Virginia Hemophilia Foundation

For all inherited bleeding disorders

aka VHF   |   Richmond, VA   |  www.vahemophilia.org

Mission

Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy, and community.

Ruling year info

1997

Principal Officer

Kelly Waters

Main address

9702 Gayton Road, Suite 277

Richmond, VA 23238 USA

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EIN

54-1183181

NTEE code info

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Summer Camp - Camp Youngblood

An excellent opportunity for kids ages 7-17 who have a bleeding disorder or their siblings. It is a perfect opportunity for kids to learn more about their disorder, interact with others with inherited bleeding disorders, and to have fun!

Population(s) Served
Adolescents
Children
Preteens

VHF’s Annual Meeting brings together the inherited bleeding disorder community to share information on a wide variety of topics, from the basics of diagnosis to the most relevant developments in treatment. It is a great opportunity for networking and support for individuals and families

Population(s) Served
Chronically ill people

First Step is designed to support families of infants and young children with hemophilia and other inherited bleeding disorders with community connection and education. This program is for families with children who have been diagnosed with an inherited bleeding disorder in the last 7 years.

Population(s) Served

Events focused specifically on adults with inherited bleeding disorders and their loved ones, which includes health and wellness retreats, social events, and educational programs.

Population(s) Served

Where we work

Our Sustainable Development Goals

SOURCE: Self-reported by organization

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

MISSION
“Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy and community.”

VISION
“Become the recognized voice and go-to resource for those impacted by a bleeding disorder.”

Financials

Virginia Hemophilia Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Virginia Hemophilia Foundation

Board of directors
as of 5/26/2021
SOURCE: Self-reported by organization
Board chair

Sarahbeth Spasojevich

Community Volunteer

Term: 2018 - 2021

Megan Arrington

Community Volunteer

Daniel Warren

Community Volunteer

Jean Parnell

Bon Secours

Monika Eiden

Community Volunteer

Michael Silva

Community Volunteer

Kathy Mortimer

Community Volunteer

Kate Breitbeil

Community Volunteer

Murai Johnson

Community Volunteer

Organizational demographics

SOURCE: Self-reported; last updated 05/25/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data