Health—General & Rehabilitative

Children's Inn at NIH, Inc.

aka The Children's Inn   |   Bethesda, MD   |  www.childrensinn.org

Mission

The Children's Inn at NIH will fully and consistently meet the needs of children and families participating in groundbreaking research at the National Institutes of Health. We will:
Respond to evolving family support needs for pediatric research and clinical care
Provide a free family-centered "Place Like Home"
Reduce the burden of illness through therapeutic, educational and recreational programming

Ruling year info

1989

CEO

Mrs. Jennie Lucca

Main address

7 West Dr

Bethesda, MD 20814 USA

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EIN

52-1638207

Cause area (NTEE code) info

Fund Raising and/or Fund Distribution (E12)

Research Institutes and/or Public Policy Analysis (G05)

Research Institutes and/or Public Policy Analysis (P05)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Families travel from around the world to the National Institutes of Health, and for many, this is their last, best hope for a cure or treatment for a life threatening illness. These families stay at The Children's Inn, while receiving treatment. In order to effectively treat a patient, particularly a child, the health-care team must care for the patient and his or her family as one. The emotional support a family gives to a sick child, as well as the mutual support among families in the same situation, is invaluable. This is much of what we seek to provide at The Inn. At The Children’s Inn, the power of childhood meets the power of research. We make childhood possible for children who’ve already lived through more than most, and who don’t have many chances to just be kids. We provide relief, support, and strength to families journeying into the unknown: the pioneers whose participation in medical trials at the NIH can change the story for children around the world.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Lodging

The Children’s Inn at NIH provides "a place like home” for pediatric patients and their families participating in clinical trials and studies at the National Institutes of Health (NIH). Children who stay at The Inn range in age from birth to 26 years old and they and their families have access to daily programmatic activities designed to meet their unique needs. The overall goal of The Inn’s programs and services is to reduce the burden of illness and provide a respite from daily medical treatments through recreational, educational and therapeutic activities.

Population(s) Served
Families

The Children’s Inn at NIH provides "a place like home” for pediatric patients and their families participating in clinical trials and studies at the National Institutes of Health (NIH). Children who stay at The Inn range in age from birth to 26 years old and they and their families have access to daily programmatic activities designed to meet their unique needs. The overall goal of The Inn’s programs and services is to reduce the burden of illness and provide a respite from daily medical treatments through recreational, educational and therapeutic activities.

Population(s) Served
Families

Where we work

Accreditations

Better Business Bureau Wise Giving Alliance 2014

Charity Navigator 2015

Awards

Affiliations & memberships

Better Business Bureau Wise Giving Alliance - Organization 2014

Board Source 2015

Combined Federal Campaign 2015

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Families,People with diseases and illnesses

Related Program

Lodging

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

In FY 2019, 1,519 families stayed at the Children's Inn.

Number of volunteers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Families,People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In FY2019, over 2,400 volunteers, 206 regularly scheduled, worked 18,095 hours, equating to 9 employees.

Emergency Fund Support Provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Families,People with diseases and illnesses

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

In FY19, we provided $16,905 of emergency funds directly to families in crisis to alleviate financial stress. This included housing, food, clothing, transportation, utilities and medical expenses.

Number of therapeutic, educational, and diversionary programs offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Families,People with diseases and illnesses

Related Program

Recreation, Education and Therapeutic Programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

In FY19, we offered more than 988 therapeutic, educational & diversionary programs to support the diverse needs of the entire family. We strive to let kids be kids in a fun, supportive environment.

States & Countries Served

This metric is no longer tracked.
Totals By Year
Population(s) Served

General/Unspecified

Related Program

Lodging

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

Since opening, families have come from all 50 states and 94 countries to help advance medical discoveries all around the world

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

The Children's Inn at NIH aims to fully and consistently meet the lodging and psychosocial support needs of children and families participating in groundbreaking research at the National Institutes of Health. Our goals are (1) to provide a warm, caring and safe environment, which enables families to participate in medical research studies that offers healing and advances medical discoveries for people worldwide and (2) to reduce the burden and heartache of childhood illness. To achieve this, we have developed a comprehensive plan that enables us to maintain the capacity to respond to the evolving support needs of families participating in pediatric research and clinical care and to provide a free family-centered "place like home" that reduces the burden of illness through therapeutic, educational and recreational programming.

In Spring 2017, embarked on a strategic planning process to develop #INN2025. In this plan, we are aiming to accelerate our impact on discovery & care by committing to 3 bold goals, which are detailed below, that will allow us to do more good for families in both established & new ways. Goal 1: Evolve to a state-of-the art living environment • Maximize availability of rooms and public spaces • Focus design on family, experience, comfort and safety • Enhance mission impact through technology Goal 2: Strengthen the integration of discovery and care • Align with NIH patient recruitment goals and evolving patterns of care to support families • Reduce challenges our families face when participating in intramural research Goal 3: Maximize community support and financial viability • Fund strategic goals • Diversify and grow base of future stakeholders • Ensure financial sustainability

The Inn is committed to excellence in all that we do. We strive to support our resident families by responding to the evolving changes in clinical care. The following resources will enable us to continue our commitment to excellence and reaching our programmatic and financial sustainability goals. They include (1) a dedicated and engaged Board of Directors, (2) a dedicated and committed leadership team that places high value in investing in the professional development of our diverse staff and volunteers, (3) strong relationships with our corporate community to leverage resources and relationships that will allow us to tap into subject matter expertise that will enable solid and innovative strategic planning, and (4) strong and well integrated relationships with our NIH clinical partners that allow us to respond effectively to clinical needs and raise awareness regarding the pivotal role The Inn plays in advancing medical discoveries.

#INN2025 will bring focus and impact in all of the areas critical to our future: • Strengthened relationships with our medical partners • A healthy financial outlook • A state-of the-art living environment • A solid and diverse foundation of future leaders, donors and volunteers

The the Spring of 2018, leadership and Inn staff developed specific actions to align with each objective and this plan was approved at the June Board meeting. An online tool was implemented in the summer of 2018 to aid in tracking plan progress and an accountability and communications plan was developed in the fall of 2018. #INN2025 has become the focus of The Inn's work, and will remain so for the next 5-7 years.

Financials

Children's Inn at NIH, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Children's Inn at NIH, Inc.

Board of directors
as of 5/21/2020
SOURCE: Self-reported by organization
Board chair

Beth Maloney

Timothy Atkin

Beth Maloney

Diane Baker

Brian Kelly

Susan Penfield

Ryan Riel

Dan Weaver, CPA

Matt Bell, PhD

Jennie Lucca

Jill Olmstead

Kristine Ribas

Lois Alperstein

Christine Grady

Porter Shifflett

Constantine Stratakis

Prachee Devadas

Scott Vogel

Erin Darling

Beth Meagher

Kamal Narang

Liz Wurster

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Keywords

children, health, charity