Liver Mommas & Families, Inc.

Support. Resources. Advocacy. Hope.

aka LMF   |   Ellicott City, MD   |  https://www.livermommas.org

Mission

We understand what it means to be a "Liver Momma", as Liver Mommas ourselves. We are dedicated to bringing support, resources, and comfort to families of children diagnosed with terminal and life-threatening liver disease / liver transplant.

Notes from the nonprofit

We are a grass-roots organization. While we do employ strategies for outreach and growth, the majority of our growth has been organic. We seek to address gaps that are not being filled by other organizations and work with our partners to expand our collective reach.

Ruling year info

2017

Founder, CEO

Jasmine Hollingsworth

Vice President, Executive Director

Jen Lau

Main address

PO Box 7105

Ellicott City, MD 21042 USA

Show more contact info

EIN

47-5464106

NTEE code info

Philanthropy / Charity / Voluntarism Promotion (General) (T50)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

We seek to address need in the pediatric liver transplant community that has otherwise gone unfulfilled.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Jingle Bell Drive

Liver Mommas and Families is a group of parents and caregivers of children who have terminal and life-threatening liver disease. Many of our children have had liver transplants. We understand what it’s like to spend long months, holidays and even birthdays in the hospital. We are also no strangers to the costs associated with such long-term medical care. This is why we started Liver Mommas.

In 2011, we started an annual event to bring a holiday dinner and gifts to children and their families admitted to Medstar Georgetown University Hospital in Washington, DC. over the holiday season (The Jingle Bell Drive).

Today we support 4 pediatric liver transplant hospitals in the US during the Holiday Season: Medstar Georgetown University Hospital in DC, Johns Hopkins Children's Hospital in Baltimore, Cincinnati Children's Hospital Medical Center in Cincinnati, and Ann & Robert H. Lurie Children's Hospital in Chicago.

Population(s) Served

Our Annual Pediatric Transplant Art Show is event held during Pediatric Transplant Week at the end of April. This event is intended to raise awareness of pediatric organ transplant. While we focus on liver transplant, the art show is open to children with any transplanted organ up to age 18.

Population(s) Served
Children and youth
Chronically ill people
Terminally ill people

Every spring we host a fundraiser during Donate Life Month to cover the cost of Care Packages for liver-families. Our dedicated team of individuals identifies families who are struggling in our community through outreach and careful evaluation. Care Packages containing an array of items from printed resources and travel toiletries, to gift-cards to off-set the cost of medical expenses are then sent to families in the hospital to make their stay more comfortable.

Population(s) Served
Families
Chronically ill people
Terminally ill people
People with other disabilities
Children and youth
Families
Chronically ill people
Terminally ill people
People with other disabilities
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of editorial board meetings held

This metric is no longer tracked.
Totals By Year
Population(s) Served

Family relationships

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Number of organizational partners

This metric is no longer tracked.
Totals By Year
Population(s) Served

Family relationships

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Family relationships

Type of Metric

Context - describing the issue we work on

Direction of Success

Increasing

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Population(s) Served

Family relationships

Type of Metric

Other - describing something else

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our aim is to support families of children with life-threatening liver disease and liver transplant throughout their journey pre and post transplant.

Our organization is comprised of a group of parents whose children have been diagnosed with liver disease and have received a liver transplant. We understand the initial shock of diagnoses, the sudden flurry of information dispensed in the language of medical jargon, and the feeling of having your entire world turned upside-down in an instant. We’ve spent long weeks and months in the hospital, celebrating birthdays, holidays, and milestones with the quiet beep of IV pumps and heart-rate monitors in the background.

We also understand hope. We know that traveling this road is made so much easier with the help of those who have walked it before us.

We support liver families at four pediatric liver transplant hospitals, to include Georgetown University Hospital, Cincinnati Children’s Hospital Medical Center, Johns Hopkins Children’s Center at Johns Hopkins Hospital, and Ann & Robert H. Lurie Children’s Hospital. Our team of 100% volunteers work closely with Child Life representatives to provide support where it’s needed most both pre and post-transplant.

We continue that support beyond the hospital, offering resources on our website for parents and families to help navigate some of the challenges presented by having a child with life-threatening liver disease and liver transplant. We also offer an online support group through Facebook. Additionally, our team members provide individual outreach to families through online support efforts and care packages and sympathy items.

We work with our partners to help with fundraising efforts, raise awareness for pediatric liver disease and organ transplant, be a voice in pediatric liver transplant advocacy, provide funding for research, and networking with other like-minded and complimentary organizations.

As we look toward the future, we hope to establish scholarships for liver-kids and their parents seeking a career in health and sciences and we’re working diligently to develop a resource for families internationally to increase access to transplant, medication, and follow-on care across the globe.

Where there is a need, we aim to find a way to fill it. Where there is uncertainty, we seek to provide hope. Together, we can imagine a better tomorrow.

We have been experiencing organic growth over the last 10 years, prompting increasing donations and partnerships that consistently expand our reach. We fundraise primarily online, through social media and our website, and have been successful doing so, thus far.

Our Board members each have diverse and unique backgrounds that allow us to expand out advocacy efforts in partnership with other, like-minded organizations as well as provide community outreach and develop resources that can be distributed to the community.

We plan to continue allow the organization to grow and develop this way, and hope to eventually seek grants, as well.

Liver Mommas & Families began in 2011 when a group of parents decided to make the holidays a little more bearable for children and their families admitted to Georgetown Hospital over the Christmas Holiday by bringing traditional holiday dinner and gifts to celebrate the season. Out of that effort we developed into a resource for families, offering support through our online support group. In 2015 our organization became a Nonprofit, and in 2017 LMF was formally recognized as a 501c3.

Today we support liver families at four pediatric liver transplant hospitals, to include Georgetown University Hospital, Cincinnati Children’s Hospital Medical Center, Johns Hopkins Children’s Center at Johns Hopkins Hospital, and Ann & Robert H. Lurie Children’s Hospital. Our team of 100% volunteers work closely with Child Life representatives to provide support where it’s needed most both pre and post-transplant.

We continue that support beyond the hospital, offering resources on our website for parents and families to help navigate some of the challenges presented by having a child with life-threatening liver disease and liver transplant. We also offer an online support group through Facebook. Additionally, our team members provide individual outreach to families through online support efforts and care packages and sympathy items.

We work with our partners to help with fundraising efforts, raise awareness for pediatric liver disease and organ transplant, be a voice in pediatric liver transplant advocacy, provide funding for research, and networking with other like-minded and complimentary organizations.

Financials

Liver Mommas & Families, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Liver Mommas & Families, Inc.

Board of directors
as of 7/22/2021
SOURCE: Self-reported by organization
Board chair

Jen Lau

Katie Thomas

Sairah Ijaz

Steven Coffee

Jen Lau

Diana Nordling

Jasmine Hollingsworth

Anna Beeman

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 07/22/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Multi-Racial/Multi-Ethnic (2+ races/ethnicities)
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Decline to state
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 07/12/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.