MICHAEL MOSIER DEFEAT DIPG FOUNDATION

#DefeatDIPG

Bethesda, MD   |  www.defeatdipg.org

Mission

Michael Mosier Defeat DIPG Foundation (the Foundation) engages in activities to support and promote finding effective treatments, and ultimately a cure, for diffuse intrinsic pontine glioma (DIPG) brain tumors and other cancers. DIPG is the deadliest form of childhood brain cancer, which impacts approximately 200 - 400 children each year in the United States alone. The median survival is 9 months from diagnosis, with a near 0% survival overall.

Ruling year info

2015

Principal Officer

Jenny Mosier

Main address

P.O. Box 34277

Bethesda, MD 20827 USA

Show more contact info

EIN

47-4255474

NTEE code info

Cancer Research (H30)

Pediatrics Research (H98)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

DIPG affects children almost exclusively (typically those between the ages of 4 and 11) and it accounts for roughly 10-15% of all brain tumors in children. It is an aggressive tumor that interferes with all bodily functions, depriving a child of the ability to move, to communicate, and even to eat and drink. Although medical advances in the past 40 years have greatly improved the survival rates for children diagnosed with most types of cancer, these advances have not helped children with DIPG. The median survival is 9 months from diagnosis with a 99% fatality rate within 5 years. The Foundationworks to fund research to find treatments and a cure for DIPG.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Funding for Medical Research

The Foundation's primary mission is to fund medical research focused on finding treatments, and ultimately a cure, for diffuse intrinsic pontine glioma (DIPG) and other cancers. The primary mechanism for funding medical research is through our comprehensive grant program, which includes review of all applications by our Scientific Advisory Council.

Population(s) Served
Children and youth

The Foundation engages communities across the country to make a broader audience aware of DIPG and other cancers. With education of the public, and creation of a broader coalition of supporters, the Foundation will drive additional resources to essential research efforts. The Foundation's work led to establishment of the first-ever DIPG Awareness Day in Maryland in 2016, and the establishment of DIPG Awareness Day in over 20 states in 2017.

Population(s) Served
Children and youth
People with diseases and illnesses

The Foundation is a resource for families confronting DIPG and other cancers. The Foundation provides clear and understandable information on the disease, including the nature of the disease and available treatments and studies, through the website, direct engagement, and other means.

Population(s) Served
Parents
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Funding for Medical Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Foundation funds research for treatments and a cure for DIPG, the deadliest childhood brain cancer, after a rigorous review and recommendations from its Scientific Advisory Council.

Average grant amount

This metric is no longer tracked.
Totals By Year
Related Program

Funding for Medical Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Funding for Medical Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric reflects the total commitment made to research grants in a given year. Some grants in 2017-19 are multi-year grants and will be paid over a 2-year or 3-year period (depending on grant).

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Michael Mosier Defeat DIPG Foundation (the Foundation) engages in activities that will support and promote finding effective treatments, and ultimately a cure, for diffuse intrinsic pontine glioma (DIPG) brain tumors and other cancers.

The Foundation's primary focus is funding cancer research. The Foundation will seek to increase funding for research, clinical studies, and other programs designed to find effective treatments, and ultimately a cure, for DIPG and other cancers.

The Foundation will also raise awareness of DIPG brain tumors and other cancers, and be a resource for families confronting DIPG and other cancers by providing clear and understandable information on the disease, including the nature of the disease and available treatments and studies, through the website and other means.

The Foundation has shown significant growth since its establishment in 2015, including the expansion to multiple states across the country. The Foundation has demonstrated substantial fundraising capacity.

Impotantly, the Foundation established a Scientific Advisory Council comprised of leading experts on childhood brain cancer. The Council reviews grant applications and makes recommendations to ensure that the Michael Mosier Defeat DIPG Foundation uses its resources to fund the most promising DIPG research projects.

In December 2017, the Foundation, in partnership with another nonprofit organization (The ChadTough Foundation), committed to funding $1 million in DIPG-specific research projects over the next two years. The Foundation expects another announcement of significant research funding by the end of 2018.

The Foundation has had influence and impact in the childhood brain cancer community, even in just a few years. Our efforts have assisted in elevating the awareness of the most fatal childhood brain cancer through grassroots campaigns and effective social media strategies.

Aside from general fundraising activities and events, we have had success in other specific ways.

For example, on Giving Tuesday, which is recognized as a "day of giving," we created fundraising campaigns that raised over $100,000 on the single day in both 2016 and 2017.

In addition, as an example of effective outreach efforts to build awareness of this disease, we highlight the DIPG Across the Map Campaign. We have organized volunteers across the country (individuals, families, and other foundations), and we succeeded in establishing May 17th as DIPG Awareness Day in over 20 states in 2017. We expect even more states to recognize this date in 2018.

Financials

MICHAEL MOSIER DEFEAT DIPG FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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MICHAEL MOSIER DEFEAT DIPG FOUNDATION

Board of directors
as of 9/2/2021
SOURCE: Self-reported by organization
Board chair

Mark Mosier

Henry Friedman

J. Brandon Huffman

Julie McEvoy

Jenny Mosier

Peter Olympia

Amanda Posner

Marshall Urist

Porter Wilkinson

Katherine Gaskin