ChadTough Defeat DIPG Foundation

aka The ChadTough Foundation   |   Saline, MI   |  www.chadtough.org

Mission

The mission of the ChadTough Defeat DIPG Foundation is to inspire and fund game-changing research to discover effective treatments for pediatric brain cancer, with an emphasis on diffuse intrinsic pontine glioma (DIPG).

Notes from the nonprofit

The days of DIPG being considered too rare and too difficult to find a cure are over. Just like the trajectory of leukemia, doctors now believe a cure will be found in our lifetime. ChadTough Defeat DIPG will not stop until that cure is found! With almost half of all pediatric brain cancer deaths due to DIPG, we know that finding a cure will not only save a significant percentage of the kids dying from cancer, but will also unlock effective treatments for other types, as well. The Carrs and Mosiers uniting their two foundations into one provides even more efficiency in their efforts to direct as much funding to research as possible. Now joined by over 20 Family Partners, and growing, this movement called #ChadTough is more powerful than ever. And our work will not end until DIPG is no longer a death sentence and we truly #DefeatDIPG!

Ruling year info

2015

CEO

Ann Friedholm

Main address

P.O. Box 907

Saline, MI 48176 USA

Show more contact info

Formerly known as

The ChadTough Foundation

The ChadTough Foundation

The ChadTough Foundation

The ChadTough Foundation

The ChadTough Foundation

The ChadTough Foundation

EIN

47-4041494

NTEE code info

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The mission of the ChadTough Defeat DIPG Foundation is to inspire and fund game-changing research to discover effective treatments for pediatric brain cancer, with an emphasis on diffuse intrinsic pontine glioma (DIPG).

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

DIPG Research Grants

The ChadTough Defeat DIPG Foundation has awarded $7 million to fund DIPG-specific research projects since 2016.

We are committed to building the most comprehensive grant program for funding DIPG research. To achieve this goal, we offer three types of grants:

Research: supporting the work of existing DIPG researchers by providing funding for hypothesis-driven research projects. The proposed research must represent an innovative approach to a major challenge in DIPG research. The funded projects must have the potential to lead to groundbreaking discoveries in the field, and transform our understanding of the tumorigenesis process or our ability to treat or detect DIPG.

New Investigator: funding newly independent DIPG researchers in establishing new DIPG research labs OR funding established researchers (who have not previously conducted brain tumor research) to encourage them to start DIPG research.

Fellowship: designed to encourage outstanding scientists to choose a career involving DIPG research.

Population(s) Served
Children and youth
Health

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

DIPG Research Grants

Type of Metric

Other - describing something else

Direction of Success

Increasing

Context Notes

The Foundation raises money to inspire and fund game-changing research to discover effective treatments for pediatric brain cancer, with an emphasis on diffuse intrinsic pontine glioma (DIPG).

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Terminally ill people, Children, Adolescents, Preteens

Related Program

DIPG Research Grants

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Transform the outlook for children diagnosed with pediatric brain cancer by focusing on research for the most lethal form, DIPG/DMG

The key strategies our foundation is focused on to achieve our goal are:
1. Raise Funds
2. Provide grants to the most promising, incremental research on DIPG anywhere in the world
3. Drive disease awareness amongst the general population
4. Establish an effective and efficient organization to drive long-term growth

Our organization's key capabilities for meeting our goals are:

Fundraising: Working collaboratively with other families affected by pediatric brain cancer, we inspire others to give toward our mission through expertise in development, event planning, and marketing.

Grant-making: Funds are distributed primarily through a formal grant program guided by our ChadTough Defeat DIPG Scientific Advisory Council, which is comprised of leading experts on DIPG from around the world. The Council reviews grant applications and makes recommendations to ensure that the ChadTough Defeat DIPG Foundation uses its resources to fund the most promising DIPG research projects. We are committed to building the most comprehensive grant program for funding DIPG research. To achieve this goal, we are now offering three types of grants: Fellowships, New Investigator Grants, and Game Changer Grants.

In early 2021, The ChadTough Foundation and Michael Mosier Defeat DIPG Foundation united to become the ChadTough Defeat DIPG Foundation. For the last five years, both foundations worked, separately and as partners, to fund pediatric brain cancer research with a focus on DIPG. The new foundation remains committed to this same, shared mission. The new union significantly increases the potential of finding a cure for pediatric brain cancer more quickly by streamlining operations through a single nonprofit to fund more projects at a higher level. The ChadTough Defeat DIPG Foundation’s co-founders, Jason and Tammi Carr and Mark and Jenny Mosier, are actively involved in the foundation’s governance and operations.

Together, these foundations that are now one have made a major impact in the world of DIPG research funding:
- $16 million in grants
- 42 Investigators
- 26 Institutions

FEBRUARY 2020 CONGRESSIONAL EVENT
Prior to their union, The ChadTough Foundation and Michael Mosier Defeat DIPG Foundation sponsored and helped organize a DIPG focused Congressional Briefing and Summit on February 13, 2020. Families, researchers, government regulators, and advocates gathered in Washington, DC for a multi-part event, organized by the DIPG Advocacy Group. Doctors and advocates briefed Congressional offices about DIPG and advocated for passage of a resolution establishing May 17 as DIPG Awareness Day and encouraging greater consideration for pediatric and high mortality-rate cancers in the public and private research grants. Following the briefing, attendees participated in a State of DIPG Summit on hot topics in the DIPG community.

PROMISING NEW BRAIN CANCER DRUG
Again, prior to their union, Michael Mosier Defeat DIPG Foundation and The ChadTough Foundation made grants of over $300,000 to support an Expanded Access Program for a promising drug called ONC201. The goal for this funding was to increase availability of ONC201 for DIPG patients, allowing them access to the drug when they are unable to enroll in a clinical trial.

Financials

ChadTough Defeat DIPG Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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ChadTough Defeat DIPG Foundation

Board of directors
as of 5/12/2021
SOURCE: Self-reported by organization
Board chair

Tammi Carr

Chairman of the Board Co-Founder, ChadTough Defeat DIPG Foundation & Executive Director, Jones Family Foundation

Term: 2015 -

Michael Ben

Partner, Honigman, LLP Co-Leader, Securities and Corporate Governance Practice Group

Jason Carr

Co-Founder, ChadTough Defeat DIPG Foundation

Ann Friedholm

CEO, ChadTough Defeat DIPG Foundation

Randy Glick

Executive Vice President, Alro Steel

Sarah Harbaugh

Community Philanthropist

Shani Enge

Community Philanthropist

Ed Magnus

Co-Founder, BlueSpruce Investments

Chrislan Manuel

Community Philanthropist

Jenny Mosier

Co-Founder, ChadTough Defeat DIPG Foundation

Mark Mosier

Partner, Covington & Burling LLP Co-Founder and Director of Research, ChadTough Defeat DIPG Foundation

Lloyd Carr

Board Member Emeritus

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 05/12/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 05/12/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.