Help Hope Live

Radnor, PA   |  www.helphopelive.org

Mission

As a 501(c)(3) national nonprofit, Help Hope Live's mission is to support community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries and illnesses.

Ruling year info

1996

Executive Director

Kelly L Green

Main address

2 Radnor Corporate Center, Suite 100 100 Matsonford Road

Radnor, PA 19087 USA

Show more contact info

Formerly known as

National Transplant Assistance Fund, Inc.

EIN

52-1322317

NTEE code info

Health (General and Financing) (E80)

Health Support Services (E60)

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

There are more than 113,000 people currently waiting for an organ transplant. Approximately 291,000 people in the United States are living with a spinal cord injury. In 2014, the most recent year for which data is available, 2.87 million Americans sustained a traumatic brain injury. Of those, 288,000 were hospitalized. The average first-year costs of a high-level spinal cord injury can top $1 million and average costs of a transplant can range from $240,000 to $1 million. Help Hope Live exists to bridge the gap between what insurance covers and the cost of lifesaving care. As medical bills skyrocket, even Americans with insurance are responsible for 49% of the average medical bill. This is made worse by the fact that forty percent of Americans don't have any money saved for medical emergencies, and nearly half of that group say they just don't have the money to spare.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Transplant Assistance Program

We support community-based fundraising campaigns for people in need of lifesaving cell and organ transplants.

Population(s) Served

We support community-based fundraising campaigns for people living with catastrophic injuries and illness that have resulted in paralysis or other mobility impairments.

Population(s) Served

We provide one-time emergency assistance grants to patients facing a medical crisis for whom fundraising is not an option. Emergency grants provide a safety net to patients living closest to the edge to pay for items such as the next dose of life-sustaining medication, travel to critical medical care, gaps in Medicare coverage, expenses of living donors, adaptive equipment and ramps.

Population(s) Served

Where we work

Accreditations

Charity Navigator 2016

Awards

Non-Profit of the Year 2011

National Kidney Registry

Non-Profit of the Year 2007

Main Line Chamber of Commerce

Award for Continuing Excellence 2008

Inglis Foundation

Award for Continuing Excellence 2012

Inglis Foundation

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks how many new clients start a campaign with Help Hope Live in a given year.

Number of new catastrophic injury clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Catastrophic Injury/Illness Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks the number of new clients who open a campaign with Help Hope Live after experiencing a traumatic injury, including a spinal cord injury or other paralysis-related injury.

Number of new catastrophic illness clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Catastrophic Injury/Illness Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks the number of new clients who open a campaign with Help Hope Live after experiencing a traumatic illness.

Number of new transplant clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Transplant Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks the number of new clients who open a campaign with Help Hope Live before or after receiving cell or organ transplants

Number of transplants within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Transplant Assistance Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

This metric tracks clients who had a cell or organ transplant in a given year.

Number of physical therapy and rehabilitation sessions paid for within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Many of our clients require multiple weekly sessions of physical therapy and rehabilitation in order to regain their health and independence.

Number of accessible vehicle expenses within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Catastrophic Injury/Illness Assistance Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Many of our clients, particularly those living with a spinal cord injury, require an adapted van in order to receive transportation. This metric includes number of vans purchased and vehicle repairs

Number of home modifications paid for within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

In order for many of our clients to stay in their homes, expensive and necessary home modifications need to be done to ensure accessibility.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

When a client is diagnosed with a serious illness or experiences a traumatic injury, the hospital social workers and financial coordinators help the individual and their families understand the costs associated with the illness or injury. This often means fundraising, especially in the case of a transplant.

Our goal is to empower our clients with the tools to regain their independence and cover their out-of-pocket expenses. Many of our clients are new to fundraising, so we help them tap into their support networks and communities and help them pay their medical and related expenses.

Strategy for Successful Fundraising
It's important to understand that all patients and their families face unique challenges that may be difficult to address with template, generic fundraising options. At Help Hope Live our expert Fundraising Coordinators provide one-on-one consultation that allows us to develop personalized campaigns that are tailored to the needs and interests of each patient's support network. We understand that patients often face medical expenses for extended periods that may not be fully covered by a one-time fundraising effort. Leveraging our 30+ years of experience as well as our longstanding partnerships in the field, we are able to develop long-term and sustainable fundraising plans to support patients.

Help Hope Live fundraising plans often include ideas for online engagement, social fundraising, and community events. Help Hope Live is the administrator all of the funds raised in honor of patients and pays bills directly, helping patients and their families focus more on their treatment and recovery while providing accountability to donors who can be sure their funds will be spent for their intended purpose.

Strategy for Growth
We partner with social workers, financial coordinators, and case managers at hospitals and rehabilitation centers across the United States to identify patients who are in need of medical fundraising support. We educate these health care professionals about our program and services by exhibiting and sponsoring annual trade conferences and workshops, hosting monthly Webinars, and conducting in-service training.

Help Hope Live has a 36-year track record of building successful community-based fundraising campaigns for families of patients who need a transplant or who are living with a catastrophic injury or illness. Since 1983, campaigns organized by Help Hope Live have raised more than $135 million to cover patient expenses.

Our team continues to adapt to the ever-growing demand for our services: expanding staff to support more patients in need each year; building partnerships to increase our program offerings; supporting development efforts to enhance our resources for patients; and dedicating funds from our operational budget for each staff member to take part in professional development so they can grow their knowledge base, explore new trends and technology, and build beneficial relationships.

While we continue to increase the number of patients we serve and the amount of financial assistance we provide year over year, we realize there is potential to reach far more families in need of our services.

Every year in the United States, on average, a patient is added to the transplant waiting list once every ten minutes. In addition, there are 36,000 transplants and 17,000 new cases of spinal cord injury each year. At Help Hope Live, we serve approximately 3,900 patients each year.

In the years ahead we will work to bring our services to more patient populations and position more people to support Help Hope Live to help us expand our reach even further.

Financials

Help Hope Live
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Help Hope Live

Board of directors
as of 1/21/2020
SOURCE: Self-reported by organization
Board chair

James Madden

Hillview Capital Advisors, LLC

Term: 2018 - 2019

Heather Moore

Tompkins Vist Bank

James Madden

Hillview Capital Advisors, LLC

Nick Ryder, CFA

Kathmere Capital Management

James Kelley

CBRE

Eric Erickson

Sunguard

Stephanie McAlaine

ACG

Liam Murray

DigiStream, Inc.

Christine Kanter

National Transplant Assistance Fund (retired)

Pinank Parikh

KPMG

Ron Siggs

Magee Rehabilitation Hospital

Wendi Barish

Philadelphia Housing Authority

Michael Criscuolo

Bryn Mawr Hospital

Margaret Freeman

Heywood Financial

Rebecca Levenberg

Certified Amputee Peer Visitor/Mentor/Speaker

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes