GOLD2022

ORGANIZATION FOR AUTISM RESEARCH INC

Raise Money. Fund Research. Change Lives.

aka OAR   |   Arlington, VA   |  www.researchautism.org

Mission

OAR’S mission is to apply research to the challenges of autism. We strive to use science to address the social, educational, and treatment concerns of self-advocates, parents, autism professionals, and caregivers. The mission of “applying” research to answer questions of daily concern to those living with autism defines our goals and program objectives and shapes our budget. In addition to funding research, our mission includes the requirements to: - Disseminate new and useful information to as many members of the autism community as possible, and - Direct all research and programs initiatives toward enhancing the quality of life for individuals with autism.

Ruling year info

2002

Executive Director

Mr. Michael Maloney

Main address

2111 Wilson Blvd. Suite 401

Arlington, VA 22201 USA

Show more contact info

EIN

54-2062167

NTEE code info

Autism (H84)

Autism (G84)

Alliance/Advocacy Organizations (H01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2020.
Register now

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Information Program

OAR's programs are provided at no cost to individuals and
families living with autism. They include research studies selected through an
open research competition, ad hoc studies, an Autism Information Program that
is built around the Web site and complemented by the "Life Journey through
Autism" Guide series: "A Parent's Guide to Research," "An
Educator's Guide to Autism," "An Educator's Guide to Asperger
Syndrome," and "A Guide for Transition to Adulthood."

To date, OAR has funded 52 professional applied research
pilot studies and 53 graduate-level studies totalling over $1.9 million. Each
study offers to provide new insights into different areas affecting children
and adults across the lifespan.  In
October 2009, OAR hosted the seventh annual "Applied Autism Research and
Intervention Conference." About 300 parents, educators and autism
professionals came to the two-day forum which featured presentations and
workshops by leading autism experts. OAR continues to provide the "Life
Journey through Autism" guidebook series to families, teachers and other
interested caregivers. These resources give parents, teachers and other professionals
a basic understanding of autism and how best to meet the educational needs of children
on the autism spectrum. Since September 2002, OAR has published "The
OARacle", an e-newsletter that provides research updates, autism resource
articles, and information on OAR's activities. Published monthly, the
newsletter reaches nearly 4,000 readers every month.

Population(s) Served
People with disabilities

Where we work

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time, It is difficult to get honest feedback from the people we serve

Financials

ORGANIZATION FOR AUTISM RESEARCH INC
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ORGANIZATION FOR AUTISM RESEARCH INC

Board of directors
as of 03/17/2022
SOURCE: Self-reported by organization
Board chair

James Sack

The Sack Law Firm

Michael V. Maloney

Organization for Autism Research

Gregory L. Smith

Booz, Allen, Hamilton

William Donlon

No Affiliation

James M. Sack

Sack Harris & Martin, P.C.

Lori Lapin Jones

Lori Lapin Jones, PLLC

Peter F. Gerhardt

Organization for Autism Research

Anthony Ferrera

No Affiliation

Lisa Hussman

The Lisa Higgins-Hussman Foundation

Cathy Schwallie Farmer

Marie Kish

Ernst & Young LLP

Roberto Datorre

Commonwealth Charter Academy Charter School

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/17/2022
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 03/17/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.