Craniosynostosis & Parents Support
Mission
Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY. We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly. Our goals include raising awareness with the general public, doctors, health care organizations, parent's and loved ones. Offering support and information to families facing a diagnosis of these conditions so that they can prepare themselves and be an informed advocate for their child. Most importantly so that no family feels alone during this uncertain time.
Ruling year
2000
Principal Officer
Mrs. Amy Galm
Main address
114 N Elm Street
Massapequa, NY 11758
EIN
57-1091027
NTEE code
Fund Raising and/or Fund Distribution (E12)
Research Institutes and/or Public Policy Analysis (B05)
IRS filing requirement
This organization is required to file an IRS Form 990-N.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Craniosynostosis and Positional Plagiocephaly Support's programs include, preparing care packages for families to have during their hospital stay, these packages include many items that the parent and child need during their hospital recovery. We have a sponsor a family program where one member is matched up with a new member or a member preparing for surgery and they are there to help the new member with any questions they have or any one on one support they need. We have our awareness project to pass out information materials on craniosynostosis and positional plagiocephaly to child issue conferences, baby fairs and health care organizations to get craniosynostosis and positional plagiocephaly diagnosed earlier then it is being diagnosed now.
Where we work
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Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Craniosynostosis & Parents Support
Board of directorsas of 06/05/2016
Amy Galm
no affiliation
Amy Galm
no affiliation
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