PLATINUM2024

FAMILY RESOURCE NAVIGATORS

We walk the walk.

aka FRN   |   San Leandro, CA   |  www.familyresourcenavigators.org

Mission

Family Resource Navigators (FRN) is a vital support for families raising children and youth with special health care needs. Facing conditions ranging from chronic physical to developmental or emotional, FRN is a steadfast ally. In the intricate landscape of education, healthcare, social services, family support, community inclusion, advocacy, and more, FRN offers indispensable guidance. Beyond navigating systems, we empower parents to champion their children's rights and create resilient communities through shared experiences. FRN ensures families not only overcome challenges but emerge as leaders, advocating not just for their own but for the broader community of children and youth with special health care needs.

Ruling year info

2016

Executive Director

Dr. Eileen Crumm PhD

Director of Leadership and Programs

Kausha King

Main address

101 Callan Avenue Suite 200

San Leandro, CA 94577 USA

Show more contact info

Formerly known as

Family Resource Network

EIN

47-5477207

NTEE code info

Family Services (P40)

Human Services - Multipurpose and Other N.E.C. (P99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2022 and 2021.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

FRN works with families with a child with a developmental delay, disability or special health care needs. These families can face a lot of challenges. They need to find and advocate for services they need for their child. This means learning about systems that serve kids, and learning to advocate. This can be hard for anyone, but is particularly challenging if they are newcomers to the US or English language learners. Having a child with a special need can also be stressful and isolating, and families need spaces to go for support and community. Family and friends often do not understand the time, resources and energy that go into raising a child with special needs. Families need the opportunity to get support, and to give to support to each other. Parents also need a voice in influencing the systems that serve their children, as they may not meet the needs of all the families. Parents and family members need leadership skills, and opportunities to be heard.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

CCS Family Navigation

CCS Family Navigation provides peer to peer family navigation to children with medical complexity in Alameda​ County. Families raising children with special needs face a daunting task. To get what their children need for their health and well-being, parents must be able to navigate fragmented and multiple systems, including medical (physical and mental health), educational (school district services), developmental (Regional Center), financial supports (such as In-Home Supportive Services or Supplemental Security Income) and basic needs. However, most families have no idea of where to start, and often turn to their pediatricians for help in getting their children these services. Most physicians have neither the time nor the expertise to provide this support to families. We call this service Family Navigation, and it focuses on teaching families how to connect with community services for their child with special needs. Family Navigation is a peer-to-peer service, where trained family members teach others to navigate systems to get the services and supports that children with special needs require.

Population(s) Served
Families
People with diseases and illnesses

In partnership with First Five Alameda County, FRN provides multi-lingual support to families with a child (birth to 5) with a developmental concern. Family Navigators help educate parents about and connect them to available services for their children. Services are available in English, Spanish, Mam, Cantonese and Arabic.

Population(s) Served
Infants and toddlers
People with disabilities

FRN provides one on one peer support to families with infant and toddlers with developmental delays. In addition, FRN provides support groups, playgroups and workshops for families.

Population(s) Served
Families
Infants and toddlers

FRN provides one one-on-one peer assistance to families with a child who is eligible (or who needs to apply for) services from the Regional Center of the East Bay. FRN staff helps teach families to connect to and advocate for services in the community and from the regional center.

Population(s) Served
Families
People with disabilities

This new training is designed to develop Black parent leaders in education, community services, and healthcare. Each year, we work with 2500 parents to provide training and support so that they can learn to become effective advocates for their children and our community. In the diverse Bay Area, one size does not fit all. That's why we partnered with Black parents of children with disabilities, delays or medical conditions to tailor this curriculum to learn how to make a difference in school, city, county and state levels.

Population(s) Served
Families
People with disabilities
Ethnic and racial groups

FRN is the Family Empowerment Center for Alameda County, funded by the California Department of Education. FEC Staff assist families with special education services. FECs support parents and guardians to better understand their child’s individualized education needs.​ FECs help parents to understand their child's rights for special education. FECs coach parents to develop effective communication skills.​ FECs assist parents to work collaboratively with their child’s special education team.​ FECs help parents to access their procedural rights when dispute resolution fails. ​

Population(s) Served
Children and youth
Ethnic and racial groups
Families
Caregivers
Parents

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of Families provided one on one peer support and navigation

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, Families, Immigrants and migrants, Economically disadvantaged people, People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

FRN expanded programs in 2022-2023, allowing more families to receive one on one assistance.

Average number of service recipients per month

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, Caregivers, Families, Parents, People with disabilities

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of backpacks filled with school supplies distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, People with disabilities, Economically disadvantaged people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of customers reporting satisfaction with program

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, People with disabilities, Economically disadvantaged people

Type of Metric

Other - describing something else

Direction of Success

Holding steady

Context Notes

This is a percentage of those surveyed who agreed or strongly agreed with the statement, I would recommend FRB services to a friend of family member.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Family Resource Navigators (FRN) is a parent-staffed and parent-led agency serving families of children with developmental delays, social emotional concerns and disabilities in Alameda County.Our mission is to support families of children with special needs in Alameda County and empower them to access and improve systems that serve children.

FRN has three main strategies -- one on one peer family navigation, trainings/groups for support, and parent leadership, One on one peer family navigation means that all staff are family members with experiential and learned knowledge about systems and advocacy. They coach and support family members to connect to and advocate for services. This can be a phone call or two, or may take place over a matter of months. Family Navigators stay with a family until a child is connected to services, or the family thinks they can handle on their own.

Trainings and group activities offer a mixture of learning and social support activities for parents and family members, allowing them to connect with each other and form natural social supports. Parents from FRN's leadership programs organize and facilitate most group activities. FRN offers leadership trainings in system change, advocacy and being a peer parent.

FRN Parent leadership offers opportunities for family members to become system advocates. FRN offer opportunities for parents to change the systems that serve families -- or be a community leader that helps families. FRN trainings between 20-50 family leaders each year focusing on family members who are bi-cultural and bi-lingual. Some of these family leaders then join FRN's governing board or staff. This strategy has helped FRN build a very diverse workforce, the agency current is able to help families in 12 different languages.

FRN staff are well equipped to meet these goals. FRN is a parent directed and parent led agency, we are the families that we serve. Staff have been system advocates, parent leaders, support group leaders themselves. Staff have also had to advocate for their own children. FRN adds to this rich experiential knowledge through extensive training for staff in all systems that serve children with developmental delays and disabilities. Staff attend a minimum of 5 trainings per year on working with families and the way systems work. New staff attend a 20 session training class that goes through all the agencies/services that work with our families. Furthermore, all staff are trained in the Strengthening Families approach -- and work on building resilience and capacity in the families we serve.

FRN staff work with about 2500 families in any given year. Last year, FRN had 1,833 face-to-face meetings with families; 15,221 exchanges with families by text, phone or email and 3,167 calls to therapists, agencies and schools for a family. Last year -- FRN staff helped families get connected to school district services (over 650), get advocacy training (almost 1000), find subsidized child care (over 100), enroll in Medi-Cal (over 80) and get help taking care of their child at home from In Home Supportive Services (over 100) -- to name a few. More importantly, in surveys families tell us that FRN staff are respectful of their culture (100%), helped them become more knowledgeable about systems (92%) and become better advocates for their children and families (95%).

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, Staff find it hard to prioritize feedback collection and review due to lack of time

Financials

FAMILY RESOURCE NAVIGATORS
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

FAMILY RESOURCE NAVIGATORS

Board of directors
as of 03/06/2024
SOURCE: Self-reported by organization
Board chair

Sujatha Ranganathan

James Ricks

Parent/Retired

Jan Grossman

Advocate

Daniel Vasquez

Parent Partner/UCSF Benioff Children's Hospital

Sumita Kaira

Parent/Physician

Cheri Hatanaka

Parent/Attorney

Steve Allie

Director/System Engineering

Rachida Ahmad

BCBA/parent

Anu Singh

Executive and Leadership Coach

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 3/6/2024

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

The organization's co-leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Female, Not transgender
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

Equity strategies

Last updated: 10/22/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.