Children's Inn at NIH, Inc.
A Place Like Home
Mission
The Children's Inn at NIH will fully and consistently meet the needs of children and families participating in groundbreaking research at the National Institutes of Health. We: Respond to evolving family support needs for pediatric research and clinical care Provide a free family-centered "Place Like Home" Reduce the burden of illness through therapeutic, educational and recreational programming Our residents are medical pioneers whose participation in clinical trials at the NIH can change the story for children, teens, and young adults around the world. NIH medical advances would not be possible without the people who drive them: children, teens, young adults, and their caregivers, clinicians and staff-the community The Inn brings together.
Ruling year
1989
CEO
Mrs. Jennie Lucca
Main address
7 West Dr
Bethesda, MD 20814 USA
EIN
52-1638207
NTEE code
Fund Raising and/or Fund Distribution (E12)
Research Institutes and/or Public Policy Analysis (G05)
Research Institutes and/or Public Policy Analysis (P05)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Families travel from around the world to the National Institutes of Health, and for many, this is their last, best hope for a cure or treatment for a life threatening illness. These families stay at The Children's Inn, while receiving treatment. In order to effectively treat a patient, particularly a child, the health-care team must care for the patient and his or her family as one. The emotional support a family gives to a sick child, as well as the mutual support among families in the same situation, is invaluable. This is much of what we seek to provide at The Inn. At The Children’s Inn, the power of childhood meets the power of research. We make childhood possible for children who’ve already lived through more than most, and who don’t have many chances to just be kids. We provide relief, support, and strength to families journeying into the unknown: the pioneers whose participation in medical trials at the NIH can change the story for children around the world.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Lodging
The Children’s Inn at NIH provides "a place like home” for pediatric patients and their families participating in clinical trials and studies at the National Institutes of Health (NIH). Children who stay at The Inn range in age from birth to 26 years old and they and their families have access to daily programmatic activities designed to meet their unique needs. The overall goal of The Inn’s programs and services is to reduce the burden of illness and provide a respite from daily medical treatments through recreational, educational and therapeutic activities.
Recreation, Education and Therapeutic Programs
The Children’s Inn at NIH provides "a place like home” for pediatric patients and their families participating in clinical trials and studies at the National Institutes of Health (NIH). Children who stay at The Inn range in age from birth to 26 years old and they and their families have access to daily programmatic activities designed to meet their unique needs. The overall goal of The Inn’s programs and services is to reduce the burden of illness and provide a respite from daily medical treatments through recreational, educational and therapeutic activities.
Where we work
Awards
Montgomery County Chamber of Commerce 2022
Visionary Award
CEO Award--Leading for Impact, Women in Leadership Award 2022
FedHealthIT
Affiliations & memberships
Better Business Bureau Wise Giving Alliance - Organization 2020
Combined Federal Campaign 2021
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of clients served
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, Families, People with diseases and illnesses
Related Program
Lodging
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In FY23, 730 families stayed at The Inn for 15,077 nights. In a typical, non-pandemic year, we serve more than 1,500 families.
Emergency Fund Support Provided
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, Families, People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In FY23, we provided $44,033 of emergency funds directly to families in crisis to alleviate financial stress. This included housing, food, clothing, transportation, utilities and medical expenses.
Number of therapeutic, educational, and diversionary programs offered
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, Families, People with diseases and illnesses
Related Program
Recreation, Education and Therapeutic Programs
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
In FY23, we offered more than 728 therapeutic, educational, & diversionary programs to support the needs of the entire family. We strive to let kids be kids in a fun, supportive environment.
States & Countries Served
This metric is no longer tracked.Totals By Year
Population(s) Served
Adults
Related Program
Lodging
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Context Notes
Since opening, families have come from all 50 states and 106 countries to help advance medical discoveries all around the world
Number of volunteers
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, Families, People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In FY23, 208 volunteers, 208 regularly scheduled, who worked 7,386 hours.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The Children's Inn at NIH aims to fully and consistently meet the lodging and psychosocial support needs of children and families participating in groundbreaking research at the National Institutes of Health. Our goals are (1) to provide a warm, caring and safe environment, which enables families to participate in medical research studies that offers healing and advances medical discoveries for people worldwide and (2) to reduce the burden and heartache of childhood illness. To achieve this, we have developed a comprehensive plan that enables us to maintain the capacity to respond to the evolving support needs of families participating in pediatric research and clinical care and to provide a free family-centered "place like home" that reduces the burden of illness through therapeutic, educational and recreational programming.
What are the organization's key strategies for making this happen?
The Inn embarked on a strategic planning process to develop #INN2025. In this plan, we are aiming to accelerate our impact on discovery & care by committing to 3 bold goals, which are detailed below, that will allow us to do more good for families in both established & new ways.
Goal 1: Evolve to a state-of-the art living environment
• Maximize availability of rooms and public spaces
• Focus design on family, experience, comfort and safety
• Enhance mission impact through technology
Goal 2: Strengthen the integration of discovery and care
• Align with NIH patient recruitment goals and evolving patterns of care to support families
• Reduce challenges our families face when participating in intramural research
Goal 3: Maximize community support and financial viability
• Fund strategic goals
• Diversify and grow base of future stakeholders
• Ensure financial sustainability
https://childrensinn.org/about/inn2025-strategic-plan/
What are the organization's capabilities for doing this?
The Inn is committed to excellence in all that we do. We strive to support our resident families by responding to the evolving changes in clinical care. The following resources will enable us to continue our commitment to excellence and reaching our programmatic and financial sustainability goals. They include (1) a dedicated and engaged Board of Directors, (2) a dedicated and committed leadership team that places high value in investing in the professional development of our diverse staff and volunteers, (3) strong relationships with our corporate community to leverage resources and relationships that will allow us to tap into subject matter expertise that will enable solid and innovative strategic planning, and (4) strong and well integrated relationships with our NIH clinical partners that allow us to respond effectively to clinical needs and raise awareness regarding the pivotal role The Inn plays in advancing medical discoveries.
What have they accomplished so far and what's next?
The the Spring of 2021, leadership and Inn staff developed our third phase of specific actions to align with each objective and this plan was approved at the June Board meeting. An online tool was implemented to aid in tracking plan progress and an accountability and communications plan was developed. #INN2025 has become the focus of The Inn's work, and will remain so for the next 5-7 years.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time, It is difficult to get honest feedback from the people we serve, It is difficult to identify actionable feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Children's Inn at NIH, Inc.
Board of directorsas of 01/18/2024
Brian Kelly
Brian Kelly
Susan Penfield
Jennie Lucca
Jill Olmstead
Lois Alperstein
Christine Grady
Prachee Devadas
Scott Vogel
Erin Darling, JD
Kamal Narang
Liz Wurster
Bill Dahut, MD
Diana Araoz-Fraser
Philipia Hillman, Ph.D.
Anton Cohen
Michelle Taylor
Jamie Gentille
Milad Bahmani
Kavita Kalatur
Scott Royal, Ph.D.
Zoe Sharp, JD
Ken Wojdon
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
No data
Equity strategies
Last updated: 09/21/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We use a vetting process to identify vendors and partners that share our commitment to race equity.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.
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