The ALS Association North Carolina Chapter

• Promote the interdependence between care and research in our messaging and through our actions.
• Provide, sustain, and expand premier services to the ALS community that exceeds level four on the Pathways to Excellence matrix.
• Promote and support The ALS Association’s research initiatives, encourage all ALS clinics to engage in clinical research and encourage patients to participate in clinical trials.
• Expand and strengthen our advocacy reach and influence both nationally and locally.
• Continue to cultivate and maintain a culture of philanthropy throughout NC.
• Sustain a governance environment and practices that result in: Organizational sustainability (succession planning, fundraising); An inclusive, learning organization; Accountability, transparency and best practices; Adaptability to a changing environment
• Amplify and embody the brand promise, Everything we do supports the discovery of effective treatments and a cure for ALS, through a year round awareness strategy.

Ensure people with ALS have access to effective treatments, and cases of ALS are being prevented.
Empower people with ALS to engage with the world in the way they want.
Reduce the physical, emotional, and financial burden of living with ALS.
Ensure ALL people with ALS and their caregivers receive high quality services that benefit them.
Create a culture of accountability to ensure meaningful impacts for people with ALS.

The Chapter is in an excellent position to address the goals and strategies outlined earlier for a number of reasons:
• The Chapter is a trusted and transparent organization.
• The Chapter has a mature Board committed to solid governance practices.
• The Chapter staff has a breadth of knowledge about ALS and their particular job responsibilities as well as a deep commitment to help those with ALS.
• The Chapter will continue to cultivate and steward people with ALS, current and former caregivers and others as appropriate.
• The Chapter will seek opportunities to engage the National ALS Association to advance program, fund development and leadership development goals.
• The Chapter will work closely with Affiliated, Recognized and Certified ALS Treatment Centers to advance a fully integrated community and clinic based care model.
• The Chapter will encourage and support the ALS patient community's participation in research activities.
• The Chapter will help all stakeholder groups to understand that everything we do advances the search for an effective treatment and cure for ALS.

• Medical Advisory Council provides a forum for ALS neurologists and community care providers to share best practices, which supports consistent care.
• Financial supports and partners with all six ALS clinics in NC, including tele-health programs
• Volunteer Ambassador Program to extend Chapter reach and increase ALS awareness
• Served 798 ALS patients in 2020
• Over $2.3M in financial assistance grants direct to ALS families over the past 10 years
• Successful transitioned in-person Walk to Defeat ALS (historically provided close to 50% of total revenue) to a virtual Walk Your Way model
• Hosted an ALS Awareness Special highlighting strides in ALS advocacy, assistive technology and research updates for the NC ALS community