MICHAEL MOSIER DEFEAT DIPG FOUNDATION
#DefeatDIPG
Programs and results
What we aim to solve
DIPG affects children almost exclusively (typically those between the ages of 4 and 11) and it accounts for roughly 10-15% of all brain tumors in children. It is an aggressive tumor that interferes with all bodily functions, depriving a child of the ability to move, to communicate, and even to eat and drink. Although medical advances in the past 40 years have greatly improved the survival rates for children diagnosed with most types of cancer, these advances have not helped children with DIPG. The median survival is 9 months from diagnosis with a 99% fatality rate within 5 years. The Foundationworks to fund research to find treatments and a cure for DIPG.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Funding for Medical Research
The Foundation's primary mission is to fund medical research focused on finding treatments, and ultimately a cure, for diffuse intrinsic pontine glioma (DIPG) and other cancers. The primary mechanism for funding medical research is through our comprehensive grant program, which includes review of all applications by our Scientific Advisory Council.
Raising Childhood Brain Cancer Awareness.
The Foundation engages communities across the country to make a broader audience aware of DIPG and other cancers. With education of the public, and creation of a broader coalition of supporters, the Foundation will drive additional resources to essential research efforts. The Foundation's work led to establishment of the first-ever DIPG Awareness Day in Maryland in 2016, and the establishment of DIPG Awareness Day in over 20 states in 2017.
Supporting Families.
The Foundation is a resource for families confronting DIPG and other cancers. The Foundation provides clear and understandable information on the disease, including the nature of the disease and available treatments and studies, through the website, direct engagement, and other means.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Related Program
Funding for Medical Research
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
The Foundation funds research for treatments and a cure for DIPG, the deadliest childhood brain cancer, after a rigorous review and recommendations from its Scientific Advisory Council.
Average grant amount
This metric is no longer tracked.Totals By Year
Related Program
Funding for Medical Research
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Related Program
Funding for Medical Research
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This metric reflects the total commitment made to research grants in a given year. Some grants in 2017-19 are multi-year grants and will be paid over a 2-year or 3-year period (depending on grant).
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Michael Mosier Defeat DIPG Foundation (the Foundation) engages in activities that will support and promote finding effective treatments, and ultimately a cure, for diffuse intrinsic pontine glioma (DIPG) brain tumors and other cancers.
What are the organization's key strategies for making this happen?
The Foundation's primary focus is funding cancer research. The Foundation will seek to increase funding for research, clinical studies, and other programs designed to find effective treatments, and ultimately a cure, for DIPG and other cancers.
The Foundation will also raise awareness of DIPG brain tumors and other cancers, and be a resource for families confronting DIPG and other cancers by providing clear and understandable information on the disease, including the nature of the disease and available treatments and studies, through the website and other means.
What are the organization's capabilities for doing this?
The Foundation has shown significant growth since its establishment in 2015, including the expansion to multiple states across the country. The Foundation has demonstrated substantial fundraising capacity.
Impotantly, the Foundation established a Scientific Advisory Council comprised of leading experts on childhood brain cancer. The Council reviews grant applications and makes recommendations to ensure that the Michael Mosier Defeat DIPG Foundation uses its resources to fund the most promising DIPG research projects.
What have they accomplished so far and what's next?
In December 2017, the Foundation, in partnership with another nonprofit organization (The ChadTough Foundation), committed to funding $1 million in DIPG-specific research projects over the next two years. The Foundation expects another announcement of significant research funding by the end of 2018.
The Foundation has had influence and impact in the childhood brain cancer community, even in just a few years. Our efforts have assisted in elevating the awareness of the most fatal childhood brain cancer through grassroots campaigns and effective social media strategies.
Aside from general fundraising activities and events, we have had success in other specific ways.
For example, on Giving Tuesday, which is recognized as a "day of giving," we created fundraising campaigns that raised over $100,000 on the single day in both 2016 and 2017.
In addition, as an example of effective outreach efforts to build awareness of this disease, we highlight the DIPG Across the Map Campaign. We have organized volunteers across the country (individuals, families, and other foundations), and we succeeded in establishing May 17th as DIPG Awareness Day in over 20 states in 2017. We expect even more states to recognize this date in 2018.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
MICHAEL MOSIER DEFEAT DIPG FOUNDATION
Board of directorsas of 09/02/2021
Mark Mosier
Henry Friedman
J. Brandon Huffman
Julie McEvoy
Jenny Mosier
Peter Olympia
Amanda Posner
Marshall Urist
Porter Wilkinson
Katherine Gaskin