SIDE BY SIDE BRAIN INJURY CLUBHOUSE INC

Rebuilding Lives After Brain Injury

aka Side by Side Brain Injury Clubhouse, Inc.   |   Stone Mountain, GA   |  www.sidebysideclubhouse.org

Mission

Side by Side Brain Injury Clubhouse advances the long-term well-being of people with brain injury-related disability and their families through skills development, support and advocacy.

Notes from the nonprofit

Side by Side is dedicated to improving the quality of life not only for Georgians living with brain injuries but for all people impacted by this often invisible, under-reported, and under-served group of people around the globe. Our Clubhouse 'members' identify with at least 12 ethnic/cultural backgrounds at any given time but share the common value of gratitude for a second chance at life. We are a leader of policy change and advocacy for families whose lives are forever changed in an instant. Since health insurance does not pay for ongoing support services needed to adjust and thrive with this lifelong disability we rely on charitable gifts to ensure people can contribute to their families and communities using the gifts and talents they possess NOW after a sudden illness or injury left them with physical, thinking, communication, and/or behavioral changes, and answering the question, Who Am I Now?

Ruling year info

1999

Executive Director

Cynthia Johnson

Main address

1001 Main St

Stone Mountain, GA 30083 USA

Show more contact info

Formerly known as

Side by Side Clubhouse, Inc.

EIN

58-2448708

NTEE code info

Health - General and Rehabilitative N.E.C. (E99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Today, 5.3 million Americans have a long-term or lifelong need for help in performing activities of daily living as a result of a traumatic brain injury (TBI). Georgia offers nationally-renowned rehabilitation programs for TBI, including the Shepherd Center and Children's Healthcare of Atlanta, but after that, patients and their families are pretty much on their own.

When TBI patients come home from the hospital or rehab clinic, the hard work has just begun. Family members typically face a life-long physical, financial, and emotional ordeal while their love one faces the long, difficult task of adjusting to a world where they no longer fit.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Side by Side Brain Injury Clubhouse

Since its inception, over 450 adults with brain injuries and their families have been supported along their rehabilitative journeys. Our primary objective is to increase their quality of life through productive activity including paid and non-paid work, school, independent living.

Population(s) Served
Adults

This program helps challenge members who have set goals to improve concentration, short term memory and feel more independent. With tools in place in our office setting, members complete supplemental clerical tasks. They learn to answer the telephone, use printers and copiers, count and deposit money and make change as well as become more computer literate.

Population(s) Served
Adults

This work unit serves is the central hub of the Clubhouse. Each member who works in the Kitchen Unit uses their specific skills and talents to make sure we have a hot, nutritious, and affordable lunch each day. This is a great place to work on thinking skills as the members plan, organize, and execute each step of a process to operate a commercial style kitchen that feeds 40 people on a daily basis.

Population(s) Served
Adults

This unit is charged with keeping the Clubhouse safe and clean. Often members choose to work in the maintenance unit because they like a more active day and are able to work both inside and outside. It is especially attractive to our members who were injured while doing manual labor jobs like construction. Blowing leaves off the sidewalk, safety inspections of all the emergency equipment and doing the laundry are some tasks that are being re- mastered so they can carry over into home and work life.

Population(s) Served
Adults

Where we work

Accreditations

Commission on Accreditation of Rehabilitation Facilities (CARF) - Employment and Community Services - 3 Year Accreditation 2009

Commission on Accreditation of Rehabilitation Facilities (CARF) - Employment and Community Services - 3 Year Accreditation 2012

Commission on Accreditation of Rehabilitation Facilities (CARF) - Employment and Community Services - 3 Year Accreditation 2015

Commission on Accreditation of Rehabilitation Facilities (CARF) - Employment and Community Services - 3 Year Accreditation 2018

Commission on Accreditation of Rehabilitation Facilities (CARF) - Employment and Community Services 2021

Awards

Employer of the Year 2002

Brain Injury Association of Georgia

Affiliations & memberships

Clubhouse International Member 2021

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of hours Side by Side members participated in group volunteer opportunities

This metric is no longer tracked.
Totals By Year
Population(s) Served

Chronically ill people, People with psychosocial disabilities, People with physical disabilities, People with other disabilities, Low-income people

Related Program

Side by Side Brain Injury Clubhouse

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Community service opportunities ceased March 2020 due to the public health emergency. Plan to resume Aug 2021

Number of days members attended Side by Side

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Percentage of members who report becoming more self sufficient doing things at home since joining the Clubhouse

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with other disabilities, People with physical disabilities, People with psychosocial disabilities, Chronically ill people

Related Program

Side by Side Brain Injury Clubhouse

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

50% is reflective of lack of in-person services during COVID-19. Assessed safety and mental health while isolated and receiving virtual services. 94% were satisfied with our svcs during the pandemic

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Side by Side offers members a safe environment for continuation of recovery, mastery of skills, and return to the workforce, all while making a positive impact on their families and caregivers.

As Side by Side emerges in 2021 from pandemic-related challenges shared by all human service agencies, our goals have shifted to restoring financial security while maintaining the safety of our staff and members who are at a greater risk of catastrophic consequences of COVID-19 due to chronic health conditions that accompany brain injury. Simultaneously, we are resuming capacity building initiatives with a current priority of leadership succession.



Strategic Initiatives that Continue Include:

1. Establish the Side by Side model as a validated clinical approach to supporting people with brain injury-related disabilities.

2. Enhance Atlanta's reputation as an innovator in the disability community.

3. Expand Side by Side's programs, infrastructure, and resources to serve the growing needs of Atlanta's community impacted by brain injury.

1. Build the administrative and technical infrastructure necessary to sustain long-term program evaluation and justification of services.

2. Maintain a close working relationship with Shepherd Center, top ten brain injury rehabilitation hospital in the nation.

3. Facilitate the expansion and availability of long-term support services for people with brain injuries across the US by leading an alliance of Clubhouse-model programs that serve this population and developing/hosting training of colleagues to develop and continually improve services that utilize this model.

4. Expand home-based and virtual community support services to military service members who sustained brain injuries since 9/11/2001.

3. After 21 years of operation, our founding leaders are staging retirements via a multi-year strategic initiative campaign that has now shifted from a successful 4-year period of capital improvements to a 4- year period of leadership succession. Having hired a seasoned C-Suite executive to guide the transition as the organization's first COO, we are streamlining and modernizing business practices, planning expansions of earned revenue streams, and increasing fundraising efforts to gradually transition to a new Executive Director and Program Director.

Over the past fifteen years, Side by Side has achieved global recognition in the brain injury community for our innovative approach and Partnership Model. Side by Side is a founding leader of the International Brain Injury Clubhouse Alliance (IBICA) and maintains Accreditation of Rehabilitation Facilities (CARF) in Community Services: Community Integration. Side by Side maintains advocacy relationship throughout Georgia to advance a comprehensive line-item funding request to state legislators to address the needs of Georgia's brain-injury population. Side by Side also works with Georgia State University, Emory University and Brenau University to train Rehabilitation Counselors and Occupational Therapists. In addition, Side by Side is licensed and regulated by the Georgia Department of Community Health to operate as an Adult Day Center.

What we have accomplished so far:
-Completed a three-year multi-site research project. This project consists of comparing features and outcomes of Side by Side membership and programs with other ABI and Mental Clubhouse Model programs to demonstrate impact of this service approach on health and well-being of 2 different but overlapping populations. Outcomes showed improved health, resiliency, mental health, and reduced hospitalizations after 6 months of attending an ABI Clubhouse program. Side by Side is the largest of the ABI Clubhouse programs in the study and the only stand-alone 501c3 organization of the group.
-After 20 years of advocacy efforts, Side by Side was approved for a small annual grant through our state's general fund to provide scholarship services to those in financial need and who do not qualify for a Medicaid Waiver.
-Life skills training program is now serving injured workers and wounded warriors.
-Part-time COO has facilitated significant improvements to business practices and facility deferred maintenance plans.
-Successfully obtained full accreditation (during a pandemic!) by the Commission for Accreditation of Rehabilitation Facilities (CARF).
-Obtained 2 PPP loans and support from our founding sponsor, Shepherd Center, to weather the pandemic with zero staff layoffs.

What's next?
- Hire successor for Program Director; once that role is stable will begin search for Exec Director replacement. We hope to secure capacity building funding to ensure a successful transition while increasing Side by Side's reach and impact nationwide through the training of developing long-term support programs following this validated and unique service model.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Adults living with disabilities due to brain injuries and their families

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    conducted a followup survey of families to better meet their need of increased professional and peer support activities- not many responses- planning increased number and types of family support opportunities as Covid precautions lift

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    we follow a partnership model of service provision- called Clubhouse model whereby people served are included and valued in every aspect of the organization from hiring staff to setting policy to assessing safety risk.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    It is difficult to identify actionable feedback,

Financials

SIDE BY SIDE BRAIN INJURY CLUBHOUSE INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

SIDE BY SIDE BRAIN INJURY CLUBHOUSE INC

Board of directors
as of 7/7/2021
SOURCE: Self-reported by organization
Board chair

Jim Long

Gerber Holder Law (Counsel)

Term: 2016 - 2022

Mark Gannon

Partner, Savell & Williams, LLP

Lorie Hutcheson

Shepherd Center

Wanda Staebell

Lilburn Woman’s Club

Dick Brookfield

Van Winkle & Associates

Yogita Tailor

Pelvic Rehabilitation Medicine

Tracey Wallace

Shepherd Center

Jocelyn Smith

Emory University

Elizabeth George

Shah Law Firm

Lloyd Bell

Bell Law Firm

Al King

McKesson

Sarah Duffy

American Cancer Society

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 07/07/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Gender identity
Female
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 07/07/2021

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.