Alex's Lemonade Stand Foundation

Fighting childhood cancer, one cup at a time.

aka ALSF, Alex's Lemonade Stand, Alex's Lemonade, Alex's Lemonade Stand Foundation For Childhood Cancer   |   Wynnewood, PA   |  www.alexslemonade.org

Mission

To change the lives of children with cancer through funding impactful research, raising awareness, supporting families, and empowering everyone to help cure childhood cancer.

Ruling year info

2005

Co-Executive Director

Jay Scott

Co-Executive Director

Liz Scott

Main address

333 E. Lancaster Ave. #414

Wynnewood, PA 19096 USA

Show more contact info

EIN

56-2496146

NTEE code info

Cancer (G30)

Philanthropy / Charity / Voluntarism Promotion (General) (T50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

In the United States, childhood cancer is the leading cause of death by disease in children under the age of 19. Every day, 43 kids are diagnosed with cancer in the U.S. Recognizing the importance of collaboration in order to increase impact, ALSF partners with other foundations and organizations seeking to make a profound difference. We know that, together, we can catalyze research and get to cures for all kids, faster. Less than 4-percent of the federal cancer research budget is allocated to childhood cancers – which includes dozens of types and subtypes. As such, the need for more research funding is dire, especially for hard-to-treat childhood cancers. Since 2005, ALSF has worked to fill this critical, unmet need by funding the most promising research across the U.S. and Canada.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Childhood Cancer Research

To fund the top childhood cancer research projects.  One area that ALSF especially likes is seed funding so that our money can be leveraged into larger funding using the preliminary data generated from our funding.  Another area of interest is to fund infrastructure in clinical trial programs so that the sickest children can get the treatments they need quicker.

Population(s) Served
Adults

Alex's Lemonade Stand Foundation provides resources for families through our Super Sibs and Travel for Care Programs.

SuperSibs is dedicated to comforting, encouraging, and empowering siblings during their family’s battle against childhood cancer, so these children and teens can face the future with courage and hope.

Alex’s Lemonade Stand Travel For Care Program recognizes the financial burden that families often encounter, and offers assistance to families who face the need to travel for childhood cancer treatment. Since 2008, ALSF has provided over 530 flights, 3,400 nights of lodging and 18,000 gas cards.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Related Program

Childhood Cancer Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of children enrolled in ALSF's SuperSibs program

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Family Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Number of families receiving travel assistance

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth

Related Program

Family Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Alex's Lemonade Stand Foundation's ultimate goal is to find cures for all kids with cancer. In the interim, the Foundation is working to find better treatments to lessen the life-long side effects of current therapies. In addition to working toward cures, the Foundation also works to ease the journey of childhood cancer for families by providing resources including a Travel Fund to help get children to the treatments they need, a free treatment journal to help parents stay organized and keep track of important information, and the SuperSibs powered by Alex's Lemonade Stand Foundation program dedicated to comforting, encouraging, and empowering siblings during their family's battle against childhood cancer.

With the guidance of our expert Scientific Advisory Board, the contributions of supporters are helping to fund grants awarded to researchers who have submitted promising projects searching for better treatments and cures for childhood cancers. The Foundation is dedicated to filling critical gaps, speeding up the process of not only promising research, but getting that research into clinical trial and helping children as quickly as possible.

With a growing staff, led by the passionate parents of founder Alexandra "Alex" Scott (1996-2004), the Foundation is well on its way toward finding cures for all kids with cancer. With thousands of supporters across the country contributing to the cause annually, corporate partners dedicated to the mission and the best and brightest researchers, cures are on the horizon.

To date, research funded by the Foundation has made important strides in the fight against childhood cancer. Among the progress seen, a clinical trial for children harboring a specific cancer causing gene, anaplastic lymphoma kinase (ALK). The trial was testing the effectiveness of a drug crizotinib that was already being used to treat lung cancer in adults and specifically looks to disrupt this gene. For 7 out of 8 kids who were enrolled in the trial, this is exactly what happened – there is no trace of the cancer. Better yet, crizotinib is a pill as opposed to IV chemotherapy, which minimal toxicities associated with it in spite of high dosages, and within days of taking it – it helped reduce fevers, chills and pains that some of the kids were previously experiencing.

Additionally, Matthias Gromeier, MD, of Duke Medical Center, was among the early research grantees from Alex's Lemonade Stand Foundation. His proposal to use the poliovirus to kill cancer cells, specifically pediatric glioblastoma - an aggressive form of brain cancer, earned him an ALSF Innovation Grant in 2006. Now, early results from a clinical trial at Duke have found that a modified version of the poliovirus is proving effective in treating patients with glioblastoma. ALSF funds supported research that contributed to making this clinical trial possible.

Financials

Alex's Lemonade Stand Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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Alex's Lemonade Stand Foundation

Board of directors
as of 12/27/2021
SOURCE: Self-reported by organization
Board chair

Mary Austen

Tierney

Term: 2015 -

Stephen Cohn

Sage Financial

Jocelyn Hillman

Parent Advocate

Billy King

Brooklyn Nets

Jay Scott

Alex's Lemonade Stand Foundation

Mary Stengel Austen

Tierney Communications

Liz Scott

Alex's Lemonade Stand Foundation

Jeff Benjamin

Vetri Restaurants

Erin Flynn-Blair

Jewish Vocational Service Boston

Jeffrey Kaliner

Power Home Remodeling Group

Marc Bruno

ARAMARK Sports & Entertainment

Joel Frank

Lamb McErlane, PC

Giana Jackson

TIAA-CREF

Marc Summers

Television Host

Michael George

QVC

Jon Hitchcock

KYW-TV, WPSG-TV

Tim Lung

KPMG

Meena Mansharamani

Intend Growth, LLC

Jeff Snyder

Inspira Marketing Group

Eric Lane

Cigna

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 4/20/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

No data