PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC

The Pediatric Brain Tumor Foundation works to eliminate the challenges of childhood brain tumors. As the largest patient advocacy funder of pediatric brain tumor research, our mission is to Care. Cure. Thrive.

To accomplish our mission, we aim to:
- Fund research to find the cause of and cure for pediatric brain tumors
- Increase public awareness about the severity and prevalence of the deadliest form of childhood cancer
- Aid in the early detection and treatment of this disease
- Provide educational, financial and emotional support to patients and families
- Advance the adoption of survivorship care plans to improve quality of life

The Pediatric Brain Tumor Foundation's vision is a world without childhood brain tumors. Priority focus areas and objectives for our current strategic plan include:

1. Improve patient family-centered outcomes and experience
• Serve as first point of contact for families with a new pediatric brain tumor diagnosis
• Advance adoption of survivorship care plans to improve quality of life
• Reduce racial, social and economic disparities in care outcomes for pediatric brain tumor patients
• Reduce total diagnostic interval in the U.S. for children with brain tumors

2. Accelerate and Expand "Pediatric-first" Brain Tumor Research
• Drive basic science exploration
• Accelerate clinical research outcomes
• Foster collaboration across the international brain tumor and childhood cancer research communities
• Develop early career investigators
• Provide infrastructure and core resource grants that accelerate the pace of pediatric brain tumor research programs

3. Mobilize and unite the community for change
• Inspire the cancer community to engage in the mission through fundraising and advocacy
• Engage patient families, care partners and researchers to inform and shape programs and priorities
• Collaborate with care centers and engage other organizations to amplify efforts

A leader in the brain tumor and childhood cancer communities, the Pediatric Brain Tumor Foundation's mission of Care. Cure. Thrive. reflects our commitment to curing all pediatric brain tumors and transforming how children and their families are cared for. Since 1991, we have provided strategic leadership and nearly $50million in funding to accelerate the number of targeted therapies for children battling brain tumors today, while equipping families with the patient-family education, financial relief, and emotional support they need to navigate their child's journey. The Foundation employs over 20 full-time employees across the United States. We are supported in our efforts through volunteers, including our Board of Directors, Research Advisory Network, Family Support Council and volunteer leaders, ambassadors and committees for our signature and community fundraising programs. We've expanded our collaboration with similar organizations because we believe a world without childhood brain tumors is possible when we work together to put kids first.

Informed by a community needs assessment and landscape analysis, the Pediatric Brain Tumor Foundation developed its latest strategic plan in 2021. The Foundation uses Cascade Strategy Software to continually measure progress and ensure alignment, with teams evaluating and reporting on progress quarterly. Using Cascade as a strategic tool, the staff have aligned their functions and roles to the strategic plan in order to meet mission specific objectives. The Board is fully engaged and helping to support both existing and new initiatives to help achieve goals and objectives.