the International Pain Foundation, a 501(c)(3) charity. As the Neuropathy community and nerve pain awareness movement grew, the awareness activities increased and grew into Nerve Pain Awareness Month or now commonly referred to in the pain community – NERVEmber.

NERVEmber™ brings awareness to the 150 plus conditions that have nerve pain as a symptom.The International Pain Foundation host the OFFICIAL NERVEmber project events each year. Since its inception, tens of thousands of nerve pain patients and organizations have signed on to help promote NERVEmber.

During the month of November, many people throughout the world come together for the nerve pain community. Events are held. Articles are written. Facebook statuses are updated. Instagram photos are posted. Videos are created and spread online. Proclamations are issued. It is important to remember, that these are all important things that can happen throughout the entire year, not just in November.

Reminder: Please feel free to use ‪#‎NERVEmber‬ in your social media posts and awareness events to raise awareness of RSD/CRPS/Nerve Pain/Neuropathy. This is an awareness movement by the International Pain Foundation. Creating pages titled NERVEmber/Nervember on social media and selling items with the trademarked term NERVEmber™ is illegal. We will be addressing this legal matter with those attempting to make money on products and pages not approved by the International Pain Foundation in writing. The only entity that has permission to sell products and create pages for this project is International Pain Foundation. Thank you!

Population(s) Served
People with diseases and illnesses
Adults

Comprehensive learning resources; online and printed information about disease conditions, symptoms, treatments and support links. Watch our webinars, packed with great information from doctors, patients, caregivers and other professionals. By the way, our education events are FREE.

Population(s) Served
People with diseases and illnesses
Adults

iPain Living Magazine delivers relevant information on chronic pain challenges, tips, tools and resources that puts pain into context in peoples’ lives. Through medical content, insights from experts and real people, and spotlights on topical news, we answer: how it happened, what it feels like, what you can do about it, and why it matters. iPain Living Magazine is produced by editors and journalists dedicated to delivering accurate, trusted, up-to-date chronic pain related information, for consumers. We focus on problem-solving content to help you make decisions during complicated, stressful times. We write in plain English, using real-life examples.

Population(s) Served
Adults
Caregivers

International Pain Summit is bringing together professionals from hospitals, pain practices, academic institutions, health companies, state agencies, non-profits and all types of providers involved in pain care.

Population(s) Served
People with disabilities
People with diseases and illnesses

Where we work

Awards

Best Team Performance 2016

Wego Health

Best Creative Marketing Campaign 2018

HITMC Award

Most Innovative Biotech Non-Profit 2021

GHP

Most Dedicated Nerve Pain Awareness Program: NERVEmber® 2021

GHP

Health & Wellness Community Impact Award 2022

Acquisition International

Affiliations & memberships

GHP Most Innovative Biotech Non-Profit 2021

Arizona Chronic Care Together Coalition 2022

Global Genes 2022

AZBio 2022

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of requests for advocate products or information, including downloads or page views of online material

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Related Program

NERVEmber

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our NERVEmber project includes educational and social awareness portions that are held online and in person at events around the world. We also have our Music Moves Awareness project that reaches many

Number of new advocates recruited

This metric is no longer tracked.
Totals By Year
Population(s) Served

Veterans, People with diseases and illnesses, People with physical disabilities

Related Program

International Pain Summit

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Becoming a iPain Patient Partner gives you opportunities to raise awareness, empower yourself and other patients, host local events, be interviewed for media, and participate in advocacy efforts.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

People who subscribe to our newsletter and email action alerts. We set up with a new system (Vertical Response) and in the process verified and and are in the process of updating the list.

Number of individuals attending coalition meetings

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We belong to multiple pain coalitions in the pain community. including CPATF, AZ Chronic Care Coalition, Kansas Affordable Access to Medical care, MO, IN, IL, SPPAN Leadership Council, PAINS, and more

Number of stories successfully placed in the media

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

We are included in media outlet stores on TV, radio, print, and online. There were a variety of topics covered from patient needs, education, to access to proper and timely care options.

Number of products distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Patient educational items resource guides, magazines, pamphlets, bookmarks, promo items were distributed to pain patients in 16 countries. They are also available for download on our app.

Number of polls conducted with advocacy audience(s)

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Related Program

International Pain Summit

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We held a pain patient survey where respondents were able to let us know where they saw a need in the pain community. We are basing our programs on the outcome of this survey for the next two years.

Number of audience members willing to take action on behalf of a specific issue

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Chronic pain advocates joined together to write letters on behalf of their personal stories and other patients that shined a light on the challenges of living with chronic pain diseases.

Total number of volunteer hours contributed to the organization

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with disabilities, People with diseases and illnesses

Related Program

International Pain Summit

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

We use volunteers for all of our activities. They work in committees for each project/event.

Number of free participants in conferences

This metric is no longer tracked.
Totals By Year
Related Program

International Pain Summit

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

There were paid and free levels. This number indicates number of attendees that attended free.

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Related Program

NERVEmber

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This is the number of Facebook followers we have for each year. Our numbers have been steady.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The ultimate goal is to allow chronic pain patients the ability to perform their regular activities in the community and to bolster society's ability to provide full opportunities and appropriate supports for its pain citizens. Through supporting education for pain patients, family members, caretakers and medical professionals, we make an important contribution to the overall knowledge and treatment of chronic pain. This allows our foundation to affect the lives of the millions of people with chronic pain worldwide as well as chronic pain patient's, caretakers, family members and healthcare professionals.

Through supporting education for pain patients, family members, caretakers and medical professionals, we make an important contribution to the overall knowledge and treatment of chronic pain. This allows our foundation to affect the lives of the millions of people with Neuropathy pain nationwide as well as chronic pain patient's, caretakers, family members and healthcare professionals.

There are millions of people living with neuropathy pain, and it is not talked about much. We are trying to change that with your help! At iPain, we know that education and knowledge can transform a person's future. We see it happen all the time. Attending vital education events at no charge to the patient and their caregiver is vital to their access to care issues and learning tools on how to have better daily living. The International Pain Foundations is one such place where we can give resources, information and assistance to people struggling with neuropathy pain on a daily basis.

There are millions of people living with neuropathy pain, and it is not talked about much publicly. We are trying to change that with your help! With over 700 million worldwide living with chronic pain we know we have a lot of work to do to make a difference. At the POPF, we also know that education and knowledge can transform a person's future. We have a lot of futures to transform. Through our motivation for a cure we are turning pain into power!

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Power of Pain Foundation Inc (dba: International Pain Foundation)
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Power of Pain Foundation Inc (dba: International Pain Foundation)

Board of directors
as of 11/09/2023
SOURCE: Self-reported by organization
Board co-chair

Ken Taylor

International Pain Foundation

Term: 2021 - 2021


Board co-chair

Marbeth Levy

International Pain Foundation

Term: 2006 - 2021

Barby Allyn Ingle

KB Media

Jim Allen Ingle

Ingle Consulting

Glen Shurtz

iPain

Gayle Taylor Ford

Therapy Services Inc

Marbeth A Levy

Phillips Programs

Ken Ray Taylor

My Gen

Barbara Black

iPain

Tim Franklin

iPain

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/23/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Unknown
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

The organization's co-leader identifies as:

Race & ethnicity
Unknown
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 09/09/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.