Diabetes Action Research and Education Foundation, Inc.

Research and education for prevention and the cure

aka Diabetes Action   |   Bethesda, MD   |  http://www.diabetesaction.org

Mission

Since 1990, the Diabetes Action Research and Education Foundation has been committed to the prevention and treatment of diabetes by funding promising research aimed at finding a cure for type 1 and type 2 diabetes and their complications. With a consistently low overhead and a small, dedicated staff, Diabetes Action has received top ratings from organizations such as Charity Watch, Charity Navigator, and the Better Business Bureau Wise Giving Alliance. Diabetes Action has provided grants to hundreds of researchers at universities and medical institutions across the United States and has made great strides in finding innovative solutions to prevent, treat, and cure diabetes.

Ruling year info

1991

President

Ms. Patricia DeVoe

Main address

6701 Democracy Blvd. Suite 300

Bethesda, MD 20827 USA

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EIN

52-1714027

NTEE code info

Specifically Named Diseases Research (H80)

Specifically Named Diseases (G80)

Public Health Program (E70)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

American Indian Diabetes Prevention Program

Funding a novel diabetes prevention program on the Cheyenne River Sioux Reservation in South Dakota

Population(s) Served
Indigenous peoples

Diabetes Action provides grants for biomedical research to cure, prevent, and treat type 1 and type 2 diabetes.

Population(s) Served
Adults

Diabetes Action provides funding for children with diabetes to attend special summer camp programs in all 50 states throughout the U.S.

Population(s) Served
Children and youth

To educate the public about research and treatment for diabetes with our public "Diabetes University" seminars and website access to our diabetes educator who answers personal questions on diabetes management plus continuous access to the latest diabetes research and news on how to live a better life with diabetes.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups

Related Program

Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Improve the lives of millions of people living with diabetes and diabetes related diseases such as Alzheimer's by funding research studies that:
(1) find improved ways of educating the public regarding nutrition and diabetes management techniques
(2) discover new treatments to ease the burden of diabetic complications such as wound healing, neuropathy, and heart disease
(3) provide the ultimate goal of a cure for diabetes

Make educational programs such as our "Diabetes University" seminars available to the general public on our website www.diabetesaction.org. Also increase direct diabetes self management help by offering individualized answers via our diabetes educator consultant. Continue to provide summaries of research studies which can influence the treatment and management of diabetes will be described for the public on our website and through public mailings.

Each year we receive more qualified applicants for research studies which are focused on the goal of increasing prevention of diabetes and improving the treatments available for the millions of people living with diabetes. We are fortunate to have dedicated medical consultants that continue to provide both medical and nutritional advice to people who access our website, and an experienced and highly qualified medical board of directors who volunteer their time to evaluate the research applications to find those with the highest probablility of success in meeting our goals. With the greatest epidemic of diabetes affecting the American Indian population, we have been able to obtain a long term partnership with the Cheyenne River Youth Project to continue our American Indian Diabetes Prevention Project that can help mitigate the epidemic of diabetes in this population.

Many of the research studies we are and have been funding have already made an impact on mitigating the effect of diabetes. Some of these examples are the studies we have funded on herbal remedies such as cinnamon and chromium that have enabled patients with Type 2 diabetes to reduce or eliminate the need for medication. A recent study we are funding has been able to show that the use of a ketogenic diet can eliminate symptoms of both nephropathy and neuropathy. Our current American Indian Diabetes Prevention Program has already improved the lives of families on the Cheyenne River Reservation where children who are learning how to eat healthier have been able to lose weight and lessen their chances of becoming diabetic.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Community meetings/Town halls, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To inform the development of new programs/projects, To strengthen relationships with the people we serve,

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board,

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

Diabetes Action Research and Education Foundation, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Diabetes Action Research and Education Foundation, Inc.

Board of directors
as of 7/30/2021
SOURCE: Self-reported by organization
Board chair

Patricia Faulkner

No affiliation

Term: 2012 - 2021

Anne Lafferty

Patricia Faulkner

Louise Koch

Jan Taylor

Catherine Hussong

Teresa Sadeghin

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 07/29/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data