SOUTHEASTERN BRAIN TUMOR FOUNDATION INC

Support * Hope * Courage

aka SBTF   |   Atlanta, GA   |  sbtf.org

Mission

Educate, inform, and provide support services to instill HOPE in Brain Tumor patients. To raise funds for research in the Southeast to find a cure

Ruling year info

1995

Board President

Mrs. Kelly Turner

Main address

5400 Glenridge Drive NE #422471

Atlanta, GA 30342 USA

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EIN

58-2166144

NTEE code info

Cancer (G30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

At Southeastern Brain Tumor Foundation, our primary mission is to improve the quality of life for brain tumor patients and their families. We also aim to fund research for the treatment and cure of this condition.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Support Group

Support Groups are hosted for brain tumor patients, families, and caregivers. Monthly and bi-weekly meetings held in person and via online platforms.

Population(s) Served

Research Grants are funded and awarded to high-level research and programs working towards better treatment and a cure for brain tumors.

Population(s) Served

Scholarships are awarded to those affected by a brain tumor diagnosis seeking post-secondary education.

Population(s) Served

Patient Initiatives lighten the load for those with a primary brain tumor diagnosis and are currently undergoing treatment.

Population(s) Served
Health
Health
Health
Health

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, Terminally ill people, Researchers, Students

Related Program

Research Grants

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total dollar amount of scholarship awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Young adults, Adolescents, Students

Related Program

Scholarships

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This program was founded in 2019

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The directives from our Board strive to ensure that all decisions result in the maximum allocation of funds for brain tumor research grants and support services. While we do not offer direct financial support to individual patients, we do support patient programs, educational scholarships and support groups.

1. Research towards improved treatments and a cure for brain tumors is funded with awarded grants to clinicians
2. Higher education scholarships are awarded to applicants who have been impacted by a brain tumor
3. Support groups are held to offer resources to patients and their caregivers.
4. Patient initiatives are funded to lighten the load for those currently undergoing treatment for a primary brain tumor

Two signature annual fundraising events are hosted, the Race for Research and the Muddy Duck Dash, by the Foundation. In addition, fundraising occurs through the year from individual donors, campaigns and sponsors. Our all-volunteer board guides the programs and activities needed to achieve the Foundation's goals.

Since its inception, the Foundation has:
-raised over $2.9 million dollars towards research
-funded 53 grants
-awarded over 20 scholarships
-increased the number of support groups hosted and the area they serve

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • With whom is the organization sharing feedback?

    Our staff, Our board,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback,

Financials

SOUTHEASTERN BRAIN TUMOR FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

SOUTHEASTERN BRAIN TUMOR FOUNDATION INC

Board of directors
as of 5/13/2021
SOURCE: Self-reported by organization
Board chair

Kelly Turner

Farnaz Arabshahi

Craig Castellino

Chris Deibert

Erin Dunbar

Holly Felker

Jennifer Garvin

Costas Hadjipanayis

Chris Holcomb

Michelle Kraynak

Lauren Hollis

Peter Nicholas

Bradley Roberts

Brenda Tracey

Kelly Turner

President

John Herman

Vice President

Lindsey Murray

Secretary

Suzanne Boeren

Treasurer

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 03/04/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

No data

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 02/12/2021

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.