TICKED OFF FOUNDATION INC

Norwalk, CT   |  www.tickedofffoundation.org

Mission

The Ticked Off Foundation, Inc. is dedicated to the prevention, awareness, and patient support of Lyme disease and other tick-borne illnesses that have become the fastest-growing infectious diseases in the United States. Our mission is to provide financial assistance and treatment support to Lyme and tick-borne disease patients over the age of 26 who are in crisis. We do this through grants and counseling in an effort to stem the tide of Lyme-related suicides. According to Dr. Joseph Jemsek (MD from Washington, DC), "The most common cause of death in Lyme disease is suicide." Through our efforts and support through generous donations and sponsors, we hope to put this reality in the past.

Ruling year info

2018

CEO, President

Mr. Gregg Kirk

Main address

115 Ward St

Norwalk, CT 06851 USA

Show more contact info

EIN

47-4783824

NTEE code info

Specifically Named Diseases (G80)

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Lyme disease and tick-borne diseases are the fastest-spreading infectious diseases of the 21st Century. Akin to the Polio and AIDS epidemic in the last century, Lyme needs immediate assistance regarding better diagnostics and treatments, research funding and patient support. The Ticked Off Foundation was originated by and is propelled by Lyme disease survivors, who are striving to end the suffering of this misunderstood and tragic illness. Since launching, the Ticked Off Foundation has developed a national and international media footprint. The Ticked Off Foundation, the Ticked Off Music Fest (benefit concert series) and Recycle for Lyme, are now well-known entities in the Lyme disease community as well as in the national public awareness. We have received attention from such media outlets as The Huffington Post, LA Weekly, Baltimore Sun, Jacksonville Times-Union, Wilmington News Journal, WBAL-TV Baltimore, Connecticut News 12, KGMB Hawaii News Now, Sunrise Honolulu and more.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Recycle for Lyme

The Recycle For Lyme program is a combined effort of the Ticked Off Foundation and TerraCycle®. Participants (individuals, Lyme groups, clubs or companies) collect specific materials/containers, ordinarily destined for the land fill or incinerators and not considered traditional recyclable material. Once the shippable amount has been accumulated, participants request a prepaid UPS label and simply drop off the full boxes to ship to TerraCycle. As each new box rolls in, recycle points are accumulated and converted into cash donations sent directly to the Ticked Off Foundation's tax-exempt patient fund. With this new influx of donations, the foundation can bestow grants to the growing list of Lyme patients currently in crisis and reaching out to us.

Not only will these efforts help save the environment by recycling material not ordinarily handled by traditional recycling plants and therefore destined for the landfill or incinerators, but each piece converts into a direct donation to our Lyme disease patient fund! This is a WIN/WIN situation.

Population(s) Served

The Ticked Off Music Fest is a U.S. concert series dedicated to the prevention, awareness and patient support of Lyme disease and other tick-borne illnesses that have become the fastest-growing infectious diseases in the country – six times faster-spreading than HIV/AIDS.

Launched in 2012, The Ticked Off Music Fest is the only ongoing music event solely focused on Lyme disease education, awareness and fundraising that travels to trouble spots around the country.

The series is designed to hold events in different regions of the country where tick-borne disease awareness is low but incidence of infection is high.

We alternate Lyme disease speakers with musical talent onstage and include fundraising efforts to create uplifting, positive events.

Each festival is 5-6 hours in duration and full of information presented by doctors, Lyme researchers, authors, & foundation leaders, interpolated with high-quality musical performances.

These festivals have created a patented formula that has been financially, philanthropically and educationally successful, reaching into communities; bringing music, joy, healing, and support to those suffering as well as raising funds for Lyme disease research.

We have visited Wilmington, DE, Jacksonville, FL, Annapolis, MD, Los Angeles, CA, Honolulu, HI and Woolwich, ME so far. The series is seeking sponsors for individual city locations as well as annual series sponsors who value national exposure.

Population(s) Served

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of counseling sessions performed

This metric is no longer tracked.
Totals By Year
Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Context Notes

The Ticked Off Foundation provides free suicide counseling sessions by a certified practitioner for those who qualify for financial assistance through our website.

Total weight of materials recycled

This metric is no longer tracked.
Totals By Year
Related Program

Recycle for Lyme

Type of Metric

Context - describing the issue we work on

Direction of Success

Holding steady

Context Notes

Total number of pounds of recycling material processed

Number of Lyme patients registering for financial assistance on our website

This metric is no longer tracked.
Totals By Year
Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Ticked Off Foundation is dedicated to the prevention, awareness, and support for patients with Lyme disease and other tick-borne illnesses that have become the fastest-growing infectious diseases in the United States.

Our mission is to provide financial assistance and support to Lyme and tick-borne disease patients over the age of 26 who are in crisis. We do this through grants and counseling in an effort to stem the tide of Lyme-related suicides. According to Dr. Joseph Jemsek (MD from Washington, DC), “The most common cause of death in Lyme disease is suicide.” Through our efforts and support through generous donations and sponsors, we hope to put this reality in the past.

In 2012, Gregg Kirk created the Ticked Off Music Fest to become the only ongoing music series solely focused on Lyme disease education, awareness and fundraising. Its focus is to go to areas where the rate of infection is high but awareness is low.

In 2015, Kirk also founded the Ticked Off Foundation, a Lyme support organization whose mission is to provide financial assistance and support to Lyme disease patients over the age of 26 who are in crisis. The organization does this through grants and counseling in an effort to stem the tide of Lyme-related suicides.

In 2016, he co-founded the Recycle for Lyme program that enables participants to collect non-traditional recyclables, ship them to a recycling facility for free, and in turn generate donations to the Ticked Off Foundation non-profit organization, who funds Lyme patients in crisis. Those who join can help save the planet while helping sick Lyme patients for free. It’s a win/win!

In 2017, Kirk created and launched LymeKnowledge.com, an easy-to-understand web resource written by him and several Lyme patients to help broadcast the most accurate and up-to-date information on Lyme prevention, symptoms, diagnosis & treatments.

Our organization's current capabilities are the following:

- Event organizing & public fundraising
- Nationwide recycling programs
- Lyme disease patient counseling & financial support
- Public education of the many facets of chronic Lyme disease
- Lyme disease patient advocacy

Since launching our first show in 2013, The Ticked Off Music Fest continues to be the only ongoing music event solely focused on Lyme disease education, awareness and fundraising that travels to trouble spots around the country. We go to areas where the rate of infection is high but awareness is low.

The events have created a patented formula that has been financially, philanthropically and educationally successful, reaching into communities; bringing music, joy, healing, and support to those suffering as well as raising funds for Lyme disease research and patient support.

We have visited Wilmington, DE, Jacksonville, FL, Annapolis, MD, Los Angeles, CA, Honolulu, HI, Woolwich, ME, and Richmond, VA so far and have plans to throw other events across the country this year. The series is seeking sponsors for individual city locations as well as annual series sponsors who value national exposure.

Since launching in 2016 the Recycle for Lyme program has collected tons of non-traditional recyclables and generated thousands of dollars for the treatment of Lyme disease patients in crisis.

Since launching in 2015, the Ticked Off Foundation has helped hundreds of patients of Lyme disease recover from illness and avoid financial struggles as a result of funding Lyme disease treatment. For a snapshot of testimonials, go to: https://www.tickedofffoundation.org/testimonials/

Financials

TICKED OFF FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

TICKED OFF FOUNDATION INC

Board of directors
as of 9/4/2020
SOURCE: Self-reported by organization
Board chair

Mr. Gregg Kirk

Tracey Kirk

Star Inc.

Joseph Tarquini III

Seligman, Tarquini and Associates, LLC

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No