Parkinson Foundation of the National Capital Area Inc

aka PFNCA   |   Olney, MD   |  www.parkinsonfoundation.org

Mission

The Parkinson Foundation of the National Capital Area improves the quality of life of those impacted by Parkinson's disease, their care partners and families, and fosters a sense of community to ensure that no one battles this disease alone. PFNCA offers exercise, communication and education programs to strengthen the physical and emotional health of people impacted by Parkinson's.

Notes from the nonprofit

PFNCA is a local independent charitable organization. It is not affiliated with any of the many national organizations that focus on Parkinson's Disease.

We invite you to visit www.parkinsonfoundation.org to learn more about our Foundation and how we help people.

Ruling year info

2001

President & CEO

Jared Cohen

Main address

3570 Olney Laytonsville Rd #490 Parkinson Foundation of the National Capital Area

Olney, MD 20830 USA

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EIN

54-2048636

NTEE code info

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Wellness programs

Exercise, communications and support group programs

Population(s) Served
Seniors
Caregivers

Educational Conference

Population(s) Served
Seniors
Caregivers

Quarterly presentation streamed live to nine partner locations (below geographic area not all inclusive)

Population(s) Served
Seniors
Caregivers

Where we work

Awards

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of new clients within the past 12 months

This metric is no longer tracked.
Totals By Year
Population(s) Served

Seniors

Related Program

Wellness programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This figure includes those that attend monthly wellness programs as well as those that attend other educational/awareness programs during the year.

Number of adults engaging in regular physical activity

This metric is no longer tracked.
Totals By Year
Related Program

Wellness programs

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Parkinson Foundation of the National Capital Area (PFNCA) seeks to improve the quality of life for those facing Parkinson's. While there is no cure for Parkinson's, those diagnosed with the disease can take steps to live well. Many facing Parkinson's experience depression and isolation. Though its service to the community, PFNCA strives to have a strong programmatic network where people can go to not only get free services but also can meet and interact with others facing Parkinson's in Maryland, Virginia and Washington, D.C. Doing so, helps these individuals understand that they do not face the disease alone. PFNCA also strives to provide important face-to-face and online educational resources and to help facilitate a network of community-member led support groups. In summary, PFNCA strives to create an environment where people diagnosed with Parkinson's and carepartners have a place to turn for services, education and support.

The Parkinson Foundation of the National Capital Area (PFNCA) utilizes several strategies to accomplish its aim of providing resources for those diagnosed with Parkinson's and their carepartners. PFNCA provides wellness programming in community-based settings in Maryland, Virginia and Washington, D.C. These settings include churches, senior living communities, senior centers, fitness clubs and hospitals. In response to the coronavirus pandemic, these programs have moved to virtual online via zoom. Wellness programing provided falls into one of three categories: 1) exercise, 2) communication or vocal cord strengthening and 3) education. Evidence shows that exercise helps people with Parkinson's improve their mobility and balance. For many facing Parkinson's, exercise helps combat tremors and some neurological aspects of the disease. PFNCA provides exercise programs using several different formats including seated exercise, aerobic exercise, boxing and (indoor) rock climbing. Many facing Parkinson's experience softening of the voices due to the disease. To help fight this, PFNCA provides programs to help strengthen vocal cords. Programs include PFNCA Communications Club, which is led by a Speech Therapist, and PFNCA Choir. In the area of education, PFNCA produces an annual educational symposium – the PFNCA Symposium – in conjunction with its Medical Advisory Board. The all day program includes lectures by Movement Disorder Specialists and others that specialize in Parkinson's. PFNCA also provides a monthly Community Lecture Series in Fairfax County, Virginia and Montgomery County, Maryland. Topics include lectures by physicians and others about Parkinson's and related-topics. PFNCA also provides online educational resources.

As of fall, 2020, PFNCA provides weekly exercise and communications programs in more than 20 locations in 18 cities in Maryland, Virginia and Washington, D.C. Educational programs are provided monthly through the PFNCA Community Lecture series as well as at the annual PFNCA Symposium. Weekly and monthly programs are provided at no cost for those facing Parkinson's and their carepartners. Registration with PFNCA is required to participate in weekly and monthly programs. While there is no cost to attend programs, those who wish to do so are asked to pay an annual administrative fee of $35 each calendar year. The fee is waived for financial hardship. This fee helps subsidize some of the costs of PFNCA's program attendance system. There is a registration fee for the PFNCA Symposium, which helps cover about 25% of the per person cost to produce the program.
Additionally, PFNCA has a staff of two full time employees and three part time employees as well as more than 15 program instructors who lead the organization's efforts. PFNCA is governed by its Board of Directors, which includes several people living with Parkinson's. PFNCA's Medical Advisory Board consists of Movement Disorder Specialists and other physicians that specialize in Parkinson's.

Due to lack of funding PFNCA is unable to provide a weekly program in every county in the Washington, D.C. metropolitan area. Since many people with Parkinson's have challenges with transportation, those who participate always want a program in their town or community. PFNCA hopes to expand programming to offer at least one weekly program in each county in the Washington, D.C. metropolitan area as its capacity to raise additional funds increases. Additionally the move to zoom during the pandemic has been very popular, particular amongst those whose mobility is most challenged and who found attending in person classes difficult. Going forward, once in person classes resume, it is envisaged that there will continue to be a zoom offer to enable this to continue, and to enable those from further afield to access our high quality dedicated instructors.

Financials

Parkinson Foundation of the National Capital Area Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Parkinson Foundation of the National Capital Area Inc

Board of directors
as of 11/08/2022
SOURCE: Self-reported by organization
Board chair

Jessica Wunder

Retired

Term: 2022 - 2024

Mona Miller

Ade Odutola

Anthony Massoud

Geoffrey Abrahams

Elizabeth Becker

Debora Broderick

Pritha Ghosh

Monique Yingling

Alexis Tsonos

Myron Marlin

Paul Hagens

Jr

Karen Lucas

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/8/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Decline to state
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.