GOLD2024

International Hyperhidrosis Society

Know Sweat

aka IHhS   |   Pipersville, PA   |  www.SweatHelp.org

Mission

Engage stakeholders to collaboratively improve hyperhidrosis understanding; conduct & foster research; build public awareness; advocate & support sufferers; educate & inspire clinicians & innovators. IHhS seeks to reduce the symptoms, impact & social stigma associated with excessive, uncontrollable sweating by improving the information, support, care & treatments available to millions of sufferers worldwide. IHhS conducts & collaborates on research, educates clinicians in optimal, up-to-date diagnosis & management practices, raises awareness about the condition's emotional, economic & life impacts & advocates for improved patient access to effective treatments. From individual sufferers & clinicians to biopharma & regulatory, IHhS creates a hyperhidrosis community of collaboration.

Ruling year info

2004

Executive Director

Lisa J Pieretti

President

Professor Dee Anna Glaser M.D.

Main address

348 Cafferty Road

Pipersville, PA 18947 USA

Show more contact info

EIN

56-2361221

NTEE code info

Alliance/Advocacy Organizations (G01)

Professional Societies & Associations (E03)

Birth Defects, Genetic Diseases Research (H20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Approximately 5% of the population worldwide, or 367 million people, suffer from excessive, uncontrollable sweating -- a medical condition called hyperhidrosis. Too many people suffer in silence, not realizing that their sweating is a treatable medical condition. Sufferers who do seek treatment do not always receive prompt diagnosis or care due to lack of physician awareness about hyperhidrosis, and the range of treatment options available. As a result, many are forced to develop compensating behaviors such as avoiding handshakes or certain social situations; or carrying a towel around with them. They report that their sweating has a profound effect on their emotions and confidence, which can negatively impact nearly every part of their lives-- social, professional, and at home. We want everyone to know that excessive sweating is a medical condition, we strive to improve the quality of life for those suffering from it, and we work to improve available treatment options as well.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

SweatSolutions

Online information and resources, such as SweatHelp.org and our online newsletter, SweatSolutions. Searchable physician database available for patients. Educational materials for patients and clinicians. Hyperhidrosis physician education symposia.

Population(s) Served
Adults
Adolescents

956-page site dedicated to educating, researching, supporting the hyperhidrosis community.

Population(s) Served
Adults
Adolescents

Where we work

Awards

Gold Triangle Award 2008

American Academy of Dermatology

Affiliations & memberships

National Organization for Rare Disorders - Member 2010

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

We strive to improve the quality of life for the nearly 5% of the population—367 million people--with hyperhidrosis by helping to reduce the anxiety and social stigma associated with excessive sweating while also providing reliable, objective treatment and symptom management information. We want hyperhidrosis sufferers to recognize that their sweating is a medical condition so that they can discuss it with a knowledgeable healthcare provider. We also want to increase the number of healthcare providers who are aware of hyperhidrosis as a medical condition, and understand the most current treatment options. Improving the number and effectiveness of available treatment options and ensuring that treatments are affordable and accessible are other key goals. Finally, we strive to raise awareness of the emotional, practical, and economic impacts of hyperhidrosis so that, perhaps, these pervasive, long-standing secondary effects of the medical condition can be mitigated.

Our strategies include increasing public awareness about hyperhidrosis, educating healthcare providers about hyperhidrosis diagnosis and management, advocating for improved patient access to effective treatments, and promoting hyperhidrosis research among healthcare providers, scientists, and patients alike. Communicating reliable, up-to-date, useful information in an approachable manner via a variety of mediums – from low- to high-tech - is critical to helping us to meet our goals.

We increase public understanding of hyperhidrosis via our continuously evolving, expertly written and reviewed website. This website is visited by millions globally, and includes: (1) real patient stories and a powerful testimonial video, (2) a database of physicians familiar with hyperhidrosis, (3) in-depth insurance tools for patients and their physicians, and (4) descriptions of treatment options and sweat-managing products that can alleviate the impact of excessive sweating. We dispatch news blogs to over 50,000 subscribers, and answer emails to provide specific information and support. Our social media accounts enable sufferers from all over the world to connect. We facilitate physician education by holding medical education seminars and housing a plethora of on-line educational resources. We actively promote hyperhidrosis research by disseminating information about clinical trials, and keeping an up-to-date library of peer-reviewed, evidence-based research papers.

Since 2003, we have developed: a content-rich website for both patients and physicians, another website dedicated entirely to teens with hyperhidrosis, a news blog with 50,000 subscribers, a searchable physician database, accredited medical education seminars attended by hundreds of healthcare providers, publications in peer-reviewed scientific journals, a “Know Sweat In School" program that brought information on excessive sweating to 10,000 school children and their school nurses, a powerful hyperhidrosis video filled with patient testimonials, and social media platforms so patients can make their voices heard. But there is more work to be done. We must increase public and healthcare provider awareness of hyperhidrosis and its serious quality-of-life impacts. We must also motivate medical researchers and industry professionals to develop more options for treatment. We aim to improve insurance coverage of treatments, and continue to reduce the stigma associated with this condition.

Financials

International Hyperhidrosis Society
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Operations

The people, governance practices, and partners that make the organization tick.

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International Hyperhidrosis Society

Board of directors
as of 02/07/2024
SOURCE: Self-reported by organization
Board co-chair

Dr Dee Anna Glaser

Saint Louis University School of Medicine

Term: 2008 -


Board co-chair

Dr David Pariser

Eastern Virginia School of Medicine

Term: 2008 -

Nowell Solish

University of Toronto

Dee Anna Glaser

Saint Louis University School of Medicine

David M. Pariser

Eastern Virginia School of Medicine

Adelaide Hebert

University of Texas at Houston

Ada Regina Almeida Trindade

No affiliation

Lisa J Pieretti

International Hyperhidrosis Society

Organizational demographics

SOURCE: Self-reported; last updated 12/2/2020

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Disability status
Person with a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data