LACUNA LOFT

young adult cancer resources, no matter where you are

Oakland, CA   |  http://lacunaloft.org/

Mission

Lacuna Loft encourages, empowers, and connects young adult cancer survivors and caregivers around the world, 24/7. Lacuna Loft provides online wellness support + resources, lifestyle encouragement, and a peer support community that young adults need to overcome their challenging health and life circumstances, and thrive. A supportive community, accessible anytime, anywhere.

Ruling year info

2015

CEO

Ms. Mallory C Casperson

Main address

2323 Broadway

Oakland, CA 94612 USA

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EIN

47-3741634

NTEE code info

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Young Adult Voices

A daily blog where over 70 young adult cancer and caregiver contributors share their stories to help end isolation.

Population(s) Served
People with diseases and illnesses
Caregivers

Lacuna Loft brings young adult cancer survivors and caregivers together over a good book, providing 24 books to survivors/caregivers upon request and then leading the survivors/caregivers in a weekly book club discussion with a video chat discussion at the end.

Population(s) Served
People with diseases and illnesses
Caregivers

This program is designed to take the survivors/caregivers on a journey through their cancer diagnosis and into their survivorship with a small group of their young adult cancer survivor peers. Each 8-week program consists of a weekly writing session attended via video chat.

Population(s) Served
People with diseases and illnesses
Caregivers

Each workshop is designed to teach a group of young adult cancer survivors and caregivers the basics of an art form such as sketching, comics, painting, jewelry making, crafting, and more. The primary goal is to connect these young survivors to their young adult cancer peers, helping to end isolation in this patient population and to provide a healthy, creative outlet. Each workshop occurs via video hangout.

Population(s) Served
People with diseases and illnesses
Caregivers

Together, 25 young adults facing cancer (patients, survivors, or caregivers) will go through a 6-week, online program experience where they hit the highlights of our workshops! They form a tight-knit community and every other week, they take part in a different 2-hour program with the same group of young adults moving together through the series. The group also has access to a private facebook page with activities and chances for engagement built in for the entire, 6-week experience.

Each group can be formed around a specific disease state, geographic area, etc.

Population(s) Served

Jean Rowe, LCSW, OSW-C, CJT, is guest faculty of several programs for Lacuna Loft. Her background includes 15 years in the oncology space primarily working with young adults affected by breast cancer. Jean’s original programs include themes around reclaiming intimacy after cancer, addressing burnout and compassion fatigue, journal drop-ins to temper the triggers of everyday life, and coping through the holidays. Grounded in all of them is the importance of self-care.

Population(s) Served
People with diseases and illnesses
Caregivers

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer* – and all the things that happen to your body, relationships, and sex during and after treatment. She answers any and all questions that are submitted on the anonymous form. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back! Your questions will be answered periodically and posted here, on our Awkward Auntie page.

Population(s) Served
People with diseases and illnesses
Caregivers
People with diseases and illnesses
Caregivers
People with diseases and illnesses
Caregivers

Lacuna Loft has over 15 programs that are run on a monthly basis. All program information can be found at https://lacunaloft.org/lacuna-loft-programs/.

Population(s) Served
Caregivers
People with diseases and illnesses
Caregivers
People with diseases and illnesses

Where we work

Financials

LACUNA LOFT
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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LACUNA LOFT

Board of directors
as of 3/9/2021
SOURCE: Self-reported by organization
Board chair

Ms. Mallory Casperson

Patricia McDonald

SIUE

Shelly Whitsitt

Fusion Hill

Marc Korobkin

Gilda's Club, Madison

Kelly Miragliotta

FeeX

Lauren Creel

City of Hope

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes