PLATINUM2023

Help Hope Live

Trusted Medical Fundraising

Radnor, PA   |  www.helphopelive.org

Mission

As a 501(c)(3) national nonprofit, Help Hope Live's mission is to support community-based fundraising for people with unmet medical and related expenses due to cell and organ transplants or catastrophic injuries and illnesses.

Ruling year info

1996

Executive Director

Kelly L Green

Main address

2 Radnor Corporate Center, Suite 100 100 Matsonford Road

Radnor, PA 19087 USA

Show more contact info

Formerly known as

National Transplant Assistance Fund, Inc.

EIN

52-1322317

NTEE code info

Health (General and Financing) (E80)

Health Support Services (E60)

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2021.
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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Help Hope Live exists to bridge the gap between what health insurance covers and the actual cost of lifesustaining health care and equipment. As medical bills skyrocket, even Americans with insurance are responsible for 49% of the average medical bill. This is made worse by the fact that forty percent of Americans don't have any money saved for medical emergencies, and nearly half of that group say they just don't have the money to spare.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Transplant Assistance Program

We support community-based fundraising campaigns for people in need of lifesaving cell and organ transplants.

Population(s) Served
People with diseases and illnesses
Adults

We support community-based fundraising campaigns for people living with catastrophic injuries and illness that have resulted in paralysis or other mobility impairments.

Population(s) Served
People with disabilities
Adults

We provide one-time emergency assistance grants to patients facing a medical crisis for whom fundraising is not an option. Emergency grants provide a safety net to patients living closest to the edge to pay for items such as the next dose of life-sustaining medication, travel to critical medical care, gaps in Medicare coverage, expenses of living donors, adaptive equipment and ramps.

Population(s) Served
Adults

Where we work

Awards

Non-Profit of the Year 2011

National Kidney Registry

Non-Profit of the Year 2007

Main Line Chamber of Commerce

Award for Continuing Excellence 2008

Inglis Foundation

Award for Continuing Excellence 2012

Inglis Foundation

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks how many new clients start a campaign with Help Hope Live in a given year.

Number of new catastrophic injury clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with disabilities

Related Program

Catastrophic Injury/Illness Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks the number of new clients who open a campaign with Help Hope Live after experiencing a traumatic injury, including a spinal cord injury or other paralysis-related injury.

Number of new catastrophic illness clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Catastrophic Injury/Illness Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks the number of new clients who open a campaign with Help Hope Live after experiencing a traumatic illness.

Number of new transplant clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Transplant Assistance Program

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This metric tracks the number of new clients who open a campaign with Help Hope Live before or after receiving cell or organ transplants

Number of transplants within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Transplant Assistance Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

This metric tracks clients who had a cell or organ transplant in a given year.

Number of physical therapy and rehabilitation sessions paid for within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Many of our clients require multiple weekly sessions of physical therapy and rehabilitation in order to regain their health and independence.

Number of accessible vehicle expenses within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with physical disabilities

Related Program

Catastrophic Injury/Illness Assistance Program

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Many of our clients, particularly those living with a spinal cord injury, require an adapted van in order to receive transportation. This metric includes number of vans purchased and vehicle repairs

Number of home modifications paid for within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

In order for many of our clients to stay in their homes, expensive and necessary home modifications need to be done to ensure accessibility.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

When a client is diagnosed with a serious illness or experiences a traumatic injury, the hospital social workers and financial coordinators help the individual and their families understand the costs associated with the illness or injury. This often means fundraising, especially in the case of a transplant.

Our goal is to empower our clients with the tools to regain their independence and cover their out-of-pocket expenses. Many of our clients are new to fundraising, so we help them tap into their support networks and communities and help them pay their medical and related expenses.

Strategy for Successful Fundraising
It's important to understand that all patients and their families face unique challenges that may be difficult to address with template, generic fundraising options. At Help Hope Live our expert Fundraising Coordinators provide one-on-one consultation that allows us to develop personalized campaigns that are tailored to the needs and interests of each patient's support network. We understand that patients often face medical expenses for extended periods that may not be fully covered by a one-time fundraising effort. Leveraging our 30+ years of experience as well as our longstanding partnerships in the field, we are able to develop long-term and sustainable fundraising plans to support patients.

Help Hope Live fundraising plans often include ideas for online engagement, social fundraising, and community events. Help Hope Live is the administrator all of the funds raised in honor of patients and pays bills directly, helping patients and their families focus more on their treatment and recovery while providing accountability to donors who can be sure their funds will be spent for their intended purpose.

Strategy for Growth
We partner with social workers, financial coordinators, and case managers at hospitals and rehabilitation centers across the United States to identify patients who are in need of medical fundraising support. We educate these health care professionals about our program and services by exhibiting and sponsoring annual trade conferences and workshops, hosting monthly Webinars, and conducting in-service training.

Help Hope Live has a 40-year track record of building successful community-based fundraising campaigns for families of patients who need a transplant or who are living with a catastrophic injury or illness. Since 1983, campaigns organized by Help Hope Live have raised more than $172 million to cover patient expenses.

Our team continues to adapt to the ever-growing demand for our services: expanding staff to support more patients in need each year; building partnerships to increase our program offerings; supporting development efforts to enhance our resources for patients; and dedicating funds from our operational budget for each staff member to take part in professional development so they can grow their knowledge base, explore new trends and technology, and build beneficial relationships.

While we continue to increase the number of patients we serve and the amount of financial assistance we provide year over year; we realize there is potential to reach far more families in need of our services.

Every year in the United States, on average, a patient is added to the transplant waiting list once every 10 minutes. In addition, there are 42,000 transplants and 18,000 new cases of spinal cord injury each year. At Help Hope Live, we serve approximately 5,000 patients annually.

In the years ahead, we will work to bring our services to more patient populations and position more people to support Help Hope Live to help us expand our reach even further.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

Help Hope Live
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Help Hope Live

Board of directors
as of 05/10/2023
SOURCE: Self-reported by organization
Board chair

Ron Siggs

Magee Rehabilitation Hospital

Term: 2022 - 2025

Liam Murray

Venture Management Specialists

Kaushika Kansara

Illuminate Human Connectivity

Janet Gold

Eisenberg, Gold & Agrawal, P.C.

Eric Erickson

Berwind Corporation

Lauren Enlow

Blackbaud

Christine V. Kanter

National Transplant Assistance Fund (retired)

Langston Laury, Jr.

Northwestern Mutual

Rev. Dr. Lorina Marshall-Blake

Independence Blue Cross Foundation

Stephanie McAlaine

ACG

Taryn McCarty

Jeff Merschel

Vanguard

Brian Messner

DigiStream

Drew Morrisoe

CTN Solutions

Alex Reed Pickel

David Ruff

Janssen - The Pharmaceutical Companies of Johnson & Johnson

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 5/10/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

No data

Race & ethnicity

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 12/21/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.