GOLD2024

The ALS Association of Georgia

Serving people & their families living with ALS in Georgia.

aka The ALS Association of Georgia   |   Sandy Springs, GA   |  alsgeorgia.org

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Mission

ALS United of Georgia provides comprehensive support, resources, and advocates for individuals and families affected by Amyotrophic Lateral Sclerosis (ALS). Our mission is to enhance the quality of life for those living with ALS by fostering a compassionate and empowering community, advancing research, and delivering vital services that address the unique needs of individuals facing this devastating disease.

Ruling year info

2024

Executive Director

Ms. Sarah Embro

Main address

227 Sandy Springs Place Suite D, #304

Sandy Springs, GA 30328 USA

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EIN

58-1943490

NTEE code info

Single Organization Support (E11)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2023, 2022 and 2021.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The ALS Association of Georgia seeks to serve all people living with ALS in the state of Georgia and to assist their loved ones in caring for them. The Georgia Chapter strives to impact the ALS community in all geographic areas of Georgia by delivering consistent programs and services. Through access to exemplary clinical care, support groups, education and awareness, home care grants, and care coordination and resources to empower people living with ALS an optimal life.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Care Grant Program

The financial hardship that families incur as the result of an ALS diagnosis can impact their quality of life tremendously. For those that may need additional help, The Kostiuk ALS Care Grant Program strives to provide some relief. This program is a reimbursement program that assists families with expenses that are not traditionally covered by private insurances, Medicaid or Medicare. It will cover expenses related to home care assistance (respite), travel costs for attendance to and from the ALS Clinics, home modifications, auto modifications and communication devices. Recipients may apply for and receive two grants per year in the amount of $1,000 per grant request. Grants are awarded twice a year on a first come first serve basis and will be based on availability of funds.

Population(s) Served
Adults

The Support Group Program provides persons with ALS and their families the opportunity to connect with others in the community who share similar challenges and needs. The groups are designed to provide emotional and psychosocial support as well as resources and education. Knowing what questions to ask and where to look for resources is vital. ALS United of Georgia currently conducts monthly support groups that meet the needs of 159 counties in the state of Georgia. These groups are facilitated by professionals and community partners to ensure maximum results. Because the needs of caregivers and children can be very sensitive, the association has developed specific groups to address those needs.

Population(s) Served
Adults

As the disease progresses, individuals will experience a decline in functioning as it relates to mobility and speech. These challenges can impact independence and quality of life. In some situations, specific medical and communication devices are required but not covered by private insurance, Medicaid or Medicare. The Equipment Loaner Program provides such equipment to persons with ALS at no cost. This program works diligently to obtain, through grant funding or private donations, such items that can ensure increased independence. The organization, in partnership with community providers, collaborate on the maintenance and storage of all equipment.

Population(s) Served
Adults

90% of the current ALS Community in Georgia continues to remain in their home throughout the disease process. This becomes increasingly difficult because they will require total ADL care from additional providers. This service is not covered by Medicare or private insurance companies. The Sally Panfel In-Home Care and Respite Program provides individuals living with ALS with up to 18 hours of in-home care per week. The care is provided by licensed community partners of ALS United of Georgia and eligibility is based on a needs assessment.

Population(s) Served
Adults

Access to quality care and research can be challenging for those impacted by ALS. As mobility declines and the need for assistive technology increase, persons with ALS find it difficult to attend needed appointments via traditional modes of transportation. Medicare and Medicaid are very limited regarding the coverage of non-emergency transportation. The Paul B. Williams ALS Transportation Program is focused on addressing transportation needs via: non-emergency transportation, van rentals, vehicle modification and vouchers.

Population(s) Served
Adults

Information is vital to persons with ALS. As the body declines it is very important to be presented with realistic expectations regarding the disease trajectory. Skilled Care Service Coordinators are available to provide ongoing consultations through our Care Services Consultation Program. The ongoing consultations provide the opportunity to assess, educate and empower individuals and their families to make informed decisions. The coordinators are also very instrumental in identifying and making community referrals. ALS United of Georgia is the connection between what is needed and what is available for persons with ALS, their families and caregivers.

Population(s) Served
Adults

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The ALS Association of Georgia has several goals over the next three years (2018-2021): -work to increase access to multi-disciplinary care so that ever person with ALS in our Chapter territory has the ability to attend an ALS clinic within a drive-time of two (2) hours of their home. -work to replicate chapter programs in the underserved/rural markets so that those living with ALS and their families have access to consistent care, treatment and services. -lead a statewide advocacy effort that highlights the impact of ALS beyond the individual patient. Emphasis on both public and private responsibility for people living with ALS will create collaboration and opportunity for advocating for health policy intiatives that enhance the quality of life for families living with ALS.

We are embarking on a new three (3) year strategic plan that outlines are objectives and strategies, creating a timeline for completion. Interested individuals who would like to read more detail, may contact our offices at 404-636-9909.

We have an office based in metro-Atlanta with a staff of nine (9) who are committed to executing our strategic plan. Our Board of Directors has a vision that guides are growth and impact in Georgia to those living with ALS.

In 2017, The ALS Association of Georgia has been able: -to expand its financial support to a third ALS clinic in Macon (Atlanta, Augusta, & Macon), -launch The Sally Panfel Respite & In-Home Care program to provide in-home care assistance to those who need additional care-giving in the home, -launch The Paul B. Williams Transportation program to provide non-emergency transportation to medical appointments for those living with ALS and/or handicap-accessible van rentals, -served 633 individuals in Georgia living with ALS in 2017.

Financials

The ALS Association of Georgia
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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The ALS Association of Georgia

Board of directors
as of 05/01/2024
SOURCE: Self-reported by organization
Board chair

Mr. Peter Gleichman

Gleichman Law Firm, LLC

Term: 2022 - 2025

Heather Larson

Lockton Companies

Christine McKenzie

Intercontinental Exchange, Inc.

Jordan Myers

Alston & Bird LLP

Mitzi Hill

Taylor English Duma, LLP

Hillary Gardner

Credigy Solutions Inc.

Kisha Wesley

Sevita Health

Patrick Willis

Southern Power Company

William (Bill) Nordmark, IV

Enlace Health

Joshua Bosin

Holland & Knight, LLP

Ned Douthat

Sage Mountain Advisors

Jacob Panfel

Lexis Nexis Risk Solutions

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/9/2021

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data