Home Dialyzors United
Our Day Our Way
Mission
To advocate, inform, and inspire an outstanding quality of life for the home dialysis community
Ruling year
2011
President
Nichole Jefferson
VP/Treasurer
Nieltje Gedney
Main address
PO Box 53
East Moline, IL 61244 USA
EIN
54-2201976
NTEE code
Alliance/Advocacy Organizations (S01)
Kidney (G44)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Advocating and educating on the benefits of home dialysis, especially home hemo-dialysis. Home Hemo-dialysis is an under utilized modality that has shown in limited tests to be safer and prolong life expectancy as well as improve quality of life.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Going Home, Staying Home
1 day educational meeting for those people in dialysis centers or just starting dialysis that do not know about home options. Advocacy for all people on dialysis.
Going Home - Staying Home
A one day educational meeting on modality options for dialyzors, with complimentary lunch and speaker, for persons with CKD, ESRD and dialyzor, and their families, friends or partners.
Where we work
Awards
KidneyX 2020
ASN
Affiliations & memberships
The Kidney Project, UCSF 2017
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of meetings with policymakers or candidates
This metric is no longer tracked.Totals By Year
Related Program
Going Home, Staying Home
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of people on the organization's email list
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Work status and occupations
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of Facebook followers
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people
Related Program
Going Home, Staying Home
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To educate more patients about the benefits and perks of self care that places the control back into the hands of the very person that experiences the treatments. To eliminate the misunderstandings in the kidney community that contribute to the mind set that patients are incapable of self care.
What are the organization's key strategies for making this happen?
Through education from expert patients and comparison of medical outcomes between those in center and those treating at home and publishing those outcomes.
What are the organization's capabilities for doing this?
We are a small organization made up of 3 home dialyzors with a combined total of over 100 years of experience and Nephrology specialist as well as an advisory board created from the leading professionals in the Kidney Community. We understand the best practices does not include one size fits all and there must be an understanding that home treatments need the freedom to customize to the individual's need.
What have they accomplished so far and what's next?
Have assisted in joint efforts across the kidney community to stop insurance adjusters from limiting the number of treatments a patient is able to conduct in their own home. This proposal was threatening and deadly to everyone who already practices self care in their home.
Have connected treatment researchers with the kidney community in order for the researchers to gain patient perspective on preferences and what is considered ease of use. This has been accomplished on many projects.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
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Which of the following feedback practices does your organization routinely carry out?
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Home Dialyzors United
Board of directorsas of 10/20/2022
Nichole Jefferson
Denise Eilers
Home Dialyzors United
Term: 2010 - 2024
Denise Eilers
Mara Bauserman
Moss Building and Design
John Bayton
Director of Strategic Operaations
Dawn Edwards
Member at Large
Eric Weinhandl
Advisor, Research and Publications
Tonya Saffer
Fundraising
Curtis Warfield
Chair, Health Equities Committee
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
No data
Disability
No data
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