Home Dialyzors United

Our Day Our Way

aka Home Dialyzors United   |   East Moline, IL   |  www.homedialyzorsunited.org

Mission

To advocate, inform, and inspire an outstanding quality of life for the home dialysis community

Ruling year info

2011

President

Nichole Jefferson

VP/Treasurer

Nieltje Gedney

Main address

PO Box 53

East Moline, IL 61244 USA

Show more contact info

EIN

54-2201976

NTEE code info

Alliance/Advocacy Organizations (S01)

Kidney (G44)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Advocating and educating on the benefits of home dialysis, especially home hemo-dialysis. Home Hemo-dialysis is an under utilized modality that has shown in limited tests to be safer and prolong life expectancy as well as improve quality of life.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Going Home, Staying Home

1 day educational meeting for those people in dialysis centers or just starting dialysis that do not know about home options. Advocacy for all people on dialysis.

Population(s) Served
Adults

A one day educational meeting on modality options for dialyzors, with complimentary lunch and speaker, for persons with CKD, ESRD and dialyzor, and their families, friends or partners.

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Awards

KidneyX 2020

ASN

Affiliations & memberships

The Kidney Project, UCSF 2017

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of meetings with policymakers or candidates

This metric is no longer tracked.
Totals By Year
Related Program

Going Home, Staying Home

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of people on the organization's email list

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Work status and occupations

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of Facebook followers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people

Related Program

Going Home, Staying Home

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To educate more patients about the benefits and perks of self care that places the control back into the hands of the very person that experiences the treatments. To eliminate the misunderstandings in the kidney community that contribute to the mind set that patients are incapable of self care.

Through education from expert patients and comparison of medical outcomes between those in center and those treating at home and publishing those outcomes.

We are a small organization made up of 3 home dialyzors with a combined total of over 100 years of experience and Nephrology specialist as well as an advisory board created from the leading professionals in the Kidney Community. We understand the best practices does not include one size fits all and there must be an understanding that home treatments need the freedom to customize to the individual's need.

Have assisted in joint efforts across the kidney community to stop insurance adjusters from limiting the number of treatments a patient is able to conduct in their own home. This proposal was threatening and deadly to everyone who already practices self care in their home.

Have connected treatment researchers with the kidney community in order for the researchers to gain patient perspective on preferences and what is considered ease of use. This has been accomplished on many projects.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We have recently added a marketing expert to our board, and hired a marketing contractor to update social media and communications with members.

  • With whom is the organization sharing feedback?

    The people we serve, Our board, Our funders, Our community partners,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

Home Dialyzors United

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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Home Dialyzors United

Board of directors
as of 1/20/2021
SOURCE: Self-reported by organization
Board co-chair

Nichole Jefferson


Board co-chair

Denise Eilers

Home Dialyzors United

Term: 2010 -

Denise Eilers

Mara Bauserman

Moss Building and Design

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 09/17/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American/African
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability