GOLD2023

PATIENTS RISING INC

Reston, VA   |  www.patientsrising.org

Mission

Patients Rising was formed to stand up for patients. To advocate for their rights. To fight for their access to the medications they need and deserve. And to tell the truth about health care.

Ruling year info

2016

Co-Founder & CEO

Terry Wilcox

Main address

11710 Plaza America Drive Suite 2000

Reston, VA 20190 USA

Show more contact info

EIN

47-5016851

NTEE code info

Alliance/Advocacy Organizations (E01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Patients Rising is a national nonprofit organization dedicated to providing support and education to people with chronic and life-threatening illnesses and use the health care system at least once per month. We work with patients to advocate for access to the treatments, innovations, and care they need.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patients Rising University

Through an online learning resource, Patients Rising University clarifies the barriers that affect patients' ability to access the health care they need when they need it. As they navigate a complex coverage and care environment, we offer pocket access to resources and best practices

Population(s) Served
People with diseases and illnesses

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To date, Patients Rising has directly helped more than 2,000 patients and caregivers learn how to access the care they need and advocate for themselves and their loved ones.

Our goal is to double our patients served every year, and we aim to do that through the following:

- Patients Rising Concierge: a free program that supports patients and caregivers by connecting them to free or reduced-cost services that are personalized to their needs. To get
- Help patients and caregivers educate themselves to better navigate the healthcare system through webinars, events and personalized assistance
- Create relevant content and share information and resources through our media outlets: The Patients Rising Podcast, Voices of Value Blog and Social Media Channels

This year we will:
- Expand of the Patients Rising Concierge Program by employing robust software infrastructure and support, plus hiring additional Patient Navigators
- Host monthly patient education focused webinars, and a fall Patient Advocacy Day on Capital Hill
- Launch the Patients Rising Podcast
- Launch a COVID-19 resources site for Immunocompromised Communities

We have expanded our team to Patient Navigators to personally handle and direct Patients Rising Concierge requests, as as well as a content creation team, led by both industry leaders in healthcare advocacy, as well as patient advocates who can speak from personal experience.

In 2020, we have launched Patients Rising Concierge, the Patients Rising Podcast and a COVID-19 specific website + private Facebook group dedicated to Immunocompromised Communities, and offers weekly updates + ongoing support for those who are at an increased risk for COVID-19.

Financials

PATIENTS RISING INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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PATIENTS RISING INC

Board of directors
as of 01/19/2023
SOURCE: Self-reported by organization
Board chair

John Kabateck

Kabateck Strategies

Term: 2019 - 2023

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/11/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data