Hope and Help Center of Central Florida, Inc.

aka Hope & Help, Inc.   |   Winter Park, FL   |  www.hopeandhelp.org

Mission

Our mission is to end the HIV/STI epidemic in Florida through comprehensive health education, prevention, testing, and treatment.

Notes from the nonprofit

Hope & Help relocated to a new facility this August and are increasing services, programs, and opportunities to serve the community. We now have three (3) medical providers with extensive infectious disease and primary care experience. We will add mental health services in the next six (6) months to expand our comprehensive, whole person care continuum. The Hope & Help staff is by far the most compassionate, helpful group of people around. They are advocates and fierce champions of those who just need a hand up to take control of their health and wellness. It’s an honor to represent this incredible team.

Ruling year info

1989

CEO / Executive Director

Ms. Lisa Barr

Main address

4122 Metric Drive Suite 800

Winter Park, FL 32792 USA

Show more contact info

EIN

59-2872225

NTEE code info

AIDS (G81)

Ambulatory Health Center, Community Clinic (E32)

Human Services - Multipurpose and Other N.E.C. (P99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Hope & Help's Board of Directors and staff continue to address the needs of the under-served and uninsured population in Central Florida. With identifying the need for more options for individuals in need of health care, we opened our Medical Clinic in January 2018. This gives individuals the option of a clean, safe environment to receive their health care and to get some assistance with our sliding scale fee and our "patient assistant fund" for those individuals without insurance. We strive to link persons newly diagnosed with HIV into medical care within 48 hours of their positive test results. This turnaround time is critical to getting individuals into care and virally suppressed as quickly as possible, so they do not spread the infection to others. We are currently working toward providing mental health and substance abuse services, clean needle exchange program, in-house pharmacy, and rental meeting space to support our patients and clients along with the broader community.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Medical Case Management

Medical case managers provide a range of client-centered services that help consumers gain access to needed medical, social, educational, and other services. This includes direct assistance in gaining access to services, coordination of care, and linkage to appropriate services. Medical Case Management includes initial assessment of service needs; development of individualized care plan; continuous client monitoring and follow-up; and treatment adherence. Services ensure timely, coordinated access to medically appropriate levels of health and support services, and continuity of care through ongoing assessment of clients’ and key family members’ needs and personal support systems. Medical case management includes treatment adherence counseling to ensure readiness for and adherence to complex HIV/AIDS regimens. Services are available in English and Spanish.

Population(s) Served
People with HIV/AIDS
Adults

Early Intervention Services (EIS) include identification of individuals at points of entry and access to services and provision of HIV testing and targeted counseling, referral services, linkage to care, and health education and literacy training that enable consumers to navigate the HIV system of care. EIS services include the following four components: (1) Targeted HIV testing to help the unaware learn of their HIV status and receive referral to HIV care and treatment services if found to be HIV-infected. (2) Referral services to include HIV care and treatment services at key points of entry. (3) Access and linkage to HIV care and treatment services such as HIV Outpatient/Ambulatory Health Services, Medical Case Management and Substance Abuse Care. (4) Outreach services and Health Education/Risk Reduction related to HIV diagnosis

Population(s) Served
People with HIV/AIDS
Adults

Referral Specialist provide advice and assistance in obtaining medical, social, community, legal, financial, and other needed services. Referral for health care includes annual assessment of the eligible consumer to determine service needs; semi-annual re-assessment of the eligible consumer to determine service needs; referral and related activities to help the consumer obtain needed services; monitoring and follow-up; and evaluation. Services are available in English and Spanish.

Population(s) Served
People with HIV/AIDS
Adults

Florida Health funded prevention program, High Impact Prevention (HIP), is a response to the goals set by the National HIV/AIDS Strategy. The HIP program is designed to maximize cost effective HIV prevention methods by targeting populations at highest risk of contracting HIV. Hope & Help's HIP program focuses on geographic areas throughout the Orlando EMA and provides targeted outreach interventions and HIV testing to heterosexual African Americans and men who have sex with men in Orange County. Hope & Help utilizes the Business Response to AIDS intervention to engage businesses and business owners to invest in HIV prevention for their patrons. Through condom distribution, education, social media, face-to-face outreach, peer mentoring, and HIV testing, the HIP program aims to reduce new HIV infections and link those who are HIV-positive into care.

Population(s) Served
People with HIV/AIDS
Adults

The Hope & Help Food Pantry has been in operation since 1995. The purpose of the Pantry is to remove the barrier of food scarcity for people living with HIV, so that they can focus primarily on being medically adherent, which helps to reduce HIV transmissions. Most of the Pantry’s food recipients are Hope & Help clients and patients. These individuals live below the federal poverty line and rely heavily on the Pantry to lessen the financial burden of living with HIV. The Pantry is open Monday through Friday from 8:00am to 5:00pm.

The Pantry is the only one of its kind locally created specifically for people living with HIV. The cost of managing HIV is a major factor as to why our clients and patients use the Pantry. For example, HIV medications can cost up to $9,000.00 per month. The stress of looking for resources, such as prescription discounts, can be overwhelming. This is one of the reasons we offer mobile food services. Through Hope & Help’s wellness mobile, a branded RV, Hope & Help employees deliver food to clients’ homes and at outreach events during business and after hours. This convenience makes it easier for food recipients who do not have reliable transportation.

Population(s) Served
People with HIV/AIDS
Adults

Hope & Help’s Clinic is a comprehensive medical practice providing infectious disease care for those with HIV and Hepatitis C, STD/STI testing and treatment, PrEP and nPEP/PEP services, primary care, HIV testing and counseling, Hormone Replacement Therapy (HRT), and full laboratory services. Hope & Help’s onsite medical clinic is open to everyone in the community, regardless of HIV status. Most major insurance plans are accepted. Hope & Help also utilizes a sliding scale, a discounted self-pay schedule, and multiple patient assistance programs for those who are uninsured or under-insured.

Population(s) Served
People with diseases and illnesses
People with HIV/AIDS

Hope & Help Connect is a patient assistance program designed to provide medical and ancillary services to all eligible clients and patients at Hope & Help through a network of medical providers, pharmacies, and patients whose goal is to ensure everyone, regardless of their ability to pay, has access to quality, affordable healthcare. Hope & Help Connect specializes in the prevention and treatment of HIV, Hepatitis C, and other STD/STIs. Under the Hope & Help Connect program, eligible clients and patients have access to transportation assistance, food assistance, emergency finical assistance, support groups, medication/pharmacy assistance, medical services, PrEP services, onsite laboratory services, and dedicated health care advisors.

Population(s) Served
People with diseases and illnesses
People with HIV/AIDS

Peer mentors are individuals living with HIV who have overcome the stigma and challenges of the disease and are here to support and assist clients with navigating the care system, education about the disease, treatment adherence to HIV regimens, advocacy in treatment, and support on the journey to living a long, healthy, and productive life.

Population(s) Served
People with HIV/AIDS
Adults

Where we work

Awards

Best Fundraiser Event - AIDS Walk Orlando 2019

Watermark Publishing

Pulse Honoree 2017

City of Orlando Police Department

Queen Bee Award 2018

Let's BeeHIVe

Affiliations & memberships

Orlando Sentinel Top Places to Work 2020

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of people tested for HIV

This metric is no longer tracked.
Totals By Year
Population(s) Served

Men and boys, Ethnic and racial groups, Sex workers, LGBTQ people

Related Program

High Impact Prevention (HIP)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Free HIV testing under DOH Programs (High Impact Prevention and Extended Testing Initiative)

Number of people provided with PrEP

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, Health, Sexual identity

Related Program

Medical Clinic

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

PrEP Plus Program provides a once-a-day pill to help prevent HIV transmission

Number of men who have sex with men tested for HIV

This metric is no longer tracked.
Totals By Year
Population(s) Served

Men and boys, LGBTQ people

Related Program

High Impact Prevention (HIP)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Men who has sex with men (MSM) continue to be a high risk demographic for HIV transmission

Number of practicing medical doctors

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups, Ethnic and racial groups, Health

Related Program

Medical Clinic

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In-House medical clinic started in January 2018 providing specialty and primary care and labs for HIV/STD/HEP C patients

Number of practicing nurse practitioners

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Medical Clinic

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

In-House medical clinic providing specialty and primary care for HIV/STD/HEP C patients

Number of meals served or provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth

Related Program

Emergency Food Pantry

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Emergency food assistance program provides meals and 22,000 personal care items to people in need

Number of clients participating in support groups

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups, LGBTQ people

Related Program

Peer Mentors

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

RESTART, Rise, and Style are connecting people to social and emotional support, opportunities to learn and share their stories

Number of Case Management clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

Economically disadvantaged people, People with HIV/AIDS

Related Program

Medical Case Management

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Medical Case Managers provide increased access to health care and other important resources needed to ensure medical adherence

Number of Free Condoms distributed

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups, Health

Related Program

High Impact Prevention (HIP)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Free condoms and lubricant distributed at events and through mail-order program titled, Choose to Protect

Number of groups/individuals benefiting from tools/resources/education materials provided

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults

Related Program

High Impact Prevention (HIP)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Health Educators provide in person sexual health, prevention, and safe sex education via outreach, support groups, testing events, presentations, media, and special events

Number of people treated for HIV or Hepatitis C

This metric is no longer tracked.
Totals By Year
Population(s) Served

Health

Related Program

Medical Clinic

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Persons treated for HIV or Hepatitis C

Number of urban businesses promoting HIV prevention and treatment options to their clientelle

This metric is no longer tracked.
Totals By Year
Population(s) Served

Ethnic and racial groups

Related Program

High Impact Prevention (HIP)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Urban Businesses play a huge part in educating their clientele on HIV prevention and treatment options in our Business Response to AIDS (BRTA) Program

Number of HIV-positive people who achieve or maintain an undetectable viral load

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups, Sexual identity

Related Program

Medical Case Management

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Hope & Help's goal is to stop all new HIV transmissions in Central Florida. HIV is a preventable disease. It is no longer the certain death sentence it was in the 1980's if people begin and remain in medical treatment for the remainder of their lives. There is no cure HIV. While treatment options are vastly improved, it's still a chronic, potentially deadly disease with a huge price tag. Too often we hear, "HIV is no longer an issue". The truth is, Florida is leading the nation in new HIV infections and new AIDS cases. Florida is one (1) of the nine (9) Southern States accounting for nearly 50% of all new infections nationwide. Florida boasts five (5) of the top ten (10) leading Metropolitan areas in the nation, a distinction we do not want to celebrate. The Orlando Metro Area is second in the nation in new HIV infections and new AIDS cases. We intend to do everything in our power to end new infections and provide support to those already infected. Our goals are to: (1) Ensure all Central Floridians know their HIV status, (2) Assist those who are negative with behavioral and medical strategies to keep them negative, such as PrEP and condom use, (3) Provide testing, community outreach and education programs to identify and link to care those infected by HIV, (4) Provide resources to those infected and affected by HIV by linking HIV positive persons to medical care, (5) Provide skilled staff at all levels, from peer mentors to medical providers, to link HIV positive persons to resources they need to ensure they get comprehensive, culturally competent medical care and stay in medical care, (6) Provide a platform for social change, to end stigma, and to change the conversation that HIV is no longer a threat. HIV is a threat and it does not discriminate, (7) Foster coalitions and networks that bring together groups and individuals for broader goals and greater impact Influence policies and legislation by encouraging laws and policies that support a HIV negative community (human trafficking, intravenous drug use and clean needle exchange programs, condom distribution, HIV education in schools).

To achieve our goals, Hope & Help is implementing strategies that focus on addressing the threats and challenges we've identified in our SWOT analysis. The strategies are: (1) Add to and diversify our funding streams - Grant funding is relied on too heavily so additional revenue streams are a risk reduction measure as well as an opportunity to expand our outreach. Partnership opportunities are the first and most impactful method to diversify funding. Shared cost savings, additional service offerings, collaborative bidding and expanded capabilities make it possible to look at higher-level opportunities. Private funding and/or an endowment are other options being explored under this strategy. (2) Rebrand our community message to help raise visibility of Hope & Help and our mission. Stigma is one of the largest and often complex hurdles we face. People still believe HIV is a gay disease, which is far from true. Creative marketing, rebranding to eliminate the red ribbon, more interactive website and social media presence will help us take the sting out of HIV and start a different conversation. (3) Create strategic private and public partnerships. HIV is not a new disease so we will reach out to others for best practices, create partnerships and political alignments to help spur the discussion and inclusion of HIV in health considerations. (4) Develop a cohesive service location plan to best serve our clients and reach those in need of service. Ideally, all staff would be in one main location; however, we have contractual partnerships in offsite locations requiring offsite Hope & Help support. Our goal is to ensure that all staff are supported and connected to the main location so we can create synergy around the strategic location(s). (5) Develop Agency Talent to attract and keep excellent employees. Hope & Help strives to be an employer of choice and we will create career opportunities, facilitated trainings, create a 401K matching program, explore college tuition reimbursement programs, and maintain transparency and strong communications. With a happy, healthy, motivated staff we will provide best in class services to our clients and patients.

Our internal resources include a trained and experienced staff that promote HIV/AIDS care and education and an empowerment model for clients. Coupled with a strong board of directors that is well-connected, influential in the community and committed to our mission, we have the right people to accomplish our goals. Our executive-level board brings a wide array of expertise in strategic development, financial services, human resources, communications and governance, and their expertise and involvement has been instrumental to our success. Externally, our community partnerships include other HIV/AIDS service organizations, health care providers, pharmaceutical partners, law enforcement agencies, and county and state health departments. Our collaborations with other agencies again strengthen our ability to affect change. By communicating the same message about HIV testing and care from other trusted organizations, we are maximizing visibility in our community and pushing the issue to the forefront of the societal discussion. We will build our capabilities through partnerships to address service and knowledge gaps. For example, we are working with Central Florida Cares Health System to start our mental health program and we refer to other providers for services we do not currently provide inhouse. Our memorandum of agreement provides a seamless transition for any client we identify with mental health needs. Our capability is expanded without additional cost impacts.

As a result of our efforts we have started partnerships with nine (9) medical providers providing PrEP, PEP, HEP C, and STD services in Central Florida. We are in discussions with two (2) additional strategic partners that will add services and capabilities resulting in revenue diversification. We relocated to a larger facility that offers a generous amount of space for offices, meeting rooms, and community programs and includes seven (7) exam rooms for our three (3) medical providers. Additionally, we have developed a brand ambassador program to better connect with the youth. Model students from local high schools and colleges are selected to be influencers at their place of study to share our message about HIV awareness, prevention, and treatment. All activities focused on increasing awareness of HIV, education, and outreach which is starting to change the conversation. Public awareness is a key component to ensuring our message is both far-reaching and resonates with targeted populations. We are delivering our targeted messaging to the right people through the right channel at the right time. This includes targeted materials for our diverse, multicultural population and outreach efforts with key messaging developed specifically for those populations. We need to change the conversation about HIV and AIDS and discuss healthy sexual relationships and health knowledge before another generation is impacted. There is no shame in being HIV positive so let's help people get the care, education and support needed to stop the spread. We have more work to do!

Our near-term actions include: (1) Board Development and Recruitment, (2) Exploration of additional revenue generating programs, (3) Development of a faith-based program so congregations can become support systems for their parishioners with HIV, (4) Find a way to educate school age children on sexual health and what it means to protect themselves. An age appropriate, youth prevention program needs to reach every school aged child in Orange, Osceola, Seminole, Brevard and Lake Counties, (5) Find a way to educate college freshman at every local college (UCF, Valencia, Full Sail, Rollins, etc.) and their parents so they know the risks involved with unprotected sexual encounters and how to protect themselves, (6) Expand our volunteer training so volunteers can help us with testing, outreach, and education by having a conversation in their circles of influence about HIV risks and prevention, and (7) Expanding our Business Response to HIV/AIDS program which currently has 38 businesses involved. In order to help stop the spread of HIV in communities most at-risk, we need the business and religious organizations involved. Lastly, we need funders and concerned individuals to join us to eliminate this 100% preventable disease. It’s our 21st Century polio and we all need to work together to make this happen.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Paper surveys, Focus groups or interviews (by phone or in person), Case management notes, Constituent (client or resident, etc.) advisory committees, Suggestion box/email,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To identify potential partners, board members, volunteers, and others interested in engaging,

  • What significant change resulted from feedback?

    We've received concerns about our website's ability to incorporate more automated options to increase service delivery for our visitors. Our marketing team met with the health services teams to create a more efficient way of delivering health products online. As a result, we now have an automated system for our Free Condom Home Delivery and Home HIV Test Kit services and our distribution has increased.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners, Grantors,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time, It is difficult to get honest feedback from the people we serve, It is difficult to identify actionable feedback,

Financials

Hope and Help Center of Central Florida, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Compare nonprofit financials to similar organizations

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Hope and Help Center of Central Florida, Inc.

Board of directors
as of 12/14/2020
SOURCE: Self-reported by organization
Board chair

Mr. Tracy Richardson

WKMG - Retired

Term: 2018 - 2020

Tracy Richardson

WKMG - Retired

Bob Adams

AIMM Consulting

Sue Idtensohn

Planned Parenthood - Retired

James Palmisano

382 Communications

Blake Powell

RSM US LLP

Blair Jackson

Jordan Law

Kurtis Mohr, MD

Premise Health

Debi Jones

SeaWorld Parks & Entertainmnet

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/13/2019

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Gay, Lesbian, Bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 11/13/2019

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.