PLATINUM2022

The Still Place

Rest, Renewal and Re-creation for families with seriously ill children

aka The Still Place, Inc.   |   HAYESVILLE, NC   |  www.thestillplace.org

Mission

The Still Place offers rest, renewal and re-creation to families experiencing serious life-altering illness of a child incorporating nature, art, spirituality and Southern Appalachian experiences to enhance resiliency, empowerment and self-determination.

Ruling year info

2016

ED and Founder

Dr. Dawn Grinenko

Co-founder

Dr. Craig Kitchens

Main address

PO BOX 31

HAYESVILLE, NC 28904 USA

Show more contact info

Formerly known as

Dawn Grinenko

EIN

47-4377426

NTEE code info

Pediatrics (G98)

Alliance/Advocacy Organizations (E01)

Arts, Cultural Organizations - Multipurpose (A20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
Register now

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

When a child is seriously ill or dies the entire family suffers. All family members experience stress which can lead to a myriad of sequelae including parental illness, failed marriages and lifelong emotional and psychological stress in siblings. Endless appointments, unexpected crisis, loss of income, inability to spend quality time with other children in the family make it impossible sometimes to make memories and spend time with one another without being exhausted. Many of the families we serve are no longer able to experience something as simple as a family vacation. At The Still Place we provide an opportunity for families to stay free of charge in a beautiful and restful environment for a week of freedom from the daily burden of serious illness simply to enjoy one another, laugh, go on adventures and most importantly create sustainable memories. We provide daily activities involving art, nature, spirituality and Appalachian adventure and culture through staff and volunteers.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

The Still Place

We provide single family retreats/vacations to families with a seriously ill child. When a child is seriously ill or dies the entire family suffers. They experience stress which can lead to a myriad of sequelae including parental illness, failed marriages and lifelong emotional and psychological stress in siblings. The Still Place provides an opportunity for families to stay in a beautiful, restful place, free of charge and experience a time of peace and freedom from the daily burdens of serious illness. They are able to simple enjoy each other, laugh, go on adventures and most importantly make memories.

Population(s) Served
Children and youth
People with diseases and illnesses

4 day no cost retreats using art, nature, spirituality and Appalachain culture and adventure to rest, reflect and explore grief after the loss of a child. Mother to mother connection becomes a powerful source of on-going growth recognizing a mothers life and identity changes forever after the loss of a child.

Population(s) Served
Families
Caregivers
Parents
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of volunteers who become donors

This metric is no longer tracked.
Totals By Year
Related Program

The Still Place

Type of Metric

Other - describing something else

Direction of Success

Increasing

Number of families served in cancer treatment

This metric is no longer tracked.
Totals By Year
Related Program

The Still Place

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of clients who report a greater sense of purpose and improved overall wellness

This metric is no longer tracked.
Totals By Year
Related Program

The Still Place

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

25 of @5 returned surveys 2021 We perform post visit surveys after each visit asking three questions related to rest, renewal and re-creation

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We hope to enhance resiliency, self-determination, empowerment and hope in all family members. Our goal is in simple ways to support an entire family in becoming strong victors in the face of serious illness instead of victims. Spending time away from these stresses often allows our guests to imagine a new path, hope for a future which is different, know they have their "happy place" they can remember and look forward to returning to one day. Because our founders are physicians and many of our volunteers have medical backgrounds families feel comfortable stepping outside their comfort zones to try new things.

We provide at no cost to the family a week long single family retreat/vacation incorporating art, nature, spirituality and Appalachian adventure and culture. We utilize a two-tiered interview system to determine if the seriously ill child is safe to come to a rural environment and then to help the family express what they most desire. In the first interview a physician has a conversation with the parents to explain the program offerings. The program director then uses a structured interview format to consider each member of the family, their desires, wishes, joys and stresses. From that the family and team decide if they need just time alone as a family or a more structured retreat including volunteers and daily activities. Often families chose a mixture. The art component might include a potter coming to the house, painting projects including painted rocks, art canvases, sewing, building, knitting or a number of spontaneous projects. Many times while doing art gentle and meaningful conversation emerges. We provide deep listening. We accompany our guests on local excursions to parks and creeks with various adventures from hiking, zip-lining, gem mining, horseback riding, kayaking or any other activity that they might enjoy. At the houses which are situated in a forest along a creek front with various playscapes the children, family and volunteers remember how to play in nature whether it be sitting around a campfire, splashing in the creek, catching fireflies or howling at the moon. Mommy and Daddy's night out, in which we provide a night out at a gourmet restaurant, reminds parents to take care of themselves and their relationship, and is one of the highest valued activities in our survey feedback provided by parents. Spiritual conversations and listening to our families sacred stories gives everyone an opportunity to share their experiences without judgement. From picnicking in a Cherokee Winter house to visiting a moonshiner we give everyone a taste of the rich Appalachian heritage and culture of the area.

In 2020 we received a grant to pilot providing bereavement retreats to support families whose children have passed away. We have now been awarded a 3 year partnership to provide 6 weekend retreats for parents of bereaved children. Another grant allows us to work with local teens and guest teens through to reduce social anxiety and isolation and improve exposure to diverse families and populations. We a Garden of Hope in which guests participate in maintaining a garden year-round to support "Iron Chef" cooking activities to enhance nutrition after cancer therapy and feeding challenges related to serious illness.

Despite the pandemic we were able to expand the number of families served from 20 per year to 45-50. We have had difficulty maintaining employees due to our requirement that employees be vaccinated against COVID 19. We continue to enhance services specifically targeted to the medical and developmental needs of all children in the family. We have one full time and one half time employee currently.

The homes used are provided free of rent to The Still Place. An additional home was purchased next door to allow for the development of a host family program in which a family which has visited before.

In 2020 and 2022, the organization was successful in obtaining grant support to expand bereavement services, address social anxiety and isolation in volunteer and guest youth and initiate a garden project to enhance nutrition.

So far we have served 118 individual families and provide approximately 50 retreats annually. Despite setbacks from Covid-19 we have continued to expand services.

2020 survey which included 19 responses/36 survey requests revealed the following:
88% reported resting
100% experienced a sense of renewal defined as refreshment of spirit
76% reported a sense of re-creation defined as time and space to re-imagine a path ahead in life
76 % reported empowerment
67% felt the retreat contributed to enhancing resiliency, empowerment and self-determination.

The following individual comments from parents were posted on the survey question designed to determine if we were accomplishing our mission:

I think just the experience of being together in such a beautiful place with no appointments helped bond us more.

It reenforced our love for adventure and the rafting brought pride. The caring nature also offered our daughter a feeling of acceptance and importance which she struggles with.

Our time at TSP taught me the value of stillness, nature, art, and family fun/togetherness. The very special memories have gotten me through many a tough day, and I'm tearing up now just writing this!

"A" is more confident in what he can do on his own...he did lots of new things on his own while on our retreat and he is now excited to try more at home.

Whitewater rafting was a great team building experience for our family

I was able to take my children away driving 8-10 hrs alone and we were able to still enjoy ourselves with them trusting on Mom to get them there and fully take care of them having fun and relaxing fully along the way. We Love the Still place for the love it has brought our family.

Coming together as a family and creating new memories.

We felt renewed and closer as a family.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, We don’t have the right technology to collect and aggregate feedback efficiently, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time, It is hard to come up with good questions to ask people

Financials

The Still Place
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

The Still Place

Board of directors
as of 11/22/2022
SOURCE: Self-reported by organization
Board chair

Deborah Drylie

The Resolution Center/Carter and Drylie Law

Term: 2021 - 2022

Crystal West

Cosmetologist

Deborah Drylie

Carter and Drylie Law Firm

Marjorie Hobkirk

Clay Community Care Center

Tom Landis

Community Leader/Hayesville UMC

Theresa Holbrook

Independent Financial Coach

Kelli Kirk

Community member

Bradley Markeesha

Bereaved mother

Murphy Martina

Physician

DeMayo Pat

Retired RN

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/22/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 11/22/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.