PLATINUM2024

GLOBAL RESOURCE FOR ADVANCING CANCER EDUCATION

Education is Medicine

aka GRACE   |   Seattle, WA   |  www.cancerGRACE.org

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Mission

The Global Resource for Advancing Cancer Education (GRACE) provides expert-mediated information on current and emerging cancer management options in order to empower patients, caregivers, and health professionals to become direct partners in cancer care.

Ruling year info

2008

President & Founder

Dr. Howard "Jack" West MD

Executive Director

Ms. Amy Bickleman

Main address

4616 25th Avenue NE #300

Seattle, WA 98105 USA

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EIN

56-2676328

NTEE code info

Cancer (G30)

Lung (G45)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2022, 2021 and 2019.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

There are already many websites and other resources that provide some information for patients from health care professionals, but we find that they often provide very bland, nonspecific information that says little beyond extreme generalities (i.e., “Chemotherapy is the main treatment for advanced lung cancer. Your doctor may talk with you about this approach.”). And while there are often discussions of specific treatments on patient and caregiver-moderated websites and other resources, the quality of the information is variable and the potential for misinformation to be perpetuated by people not qualified to discuss medical details is a significant problem. Proving the principle that the barriers between information for physicians and education for patients can be overcome, GRACE provides a greater depth of formats for providing educational materials to members.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Education

GRACE has a long history of producing educational programs for cancer patients and their caregivers.

LUNG CANCER
- Lung Cancer Video Library - English and Spanish
- News Direct from ASCO
- Targeted Therapies in Lung Cancer Patient Forum
- Immunotherapy in Lung Cancer Patient Forum
- Lung Cancer Webinar Series Presented in Mandarin (January 2018)
- Not Your Father's Squamous Lung Cancer

BLOOD CANCERS
Blood Cancers Video Library - English and Spanish
News Direct from ASH
Not Your Father's CLL Patient Forum

HEAD & NECK CANCERS
News Direct from ASCO
Head & Neck Cancer Basics
HPV-Related Head & Neck Cancer Webinar Series

More programs are added yearly.

Population(s) Served
Adults
People with diseases and illnesses

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of requests for advocate products or information, including downloads or page views of online material

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Caregivers

Related Program

Patient Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

GRACE's website receives over a million visitors each year seeking and downloading educational content to help them navigate their/their loved ones cancer journey.

Average online donation

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Caregivers

Related Program

Patient Education

Type of Metric

Other - describing something else

Direction of Success

Increasing

Context Notes

Not including grants funded to GRACE, our online donations are made possible by the generosity of support from the community.

Total dollars received in contributions

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Caregivers

Related Program

Patient Education

Type of Metric

Other - describing something else

Direction of Success

Holding steady

Number of online attendees to planned events

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers, People with diseases and illnesses

Related Program

Patient Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

2 live patient events are held each year with an in-person audience and a livestream audience. Our online live audience typically exceeds 1,000 attendees. Recorded content is later published online.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, Caregivers

Related Program

Patient Education

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of instances of funding established to formally monitor or evaluate policies

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, Caregivers

Related Program

Patient Education

Type of Metric

Input - describing resources we use

Direction of Success

Holding steady

Context Notes

Our organization received funding for programs.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

GRACE is a nonprofit organization that was developed as a means of improving the overall medical care for cancer patients by democratizing cutting edge information on optimal cancer management and providing it directly to patients. We recognized that while there is an overwhelming amount of new information available to physicians, actually more than they could integrate, patients and their families often have a deep interest in their own care and often have the time and motivation to ensure that they are receiving the best treatment possible.

Even the best oncologist can’t be an expert in every type of cancer. GRACE doesn't intend to replace your doctors - our faculty are experts in their own specialties, and concentrate on a narrow focus of a particular cancer. GRACE brings faculty and our community together to learn from each other, and to make sure important information is shared with people who are in need.

GRACE's goal is for you and everyone who needs it to have free access to the latest information from experts on a particular cancer or aspect of oncology care. In addition to information about different cancer types, GRACE provides expertise on topics that cut across cancer types, like radiation oncology, oncology social work, and immunotherapy.

GRACE produces patient education content in a variety of formats to reach the broadest audience possible: video, article, blog, interactive forum and podcast. We work with the most highly regarded oncologists, experts in their fields, to bring the most current and emerging treatment information available to patients. We update our content as new information becomes available, publishing educational materials throughout the year and often re-publishing still relevant content to ensure that patients just visiting our platforms receive the educational content.

GRACE has a very strong infrastructure, including systems and technology. Our website is robust and our large faculty of world-class doctors are motivated and willing to support our programs and provide ongoing updates to the information available on cancerGRACE.org.

Our innovative and intuitive use of social media, and our ability to reach patients on their terms ensures we are fulfilling our mission. We keep up with the new as well as established avenues to reach our community.

We also keep a strong infrastructure through our Board and Staff - we work together to continue to make sure all the educational material we produce is on point and high quality, and easy to obtain and understand.

GRACE celebrated its 10 year anniversary in 2018, and celebrated a reportable continued increase in viewership and website visitors since our organization was formed. We know that we have reached over 10 million patients who have visited our website over the past decade, and that those numbers will continue to increase as we continue to add to our content, expand our cancer types covered in our content, and continue to use technology to reach more patients using more platform types, meeting patients where they are.

GRACE began as a blog-style website, engaging lung cancer patients and connecting them to experts. We have grown to include a wide variety of cancer types and platforms and educating patients through in-person events, livestreams, and online video/audio/written formats. We have come a very long way in a relatively short time period with a staff of 2 full time and 3 part time employees.

We are very proud of our employee retention as well, with 3 of our 5 employees having been with the organization almost since its inception and the newest 2 employees having taken GRACE to the next level in terms of organizational leadership and program management.

GRACE is positioned to continue to grow its content, expand beyond the borders of the United States, and educate as many cancer patients as possible with a strong infrastructure supporting great organizational strides to come.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection

Financials

GLOBAL RESOURCE FOR ADVANCING CANCER EDUCATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

GLOBAL RESOURCE FOR ADVANCING CANCER EDUCATION

Board of directors
as of 01/22/2024
SOURCE: Self-reported by organization
Board chair

Dr. Nancy Sladicka

Chief Strategy Officer, Nucleus Global

Term: 2023 - 2025

Howard "Jack" West

Summit Therapeutics

Nancy Sladicka

Nucleus Global

Jared Weiss

University of North Carolina School of Medicine

James Bao

Adjuvantz

Laya Dogmetchi

Ulich & Terry, LLP

David Gray

Self-employed

Matthew Tan

University of British Columbia

Luis Raez

Memorial Cancer Institute, and Clinical Associate Professor of Medicine at Florida International University

Tim Godfrey

Founder, Director of Finance and Operations, FUSE IQ

Liz DeAngelis

MediaMonks

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 1/5/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

No data

Equity strategies

Last updated: 02/26/2021

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.