SOUTHEASTERN BRAIN TUMOR FOUNDATION INC
Support * Hope * Courage
Mission
Educate, inform, and provide support services to instill HOPE in Brain Tumor patients. To raise funds for research at top research facilities.
Ruling year
1995
Board President
Mrs. Kelly Turner
Main address
5400 Glenridge Drive NE #422471
Atlanta, GA 30342 USA
EIN
58-2166144
NTEE code
Cancer (G30)
IRS filing requirement
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Communication
Programs and results
What we aim to solve
At Southeastern Brain Tumor Foundation, our primary mission is to improve the quality of life for brain tumor patients and their families. We also aim to fund research for the treatment and cure of this condition.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Support Group
Support Groups are hosted for brain tumor patients, families, and caregivers. Monthly and bi-weekly meetings held in person and via online platforms.
Research Grants
Research Grants are funded and awarded to high-level research and programs working towards better treatment and a cure for brain tumors.
Scholarships
Scholarships are awarded to those affected by a brain tumor diagnosis seeking post-secondary education.
Patient Initatives
Patient Initiatives lighten the load for those with a primary brain tumor diagnosis and are currently undergoing treatment.
Where we work
Our results
How does this organization measure their results? It's a hard question but an important one.
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Chronically ill people, Terminally ill people, Researchers, Students
Related Program
Research Grants
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total dollar amount of scholarship awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
Young adults, Adolescents, Students
Related Program
Scholarships
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This program was founded in 2019
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The directives from our Board strive to ensure that all decisions result in the maximum allocation of funds for brain tumor research grants and support services. While we do not offer direct financial support to individual patients, we do support patient programs, educational scholarships and support groups.
What are the organization's key strategies for making this happen?
1. Research towards improved treatments and a cure for brain tumors is funded with awarded grants to clinicians
2. Higher education scholarships are awarded to applicants who have been impacted by a brain tumor
3. Support groups are held to offer resources to patients and their caregivers.
4. Patient initiatives are funded to lighten the load for those currently undergoing treatment for a primary brain tumor
What are the organization's capabilities for doing this?
Two signature annual fundraising events are hosted, the Race for Research and the Muddy Duck Dash, by the Foundation. In addition, fundraising occurs through the year from individual donors, campaigns and sponsors. Our all-volunteer board guides the programs and activities needed to achieve the Foundation's goals.
What have they accomplished so far and what's next?
Since its inception, the Foundation has:
-raised over $2.9 million dollars towards research
-funded 58 grants
-awarded over 32 scholarships
-increased the number of support groups hosted and the area they serve
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We act on the feedback we receive, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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SOUTHEASTERN BRAIN TUMOR FOUNDATION INC
Board of directorsas of 06/28/2023
Kelly Turner
Farnaz Arabshahi
Craig Castellino
Chris Deibert
Erin Dunbar
Holly Felker
Jennifer Garvin
Costas Hadjipanayis
Chris Holcomb
Michelle Kraynak
Peter Nicholas
Bradley Roberts
Kelly Turner
President
John Herman
Vice President
Lindsey Murray
Secretary
Suzanne Boeren
Treasurer
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
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