The EHE Foundation

The highest-level goals of The EHE Foundation are outlined in our mission:
➢ Increase awareness of EHE
➢ Pursue scientific research
➢ Bridge information between researchers, providers, and patients
➢ Advocate for and support EHE patients

Priority 1: Scientific Research - maintain and promote a robust pipeline of EHE research.
Priority 2: Increase EHE Awareness - create high-level awareness of EHE for patients,
advocates, health providers and researchers.
Priority 3: Bridging Information - connecting patients and health providers through easily accessible online resources
Priority 4: Advocating for and Supporting EHE Patients - Raising the “voice” of patients to
accomplish our mission through grassroots and community engagement
Priority 5: Operational Growth & Sustainability - efficiently managing operations of the
Foundation to meet organizational needs.

The Foundation will implement our vision and mission through our Board of Directors, an appointed
Medical Advisory Board, our professional staff and the worldwide EHE community.
Vision
To be a catalyst for change in the diagnosis and care of EHE.
Mission
To seek treatment and a cure for Epithelioid Hemangioendothelioma (EHE) by increasing
awareness, pursuing scientific research, advocating for and supporting EHE patients, and
bridging information between researchers, providers and patients.
Values
In fulfillment of our mission, we are committed to these core values in all efforts:
● To our EHE community including patients, families, advocates, health providers
and researchers:
○ We are a trusted and reliable resource for information.
○ We are a support resource that is tireless and unwavering.
○ We foster hope globally for all people affected by this rare cancer.
● In the conduct of our business:
○ We uphold the highest levels of integrity in all our actions.
○ We are a collaborative environment that thrives on teamwork.
○ We promote a culture that respects individuals, and the collective
wisdom of the group.
○ We are responsible stewards of the resources granted to us.

Founded in 2015, The EHE Foundation is a non-profit 501(c)(3) organization dedicated to
the pursuit of effective treatments and ultimately a cure for EHE by increasing awareness,
pursuing scientific research, advocating for and supporting EHE patients, and bridging
information between researchers, clinicians, and patients. The EHE Foundation has made
significant advances toward our mission by:
• Being an essential resource to a global community of over 2,000 patients and
families in over 70 countries.
• Awarding over $250,000 in research grants globally to date.
• Initiating critical patient-led research projects including a Natural History
Study, EHE Biobank, and a Prospective Observational Study.
• Connecting expert clinicians with patients to improve diagnosis and access to
essential specialty care.
• Maintaining a comprehensive publications reference library for clinicians and
patients.
• Facilitating educational and collaborative forums including patients, clinicians
and researchers and organized 2 EHE 360 International Scientific Conferences.
• Working collaboratively with global expert scientists to accelerate essential
model development and disease understanding.