GOLD2024

DONATE LIFE AMERICA

You have the Power to Donate Life. Register Today: RegisterMe.org

aka Donate Life America   |   Richmond, VA   |  www.DonateLife.net

Mission

Donate Life America is a 501(c)3 nonprofit organization leading its national partners and Donate Life State Teams to increase the number of donated organs, eyes and tissues available to save and heal lives through transplantation while developing a culture where donation is embraced as a fundamental human responsibility. DLA manages and promotes Donate Life℠, the national brand for the cause of donation; motivates the public to register as organ, eye and tissue donors; provides education about living donation; manages the National Donate Life Registry at RegisterMe.org; and develops and executes effective multi-media campaigns to promote donation.

Ruling year info

1993

President & CEO

G. David Fleming

Main address

701 East Byrd Street 16th Floor

Richmond, VA 23219 USA

Show more contact info

Formerly known as

Coalition on Donation

EIN

54-1626038

NTEE code info

Organ and Tissue Bank (E65)

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2021.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

More than 115,000 people in the U.S. are currently waiting for a lifesaving organ transplant with more than 100,000 waiting for a kidney. . 22 people die each day because the organ they need is not available. While hundreds of thousands more are in need of lifesaving and healing tissue and cornea transplants, The majority of these lives could be saved and healed if more committed to donation by registering as an organ, eye and tissue donor at RegisterMe.org or considering living donation. The increasing gap between the supply and demand of lifesaving organs in the US has become a national health crisis. More donors and organs are necessary to end this health crisis.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

National Donate Life Registry

The National Donate Life Registry, RegisterMe.org

The National Donate Life Registry, RegisterMe.org, launched in September 2015 and managed by Donate Life America, is the first national organ, eye and tissue donor registry. The Donate Life Registry was created for ease of registration access for our donation and transplantation partners, community partners and the public. Donate Life America wanted to help increase donor registrations by making it easier to sign up. The national Donate Life Registry makes registration easy:

§ On mobile devices

§ For a multi-state call to action

§ With photo scan technology (coming soon!)

§ Through projects with national partners (e.g., Walgreens, Apple, etc.)

§ With individual campaign pages – helping personalize the message to promote donor registration


Access
The National Donate Life Registry is searched by recovery organizations in every state. The majority of state registries also have a single search process in place that allows for simultaneous donor registration search in the state registry and the National Donate Life Registry.
National Partnerships & Campaigns made possible by the National Registry
One of the lessons Donate Life America learned from its Facebook partnership in 2012 was the need for a National Registry to convert national attention and interest into donor registrations. Since its launch, the National Donate Life Registry has helped facilitate national partnerships and campaigns including: Apple, Walgreens, UPMC, MedStar, Oglivy & Mather/Instagram, Leo Burnett and The Martin Agency.

Population(s) Served
Adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

DLA manages and promotes Donate Life℠, the national brand for the cause of donation; motivates the public to register as organ, eye and tissue donors; provides education about living donation; manages the National Donate Life Registry at RegisterMe.org; and develops and executes effective multi-media campaigns to promote donation.

1) Building the Cause for Donation
38 million American adults have taken the action to register as organ, eye and tissue donors. We know the power of those voices can do more than that single action for the 115,000 Americans awaiting a lifesaving organ transplant, and the hundreds of thousands of lives that can be healed and saved through tissue and corneal transplants.

Donate Life America (DLA) is committed to building the CAUSE for donation by empowering registered donors to raise their voices as activated Donate Life champions.

2) Leading the Donate Life Community in Driving the Cause for Donation
DLA continues our commitment to convening the organ, eye and tissue donation and transplantation community in collaborative efforts to educate and motivate the public; developing key action-driven messaging, recognizing successes, eliminating the action-less story and sparking a community of networking and sharing.

3) Investing in Infrastructure
DLA is investing in the tools, systems and architecture needed to drive informed outreach, and best increase and uphold authorization. Key priorities include: extending the reach of the National Donate Life Registry, recognition of our DMV and driver’s license partners, and developing new data metrics and data visualization resources.

- DLA is the national voice in organ donation.
- DLA manages the nation’s most recognizable symbol for the  CAUSE of organ, eye and tissue donation; the Donate Life brand.
- Exposure to the Donate Life professional community (2,800 executive and PR professionals) and the Donate Life public community (more than 147 million registered donors).
- DLA has established trust, respect and credibility amongst the public and those committed to promoting donation.
- DLA leads the collaboration of hundreds of organizations devoted to promoting donation.
- DLA maintains key corporate partnerships with industry leaders such as Apple, Walgreens, Android and Google.
- DLA’s Board of Directors and Advisory Council are made up of donation and transplantation community leaders (see appendix).
- 83% of all dollars spent go directly to support DLA’s mission
(*on average based on FY12 – FY18 financials).

More than 161 million registered donors, 60% of adult population due to efforts of DLA.
Development and management of the National Donate Life Registry.
Creation and launch of the new National Donate Life Living Donor Registry.
Nearly 40,000 lifesaving organ transplants performed in 2020 as a direct result of DLA’s work and access to donated organs.
In 2020, there were 66,000 corneas donated of which 64% were authorized by a Donate Life Registry and there were more than 58,000 authorized tissue donors of which 58% were authorized by a Donate Life Registry - directly influenced by DLA’s work.

SOLUTIONS TO INVEST IN:
Modernizing and simplifying the donor registration process through the management and promotion of the new National Donate Life Registry that includes investment in technology.
Reaching diverse communities to drive organ, eye and tissue donation.
Creating engaging multi-media stories to spotlight the lifesaving and healing benefits of tissue donation and transplantation.
The development and execution of a fluid and multi-faceted public relations and marketing strategy.
Ensuring a culture of sustained innovation within the donation and transplantation community.
Educating millions on the importance of living donation.
Providing HOPE and support for all of those waiting.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection, It is difficult to identify actionable feedback

Financials

DONATE LIFE AMERICA
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

DONATE LIFE AMERICA

Board of directors
as of 02/07/2024
SOURCE: Self-reported by organization
Board chair

MD Matt Cooper

Froedtert & The Medical College of Wisconsin

Term: 2019 - 2025

George Herrera

MTF Biologics

Jennifer Milton

University Transplant Center

Alexandra Glazier

New England Donor Services

Ronda Horstman

Community Tissue Services

Danny Robinson

The Martin Agency

Deborah Maurer

UPMC

Kevin Longino

National Kidney Foundation

Marc Pearce

American Association of Tissue Banks

Jason Woody

Lions Eye Institute for Transplant & Research

David Fleming

Donate Life America

Matt Cooper

Froedtert & The Medical College of Wisconsin

Danny Robinson

The Martin Agency

Donna Dickt

NATCO

Jennifer Prinz

Donor Alliance

Teresa Ham

Advancing Sight Network

Steve Miller

Association of Organ Procurement Organizations

Jim Quirk

AltruVision

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 3/1/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

Race & ethnicity

No data

Gender identity

Transgender Identity

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 03/01/2023

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.