Multiple Sclerosis Foundation, Inc.
Let's Find Better Days
Programs and results
What we aim to solve
Multiple sclerosis has no cure. Cleveland Clinic ranks it as the 3rd worst disease of the central nervous system. The autoimmune disease ranks 1st as the common cause of chronic disability in young working-age adults. In 2017, approximately 1 million adults were reported as living with MS in the United States. Previously considered to predominantly appear in Caucasians, recent clinical studies reveal MS has become increasingly prevalent within the Black and Hispanic communities. The neurologic disability is especially devastating for working adults who eventually surrender to its devastating physical affects. As one of the top five most expensive chronic diseases to treat, the economic burden to cover direct, indirect, and nonmedical expenses is a hefty challenge for uninsured patients. While similar non-profits concentrate on research and treatment, the Multiple Sclerosis Foundation focuses on providing direct and critical services/resources to un/underinsured people with MS.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Homecare Assistance Grant
MS Focus understands the daily needs and challenges that must be met by both those with MS and their caregivers. In order to meet these needs in the most timely and efficient way possible, our Homecare Assistance Grant connects clients to the best available local services. Should resources within the community not be available, direct support may be provided on a temporary basis.
Emergency Assistance Grant
MS Focus' Emergency Assistance Program provides full or partial financial assistance for urgent needs related to rent, utilities, or medication. This one-time grant is available to individuals with an MS diagnosis who are experiencing financial crisis as a result of their health condition.
Computer Program
There is a wealth of information and resources available online for people with MS. The Internet allows them to join supportive communities, share their stories, and learn about anything they choose. Unfortunately, people with disabilities sometimes don't have the means to afford a computer in order to access that information. Our Computer Program provides laptop or desktop computers for individuals with MS on limited or fixed incomes.
Cooling Program
More often than not, heat and MS don’t mix. As body temperature rises, weakness, fatigue, visual disturbances, and other symptoms can become aggravated and temporarily worsen. While heat does not actually make MS worse, it does alter the passage of nerve impulses, causing a feeling of weakness, especially in the limbs.
But keeping cool can help you work, shop, and maintain your home during the summer months. It can also help you reclaim countless activities associated with the warmer seasons, like gardening, fishing, walking, biking, family outings, barbecues, and baseball games. Our Cooling Program offers a variety of items, free of charge, that will help you stay cool in the heat.
Brighter Tomorrow Grant
Each year, The Brighter Tomorrow Grant allows MS Focus to makes dreams come true across the country.
The goal of the grant is to provide goods or services that will improve the lives of people with MS, but are not available through our other programs. These items range in value, with a max of $1,000 per recipient, and can vary from household essentials to hobby supplies.
Healthcare Assistance Grant
The MS Focus Healthcare Assistance Grant assists uninsured individuals with the cost of visiting their MS specialist as well as dental assistance. The grant, which can pay for one visit and one follow-up, is designed to assist those already diagnosed with MS who may need a visit to their treating physician to renew a prescription or handle other important needs.
Health & Wellness Grant
The MS Focus Health and Wellness Program offers you the opportunity to participate in various forms of adaptive exercise or alternative therapy. Where there are a sufficient number of people interested, classes are formed. Where classes are not available, individuals may apply for full or partial funding to participate in activities through local gyms, fitness facilities, and wellness centers.
Across the country, MS Focus has sponsored classes and programs for individuals including: yoga, aquatics, exercise and fitness, therapeutic horseback riding, adaptive sports and recreation, art therapy, dance therapy, and other activities that promote health and wellness.
All classes are led by qualified instructors, and are free of charge for the attendees. These therapies are designed to assist in symptom management and pain relief, as well as to help improve physical and emotional health.
Assistive Technology Program
The Assistive Technology (AT) Program may help locate, partially fund, or provide full funding for one of a wide range of devices. These allow those with MS to function more independently in their daily lives, as well as more easily participate in recreational, educational, and vocational activities.
Support Group Program
Speaking with other people who have MS can be one of the most empowering and helpful things for someone with MS. Sharing stories, feelings, and experiences with people in similar situations is not only therapeutic, but also enlightening, and can often improve emotional health. Support groups frequently provide the best available opportunities to have these interactions, and MS Focus is here to help individuals find or start a support group in every community.
National Toll-free Helpline
Available in English (888-MSFocus [673-6287]) and Spanish (800-448-4727), callers receive personal attention and assistance from service coordinators and peer counselors, who can help them find information and resources, provide referrals, or assist callers with applying for MS Focus services.
Where we work
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Percentage of service recipients who reported that their quality of life was improved by the service received.
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
We survey program recipients three months after participation to determine how the program addressed their critical needs. For all programs combined, 98.8% experienced improvement in quality of life.
Number of clients reporting increased knowledge after educational programs
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, Families, People with diseases and illnesses
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
In post-event evaluations, attendees of our educational programs are asked whether the event increased their knowledge of the subject matter.
Percentage of educational event attendees who reported finding our staff helpful and informative.
This metric is no longer tracked.Totals By Year
Population(s) Served
Women and girls, Caregivers, People with physical disabilities
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
In post-event evaluations, attendees of our educational programs are asked whether they found our staff helpful. Staff sometimes serve as speakers, but are always on hand to answer questions.
Percentage of service recipients who reported finding our staff helpful.
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, People with diseases and illnesses, People with physical disabilities
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
We survey program recipients three months after participation to determine how the program addressed their critical needs. For all programs combined found the staff very helpful.
Percentage of service recipients who reported that the service provided met their needs.
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, People with disabilities, People with physical disabilities
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
We survey program recipients three months after participation to determine how the program addressed their critical needs. For all programs combined, found most people needs were met..
Number of participants who would recommend program to others
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, People with disabilities, People with physical disabilities
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
In post-event evaluations, attendees of our educational programs are asked whether they would recommend the program to someone else, and most everyone would do so.
Number of readers who report taking action in response to an article.
This metric is no longer tracked.Totals By Year
Population(s) Served
Caregivers, Families, People with diseases and illnesses
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
In an annual survey of readers of MS Focus Magazine,a majority of readers reported that they had taken action on the basis of an article they had read in the magazine.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
MS Focus stands in the gap, helping individuals affected by MS for whom there are few other resources. We are here provide the support, education, and direct assistance to meet the critical needs of people with MS and help them successfully adapt to their challenging circumstances. Our primary focus is on providing individuals with MS the help they need to maintain their health and well-being, to continue to be productive and independent, and to keep a roof over their heads and a safe environment in their home. We do so with empathy, resourcefulness, and conscientious care.
What are the organization's key strategies for making this happen?
Our efforts are focused on providing free programs that address the critical needs of people with MS and their families. We provide grants to individuals with MS for much-needed services and devices. These may be directly related to their healthcare, such as funding for a neurologist visit for the uninsured, prescription co-pays, and physical, occupational, or speech therapy. Or they may be items that aid in adapting to changing circumstances, such as portable wheelchair ramps, hand controls for vehicles, or cooling aids for heat intolerance. The line-up of programs includes Emergency Assistance Grant, Homecare Assistance Program, Assistive Technology Program, Transportation Assistance Program, Healthcare Assistance Grant, Health & Wellness Grant, Brighter Tomorrow Grant, Cooling Program, Computer Program, Lending Library Program, a toll-free helpline, educational events and webinars, awareness campaigns, quarterly publications and subject-specific periodicals to aide in treatment plan maintenance. Furthermore, we actively assist people with MS in maintaining wellness through peer support groups, fitness classes, and lifestyle education.
What are the organization's capabilities for doing this?
With national headquarters in Fort Lauderdale, Fla., MS Focus serves the nation from one central location. By eliminating the need for branch offices, we are able to maintain a more cost-effective and efficient operation while maintaining the highest quality service. Networking with independent, grassroots organizations gives us a local presence in communities around the nation. Our programs and grants are available in the 50 U.S. states and Puerto Rico. Online resources, such as our educational materials or audio programs, are available throughout the world. Our resources assist people who have MS, their families and caregivers, regional support groups, and healthcare professionals.
What have they accomplished so far and what's next?
The outcome measures surveys our clients take show that we are making a significant difference. For example, 96 percent of applicants say the need their application addresses affects their quality of life "quite a bit" or "very much." After receiving services, 98 percent of respondents said the help they received from MS Focus improved their quality of life. We continue to look to the people with MS as our guides, expanding or improving our services as the needs of the MS community change. Working together, we say "Let's Find Better Days."
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects
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Which of the following feedback practices does your organization routinely carry out?
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What challenges does the organization face when collecting feedback?
It is difficult to get the people we serve to respond to requests for feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Multiple Sclerosis Foundation, Inc.
Board of directorsas of 11/13/2024
Mr Eric Schenck
Charles Eader
No Affiliation
Eric Schenck
No Affiliation
Gregory Stein
No Affiliation
John Blackstock
No Affiliation
William Sheehan
No Affiliation
Elaine LaFlamme
No Affiliation
Mark Shalloway
No Affiliation
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No