LIGHTHOUSE FAMILY RETREAT INC
Until there's a cure, there's Lighthouse.
Programs and results
What we aim to solve
We hear time and again that families walking a pediatric cancer journey face multiple and complex layers of difficulty, to say the least. 40% of all families we serve face financial difficulties, and every family experiences a change in their income from travel, hotels, insurance, and sometimes loss of a job to care for their child. Families with multiple kids also face the challenge of raising their children not on treatment while the majority of their time has to be dedicated to their child fighting cancer. Treatment is a multi-year commitment, and siblings get passed from family members to neighbors to friends' houses, missing a significant portion of their childhoods as well. Almost 100% of families have at least one member experience declining mental health as well. The child on treatment can miss just as much as their siblings with the added trauma of feeling like it is their fault or feeling responsible for the stress in their home.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Family Retreats
Lighthouse Family Retreat is a faith-based non-profit that exists to strengthen every family living through childhood cancer. We host restorative retreats and develop valuable resources so that families and their support systems can find hope in God and help in their fight.
Where we work
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of Retreats
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Total number of all retreats in a year. *2020 was not able to have any retreats due to the global COVID-19 pandemic. 26 retreats were planned.
Number of participants engaged in programs
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This is the total number of family members in served families that attended retreats. *The number reported for 2020 is how many people we would have served.
Number of new donors
This metric is no longer tracked.Totals By Year
Type of Metric
Other - describing something else
Direction of Success
Increasing
Context Notes
These numbers represent donors who gave to Lighthouse Family Retreat for the first recorded time ever within that fiscal year.
Number of Families Served
This metric is no longer tracked.Totals By Year
Population(s) Served
Parents, Foster and adoptive children, Families of origin, Age groups
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This represents the total number of families living through childhood cancer that we were able to directly serve with one of our programs.
Number of Applications Received
This metric is no longer tracked.Totals By Year
Population(s) Served
Terminally ill people, Chronically ill people
Related Program
Family Retreats
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Context Notes
This represents how many applications received from families wanting to attend a retreat for that year. *We had to close applications early in 2020 when retreats were no longer possible to host.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We greatly respect and honor the medical staff at the incredible children's hospitals across the country. While nurses, doctors, surgeons, specialists, and counselors treat the cancer and the body, Lighthouse exists to treat the family. Each member of the family and the family as a unit deserve to be treated while their child's or sibling's cancer is treated. LFR was founded by a tenured pediatric oncology nurse who had decades of hospital bedside experience and observed what pediatric cancer really does to families. In all of her wisdom and love, she knew more needed to be done. The trauma and fear instilled in the very moment you hear that your child or sibling has cancer takes root and can only be defeated by hope beyond a cure. Our retreats focus on rest, joy, restoration, and hope for families in the greatest need. Our various retreats, while based in these four values, are all built on one core principle: You are not alone. While thousands of families are on similar pediatric cancer journeys, it is lonely. By bringing 10 -14 families together on each retreat, we them an opportunity to have a community that understands, supports, uplifts, and encourages one another. We now have two former families represented on our staff, several former families represented on our Board of Directors, and dozens of families who regularly return as volunteers to serve others because of the impact our program made on them. We have siblings who return to serve on our summer staff internship program, and parents lead their families to join local churches to continue growing closer to God at home after retreat. We have even had parents literally tear up their divorce papers on retreat!
Our goal, in summation, is to bring families living through childhood cancer together with other families to encounter rest, joy, restoration, and hope that last well after they spend time with us on retreat.
What are the organization's key strategies for making this happen?
Seaside Retreats which offer:
-Community through daily group meetings with families experiencing similar circumstances
-Fun regular activities designed to restore joy in a carefree environment
-A spiritually uplifting support structure that extends beyond the week of the retreat
-Special and catered events throughout the week for children, parents, and the entire family
Weekend Retreats which offer:
-A unique retreat-like experience for families in their own community, without the need for travel or time off of work
-Connections with the local community who are looking for ways to meet families with needs and work together to find out how to best meet those needs over the long haul of treatment and issues that tend to occur alongside of the cancer journey
Community of Care which offers:
-Long-term, practical care for families with a child with cancer by their own committed community
-Help with home repairs, yard work, child care, meal trains
-Emotional support like regular phone calls and handwritten notes
Restorative Resources:
-Podcast
-Youtube Channel
-Printed Materials
What are the organization's capabilities for doing this?
Lighthouse Family Retreat has 25 years of strengthening families living through childhood cancer. From our founding by a tenured, experienced pediatric oncology nurse to our 25 years of honing and crafting the best possible retreat experience, we continue to grow in both capability and capacity. Because of the unforgettable life-changing experience families have had, we now have second and third generations choosing to return to serve other families on a journey similar to their own. On staff and our board alone, we have multiple mothers and fathers who were introduced to Lighthouse by being served because one of their children was diagnosed with cancer. We maintain special, crucial, and deep relationships with children's hospitals across the country. We not only take time and resources to intentionally thank medical staff for caring for the same families we do, but we also have at least one currently licensed medical professional on each of our retreat experiences. We consider them partners and consultants as we continue to cater our retreat experiences, even after all this time. We have a growth strategy to continue diversifying and enhancing our staff and board to move toward our goal of accepting every family that applies for a retreat, eliminating our waitlists. We are both well-known and respected by our peers in other non-profits serving a similar target population, which means the world to us.
What have they accomplished so far and what's next?
On August 8, 2000, Lighthouse held its inaugural retreat on Tybee Island, GA for six children with cancer, their families, and volunteers. Lighthouse has steadily grown since, hosting 21 week-long retreats this year in addition to new programs. From 2000 - 2018, we concentrated on growing our staff and growing our flagship program, Week-Long, Seaside Retreats.
In the fall of 2019, we piloted our Sunrise Retreat for families who have lost their child to cancer. This unique retreat is designed to give space to celebrate the child while encouraging the family to grow stronger together in the grieving process. 2020 did not allow us to host any retreats due to our population being among the most susceptible to immune-related complications. However, we did take the chance to strengthen more families and engage more volunteers than any year before through our Box Project. We customized and created four boxes per family that we would have served on retreat and the families we served in 2019. These boxes were themed around or retreat truths of rest, joy, restoration as a family, and hope for them to have a mini-retreat safely at home.
In 2021, Lighthouse hosted 21 week-long retreats, piloted a weekend retreat, held our second one-day retreat, launched our Community of Care program, recorded 25 new podcast episodes, created our own kids coloring and activity book, wrote 2 new devotions, and is still working on a new 2021 Advent calendar with family projects.
We were exceedingly proud to launch our Community of Care designed to harness the support of a family's immediate community to see them through long, multi-year treatments and support them in real, tangible ways. This includes meals, transporting siblings, yard work, housework, emotional support, and spiritual support. With this grant, we would be able to travel to local communities across the country to train, equip, and launch multiple Communities of Care to help share the burdens of childhood cancer.
In 2022 and 2023, we continued piloting new locations for our Weekend Retreats and One-Day Retreats. We also realized the need for more bereavement retreats, which is a dream we got to see come to fruition in 2024. 2023 also saw Lighthouse grow to a staff of 25, our largest ever. Already in 2024, the Community of Care is thriving and we piloted a Weekend Sunrise Retreat for bereaved families. We have a full year of Week-Long, Seaside Retreats starting on April 1st and ending the last week of September. We have our 6th annual Week-Long Sunrise Retreat that last week of September as well.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
LIGHTHOUSE FAMILY RETREAT INC
Board of directorsas of 03/27/2024
Kelly Dixon
Cannon Financial Strategists
Term: 2024 - 2024
Brian Shelpler
Ronald Blue Trust
Jon Hall
Construction Market Data
Ken Carney
Verint Systems
Mindi Linscombe
Something New Boutique
Janet Bridges
Chick-Fil-A Corporate
Christopher Woodruff
Lighthouse Family Retreat
Courtney Defeo
Delta/Self-Employed
Kevin Floyd
Prestige Staffing
Fred Miller
Ruth and Luke Consulting
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
No data
Equity strategies
Last updated: 03/27/2024GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We ask team members to identify racial disparities in their programs and / or portfolios.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.