CP NOW

Advancing Neurorecovery

Greenville, SC   |  cpnowfoundation.org

Mission

TO IMPROVE THE LIVES OF PEOPLE WITH CEREBRAL PALSY AND THEIR FAMILIES. WE WILL ACCOMPLISH THIS BY CREATING EDUCATIONAL RESOURCES (TOOL KITS), INITIATING WELLNESS CAMPAIGNS AND FUNDING RESEARCH FOCUSED ON ADDRESSING THE EARLY INTERFERENCES IN BRAIN DEVELOPMENT WHICH CAN LEAD TO CP. WE WILL ALSO HIGHLIGHT AND SUPPORT RESEARCH FOR ASSOCIATED CONDITIONS THAT MAY INTERFERE WITH LEARNING OR PARTICIPATION IN SOCIETY. TOGETHER WITH CEREBRAL PALSY CENTERS, CLINICIANS, RESEARCHERS, AND THE CP COMMUNITY, WE WILL WORK TO ADVANCE NEURORECOVERY, WELLNESS AND LIFELONG SUPPORT FOR PEOPLE WITH CP.

Ruling year info

2015

President

Michele Shusterman

Main address

PO Box 8347

Greenville, SC 29604 USA

Show more contact info

EIN

47-4901704

NTEE code info

Fund Raising and/or Fund Distribution (E12)

Physical Fitness/Community Recreational Facilities (N30)

Brain Disorders (G48)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Our organization is focused on supporting families and individuals impacted by early brain injury and cerebral palsy (a well known set of movement disorders and consequence of early brain injury). Despite cerebral palsy (CP) being a condition that has been known about and discussed in medical literature since the 1800's, there has been a lack of organization and momentum around the CP community as it relates to consumer education about the condition, research, treatments and support for families and individuals.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Educational resource guides

CP NOW develops and strategically distributes educational resource guides for parents of children with CP and individuals with CP. There is a large knowledge gap that exists within the CP community among those affected by the condition and within the community of professionals treating them. CP NOW began in part to address this issue through the development of lifespan resource guides. Visit cpnowfoundation.org for a list of our current resources including The CP Tool Kit, the first comprehensive diagnosis resource guide for families.

Population(s) Served
Families
Parents

Where we work

Affiliations & memberships

The CP Collaborative 2018

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To optimize the lifelong health, wellness and inclusion of people with cerebral palsy and their families.

We will accomplish this by:

1. Our organization is working to identify gaps in educational resources and knowledge translation that would serve to support caregivers and and individuals impacted by these conditions. We are focused on developing and distributing the missing educational resources our community needs.
2. Funding promising research focused on addressing the diversity of symptoms and conditions related to having cerebral palsy.
3. Hosting and/or promoting adaptive physical programs and wellness campaigns.

Together with the CP community and our professional partners, we will work to advance neurorecovery, wellness and ongoing support for individuals and their families.

1. Development of educational materials: We have a scientific advisory council as well as partnerships with CP and early brain injury experts throughout the world via the professional Academy for CP--AACPDM and the Cerebral Palsy Research Network (CPRN). Together with our community volunteers we work with subject experts to identify knowledge and resource gaps and work together to develop new resources like our Cerebral Palsy Tool Kit and Wellbeing Guide for Caregivers. We make these resources available for free through our website and allow consumers and hospitals to purchase printed copies through Amazon. https://cpnowfoundation.org

2. We fundraise to gather the funds we need for our research program. Currently, we are focused on funding pilot studies (approx $25,000) that will bring new ideas forward and allow researchers to pursue larger grants with government funding sources like NIH.

3. Physical activity/exercise is a new area of focus for CP. Most people with CP age into adulthood with debilitating chronic pain and loss of function. Keeping people active and providing opportunities for movement and maintaining range of motion as long as possible and wherever possible is vital particularly as heart disease and diabetes are also risk factors associated with being more sedentary. We will partner with local and national organizations to sponsor adaptive activities and wellness campaigns to help people understand the importance and potential benefits of exercise. This year we co-sponsored our first wellness even, an adaptive swim day for people with physical impairments of all ages. These partnerships require modest financial investment and our goal now is to co-host activities nationwide with our volunteer base staffing these events and providing educational materials.

We maintain an timeline of action on our website for visitors to view our accomplishments and our immediate goals:

https://cpnowfoundation.org/timeline/

We are moving closer to empowering consumers (families and individuals with CP) to understand what they need to know, ask for or seek out to live their healthiest and most fulfilling life.

Financials

CP NOW
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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CP NOW

Board of directors
as of 02/22/2022
SOURCE: Self-reported by organization
Board chair

Paul Gross

CP Research Network

Term: 2021 - 2023

Michele Shusterman

Rick Smith

Aisha Morrison

Jacob Kean

Organizational demographics

SOURCE: Self-reported; last updated 1/29/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data