Pinky Swear Foundation
Helping kids with cancer and their families.
Learn how to support this organization
Programs and results
What we aim to solve
A childhood cancer diagnosis can devastate any family, regardless of income. Among families with a child with cancer, 84% report facing financial hardship, and one in 11 will file for bankruptcy. Additionally, family members of the sick child face a drastically increased risk of depression, anxiety, PTSD, and stress-related changes to their physical health.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
All-Star Fund
The Pinky Swear Foundation uses the phrase “All-Star” to describe every child battling cancer they support. The All-Star Fund provides financial support for families after the first six months of diagnosis or relapse to ensure safe and stable housing, reliable transportation to treatment and care, sufficient food and household needs.
Orange Envelope for Newly Diagnosed or Recently Relapsed Childhood Cancer Patients
The Orange Envelope Program offers financial support to families within six months of a child's diagnosis. The program provides timely assistance, including a $200 gift card, heartfelt letters of encouragement, and a warm welcome to the Pinky Swear community.
Pinky Swear Pantries
It’s hard to leave your child’s side when they’re hospitalized, not to mention that lengthy stays can be challenging for families in many ways. Pinky Swear Pantries are on-site hospital food pantries so families can stay near their sick child. We currently stock food at four pantries including: M Health Fairview Masonic Children's Hospital, Blank Children's Hospital, Levine Children's Hospital, and Children's Minnesota.
Where we work
Awards
Notable Nonprofit Board Leader, Bruce O'Brien 2022
Twin Cities Business
Melrose Twin Cities Principled Leadership Award, Erica N. Campbell 2022
St. Thomas’ Melrose and The Toro Company Center for Principled Leadership
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of families served
This metric is no longer tracked.Totals By Year
Population(s) Served
Families, People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number represents families served through our Orange Envelope Program, All Star Fund, Pinky Swear Pantries, and other family experiences.
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Families, People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Number represents total dollar amount of grants distributed through our All-Star Fund and Orange Envelope programs to families. This does not include student scholarships or All-Star Experiences.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Pinky Swear Foundations mission is to help kids with cancer and their families with financial and emotional support. Together, we can alleviate the financial burdens families face during a childhood cancer diagnosis. By doing so, they can focus on what matters most the health of their child.
As one parent recently told us, pediatric cancer is a treacherous journey, and most dont realize the tremendous hit families take to their finances in an attempt to get their child cancer-free.
What are the organization's key strategies for making this happen?
Pinky Swear Foundation, through the generosity of our partners, supports childhood cancer patients and their families who are facing financial and emotional burdens resulting from a cancer diagnosis and medical treatment. Pinky Swear Foundation provides support to families in four primary ways:
1. Orange Envelope Program - Financial support to families facing the difficult journey of a childhood cancer diagnosis or relapse. Within six months of a child's diagnosis, the program provides timely assistance.
The envelope includes:
- A letter from Pinky Swear Foundation letting them know they are not alone and introducing them to our other family support programs;
- A Visa gift card to be used for gas, groceries, or a local restaurant to help with expenses that increase as the family travels to doctor appointments; and
- Letters of Encouragement filled with bright colors and uplifting words from volunteers.
2. All-Star Fund Program Pinky Swear Foundation provides financial support to families for critical basic needs. Most requests for assistance are submitted through hospital social workers, however online requests directly from families are also accepted. The All-Star Fund program distributes bill payments directly to lenders and gift cards to families. Pinky Swear Foundation All-Star Fund grants assist with critical needs including:
- Stable housing: Rent/mortgage payments, utilities
- Reliable transportation: Auto expenses, gas cards
- Nutritious food: Grocery gift cards
- Unique needs: Travel to vital medical treatments, etc.
3. Pinky Swear Pantries Pinky Swear Foundation collects food donations for a Pinky Swear Pantry at four hospitals - M Health Fairview Masonic Children's Hospital Minneapolis, MN; Children's Minnesota in Minneapolis, MN; Levine Children's Hospital in Charlotte, NC; and Blank Children's Hospital in Des Moines, IA. These pantries provide families free access to healthy meals and snacks so parents can stay close to their child during treatment and save money on food costs.
What are the organization's capabilities for doing this?
Founded in 2003, PSF is led by a 19-person Board of Directors, who represent a variety of backgrounds and professions, some of whom have experienced childhood cancer directly or in their families. Our Executive Director leads our team of 14 full and part-time staff.
Pinky Swear Foundation maintains close partnerships with four hospitals throughout Minnesota, North Carolina, and Iowa, as well as hospitals in other locations, such as North Dakota, New York, Wisconsin, and more. Our VP of Programs and team work closely with hospital social workers to ensure that Pinky Swear Foundation can reach families facing a childhood cancer diagnosis, and that families requests for support are vetted before Pinky Swear approval.
Pinky Swear Foundation operates an online application portal for families and hospital social workers. This portal streamlines the application and approval process and increases efficiencies for Pinky Swear Foundation staff. This application is also now translated into many different languages to ensure families from all backgrounds can understand and properly apply for support.
What have they accomplished so far and what's next?
Since 2003, PSF has steadily grown from a small nonprofit serving families in the Twin Cities metro area of Minnesota, to a $4.5 million+ organization serving families in all 50 states.
We a thrilled to share that in 2023 we served more families than ever before. Last year we:
Grew our Orange Envelope program more than 80%, sending packages to 2,294 newly diagnosed families;
Distributed 922 All-Star Fund grants for financial assistance;
Provided 6,500 individuals access to a Pinky Swear Pantry in the hospital where their child received care.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals, We use feedback to show impact to donors
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive
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What challenges does the organization face when collecting feedback?
It is difficult to identify actionable feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Pinky Swear Foundation
Board of directorsas of 02/26/2024
Karla Vehrs
Ballard Spahr
Term: 2024 - 2025
Jeff Wenngatz
Onward Investors
Term: 2024 - 2025
Ayman Ahmed
Geoff Bartsh
Lisa Burke
Peter Carlson
Michael Castagnetto
Brad Joseph
Manuela Hill-Muoz
Rick Kes
Fed Kongnso
Julie Moss
Peter Moyer
Andy Nessler
Ryan Ruud
Karla Vehrs
Jeff Wenngatz
John Wernz
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
Equity strategies
Last updated: 02/26/2024GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We disaggregate data by demographics, including race, in every policy and program measured.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.