Center for Practical Bioethics

Guidance at the Crossroads of Decision

Kansas City, MO   |  www.PracticalBioethics.org

Mission

CPB's mission is to raise and respond to ethical issues in health and healthcare. Our vision is that ethical discourse and action advance the health and dignity of all persons. As science and technology expand what medicine can do and inequities in health more urgent, decisions about what OUGHT to be done grow increasingly difficult and complex. POLICY - CPB brings diverse groups together to work collaboratively, recommend guidelines, develop programs and disseminate resources. PROFESSIONAL – CPB teaches bioethics to medical students, clinicians and consumers. PERSONAL – CPB provides guidance to patients, families and clinicians. “Practical” distinguishes CPB from other bioethics centers, mostly based in academic institutions and focused primarily on theoretical issues.

Ruling year info

1984

President and CEO

Mr. John G. Carney

Main address

Harzfeld Building, Suite 500 1111 Main

Kansas City, MO 64105 USA

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Formerly known as

Midwest Bioethics Center

EIN

48-0985815

NTEE code info

Research Institutes and/or Public Policy Analysis (E05)

(Won)

(Hon)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Advance Care Planning & Shared Decision Making

Advance care planning is about shared decision making and documenting the healthcare one would want if unable to speak for oneself. COVID-19 underscored the need to respond to emergent high stress situations in medical decision making. While nearly 90% of recent study participants were aware of advance care planning and considered it important, fewer than 40% had named a proxy or completed a written document. Participation is particularly low in minority communities. In 2021, 51,000+ people interacted with our Caring Conversations resources, and we provided POLST training to dozens of KS/MO health providers. The Center’s work with African American faith communities has contributed to the field by creating tools and resources for local congregations and resulted in a major initiative at Duke University School of Divinity. In addition, since 2013, PAINS-KC has been giving voice to those who live with pain, providing a safe place for engagement, education and advocacy.

Population(s) Served
People with diseases and illnesses
Economically disadvantaged people

More than 50 case studies on our website convey the nature and scope of ethical issues virtually all clinicians face. Yet most receive little to no training in clinical ethics, impeding their ability to provide the best care in normal times – and critically in pandemic times. EXPANDED CLINICAL SERVICES – We provide ethics training to 16 Affiliate Health Systems involving 42 locations, providing nearly 500 hours of direct consultation in 2021. ETHICS COMMITTEE CONSORTIUM – We provide monthly webinars, workshops and resources to 500+ individual members representing 40 institutional ethics committees. MEDICAL EDUCATION – We renewed contracts with two area medical schools for ethics training and mentoring, including 1,450 students. COMMUNITY EDUCATION – We presented the Flanigan Lecture, Berkley Symposium and a Resilience Workshop for frontline workers. WEBSITE – Our new site includes 4,000+ reports, guidelines, program materials, case studies, interviews, lectures and symposia.

Population(s) Served
Adults
Economically disadvantaged people

GUIDANCE & THOUGHT LEADESHIP IN HEALTH ETHICS – Staff provides thought leadership through media, lectures, publications and advisory roles. In 2021, we served on multiple KS/MO pandemic advisory groups. Our time-intensive response to calls for help demonstrates our commitment to protect the interests of those whose voices have not been heard or heeded and to the just delivery of healthcare. CIVIC ENGAGEMENT & HEALTH EQUITY – We launched a new project, Building a Circuit of Civic Learning, Dialogue and Connection to Advance Health Equity: A Deliberative Approach, which is developing resources to convene diverse populations to learn about and weigh in on population health challenges. ARTIFICIAL INTELLIGENCE – The Advisory Council for our Ethical AI Initiative is guiding the deployment of a framework to design, develop, disseminate and implement new models that address bias and inequity in AI in healthcare. Work has begun to develop an AI ethics curriculum and a pilot project to test it.

Population(s) Served
Economically disadvantaged people
Adults

Where we work

Awards

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of individuals attending community events or trainings

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Total includes in-person, webinar and live streamed participants.

Number of research or policy analysis products developed, e.g., reports, briefs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Includes 50+ lectures/presentations and 10 professional journal publications, as well as blogs, newsletter articles and policy briefs.

Number of downloads of the organization's materials and explanations

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Center's website contains one of the largest free online bioethics libraries in the world. In 2021, we began counting users instead of page views

Number of referrals to resources offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We spend 600+ hours/year responding to calls from individuals in healthcare crises and policymakers seeking guidance on legislation, regulation, etc.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person),

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We recently completed a two year process using a volunteer focus group of stakeholders to improve services/programming to ethics committee institutional members throughout our 30+hospital consortium. As a result we created a new educational format and delivery model for content (webinars, workshops and online resources).

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time, It is difficult to identify actionable feedback,

Financials

Center for Practical Bioethics
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Center for Practical Bioethics

Board of directors
as of 03/06/2022
SOURCE: Self-reported by organization
Board chair

Eva Karp

Cerner

Term: 2021 - 2022

Mary Blake

Retired Attorney (Polsinelli)

Sandra Stites

Kansas City Women's Clinic

Sukumar Ethirajan

Dr. E.T.'s Concierge Care

Jane Lombard

Palo Alto Medical Foundation

Abiodun Akinwuntan

KU School of Health Professions

Darrin D'Agostino

Kansas City University of Medicine and Biosciences

Alan Edelman

Retired

Eva Karp

Cerner Corporation

Stephen Salanski

Partners in Primary Care Clinics & Transcend Population Health Mgt.

Tresia Franklin

Diane Gallagher

American Century Investments

Sam Meers

Barkley Kansas City

Mark Thompson

Seigfreid Bingham

Norberto Ayala-Flores

Puente Marketing Communications

Karen Bullock

North Carolina State University

Tangula Taylor

Children's Mercy Kansas City

Maggie Neustadt

Saint Luke's Health System

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 2/18/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 06/28/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.