GOLD2023

EPILEPSY FOUNDATION OF DELAWARE

End Epilepsy Together

aka Epilepsy Foundation of Delaware   |   Newark, DE   |  www.efde.org

Mission

To identify, reach and support all people impacted by seizures and epilepsy, reduce stigma, increase community awareness and access to care, while leading efforts to facilitate the management of epilepsy throughout Delaware.

Ruling year info

1964

Principal Officer

Valerie Budischak

Main address

527 Stanton Christiana Rd.

Newark, DE 19713 USA

Show more contact info

EIN

51-6018401

NTEE code info

Brain Disorders (G48)

Alliance/Advocacy Organizations (E01)

Epilepsy (G54)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Individual Support

We provide individuals and families with information and support to help them understand and cope with epilepsy, including information about legislation, research and resources.

Population(s) Served

We provide a forum for people with epilepsy to discuss their concerns as well as share support and encouragement.

Population(s) Served

We partner with health teachers in high schools across Delaware to educate teens about epilepsy and seizures to eliminate stigma for teens with the disorder.

Population(s) Served

We provide seizure first aid and education on seizures and epilepsy for educators, law enforcement officials, first responders and other healthcare professionals.

Population(s) Served

We offer an assortment of books, pamphlets and DVDs/videos for lending.

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Epilepsy Foundation of Delaware's goals are to continue building internal capacity through improved technology and increased staffing as well as expanding our programs' reach in the community.

Our strategies include pursuing new funding opportunities and increasing the use of volunteers to assist with programmatic, administrative, and fundraising needs.

The Epilepsy Foundation of Delaware has highly qualified staff including a registered nurse as a program director and master's level educators. The executive director holds a master's degree and is a Certified Fundraising Executive.

New technology upgrades including a phone system and new computers have already been acquired and put into use. Additional upgrades will be made as funding is received. Program growth for our program targeting senior-serving organizations and community organizations has been strong over the past year. Our largest program, which is for teens, has held steady and is on track to reach a cumulative total of 50,000 unduplicated teens this current fiscal year.

Financials

EPILEPSY FOUNDATION OF DELAWARE
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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EPILEPSY FOUNDATION OF DELAWARE

Board of directors
as of 02/08/2023
SOURCE: Self-reported by organization
Board chair

Christy Poole

Christiana Care

Term: 2022 - 2017

Brian Bartley

Office of the Public Defender (retired)

Michael Brown

DuPont Packaging & Industrial Polymers

Kimberly Murphy

U. S. Department of Health & Human Services

Tom Josiah

Tom Josiah Consulting

Sarah Mullins

Stoney Batter Family Medicine

Ron Charnigo

Teresa Crisafulli

Casey Curet

University of Delaware

Kathy Neal

Widener University

Sarah M. Hinkle

Christiana Care

John R. Pollard

Christiana Care Neurology

S. Charles Bean

Nemours/A.I. DuPont Hospital for Children(retired)

Ann M. Helbe

Retired

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No