NATIONAL PARKINSON FOUNDATION INC HQ

Miami, FL   |  www.parkinson.org
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

The National Parkinson Foundation has merged with the Parkinson's Disease Foundation to form the Parkinson's Foundation, with offices in New York and Miami. For the merged organization's Charity Navigator profile, please visit https://www.guidestar.org/profile/13-1866796.

Ruling year info

1964

Chief Executive Officer

Mr. John L. Lehr

Main address

200 SE 1st Street Suite 800

Miami, FL 33131 USA

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EIN

59-0968031

NTEE code info

Brain Disorders (G48)

Fund Raising and/or Fund Distribution (H12)

Fund Raising and/or Fund Distribution (T12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Parkinson's Outcomes Project

The Parkinson’s Outcomes Project is the largest-ever clinical study of Parkinson’s disease in the world, studying nearly 10,000 patients in four countries. This ground-breaking initiative enables us to track and monitor the care over time of patients who are seen at NPF Centers of Excellence.

What makes this project truly innovative is that it studies everyone with Parkinson’s, from the newly-diagnosed to people who have lived with Parkinson’s for 20 years or more, providing us with a comprehensive view of the disease and its overall impact on people’s lives.

Population(s) Served

Our research showed that three out of four people with Parkinson’s do not receive their medications on time when staying in the hospital, leading to greater risk of complications and even death. To address this need and protect, prepare and empower people with Parkinson’s before, during and after a hospital visit, NPF has developed a free Aware in Care kit with tools and information to share with hospital staff during a planned or emergency hospital stay.

Population(s) Served

NPF’s Centers of Excellence exemplify our clinical think-tank: a group of the world’s leading Parkinson’s specialists focused on changing the course of Parkinson’s disease. Forty-one leading medical centers worldwide:

- Deliver care to more than 108,000 Parkinson’s patients

- Create a community of health care professionals dedicated to Parkinson’s care

- Work to advance a comprehensive approach to care that addresses the whole person and full range of symptoms

Population(s) Served

The National Parkinson Foundation’s 1-800-4PD-INFO Helpline is staffed by nurses, social workers and therapists who are experts in Parkinson’s disease. The Helpline’s Parkinson’s Information Specialists support the Parkinson’s community by:

- Providing current disease information

- Discussing medical issues, including symptoms and treatments

- Health and social care

- Emotional support

- Referrals to health professionals and community resources for local support

Population(s) Served

The National Parkinson Foundation’s Moving Day® Walk is a fun, inspiring fundraising event that unites families, friends and communities in the fight against Parkinson’s disease. Held in cities across the United States, it is the first grassroots campaign that spotlights the disease on a national level and gives you the chance to speak out in your own community.

Population(s) Served

Where we work

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Financials

NATIONAL PARKINSON FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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NATIONAL PARKINSON FOUNDATION INC

Board of directors
as of 04/09/2018
SOURCE: Self-reported by organization
Board chair

John Kozyak

Kozyak Tropin & Throckmorton