Human Services

Kids Beating Cancer, Inc.

Science is the Cure

Orlando, FL

Mission

The Only Non-Profit of its Kind in America, Kids Beating Cancer, Inc., (KBC) is a nonprofit, nonstock Florida Corporation formed in 1992. KBC is providing access to cures through the science of cutting edge bone marrow and stem cell transplants at the Kids Beating Cancer Pediatric Transplant Center while providing resources and support for children with cancer, leukemia, and 80 different related life- threatening diseases throughout the treatment process. KBC funds the pre-transplant testing and donor identification, costs never covered by Medicaid and only partially covered by insurance. By removing these financial barriers any child can have access to transplantation at Kids Beating Cancer Pediatric Transplant Center, the best and only hope for a cure.

Ruling Year

1992

CEO, President

Mrs. Margaret Voight Guedes

Main Address

228 E Winer Park Street

Orlando, FL 32804 USA

Keywords

Children, Cancer. Leukemia, Bone Marrow Transplant, Pediatric Cellular Therapy, Stem Cell transplant, CAR T Therapy, Charity Gala

EIN

59-3136203

 Number

6855704112

Cause Area (NTEE Code)

Human Services - Multipurpose and Other N.E.C. (P99)

Cancer (G30)

Fund Raising and/or Fund Distribution (U12)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve New!

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

"Fund the Match" Kids Beating Cancer Transplant Center program

"My Room" a Kids Beating Cancer Transplant Center program

"Food for Families" Kids Beating Cancer Transplant Center program

"Karing 4 Kids" Kids Beating Cancer Out-Patient program

"Transplant Outreach & Education"

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Kids Beating Cancer (KBC) the only non-profit of its kind in the US, provides resources for children with cancer, leukemia and 80 related life-threatening diseases throughout the treatment process. By providing the pre-transplant testing and donor identification, costs never covered by Medicaid and only partially covered by insurance, any child can have access to stem cell transplantation, the best - and only hope for a cure. This testing is provided at no cost at the Kids Beating Cancer Pediatric Transplant Center. 1. REDUCING FINANCIAL BARRIERS FUND THE MATCH - removes the financial barriers to care by funding the pre-transplant workup, cost per child of $10,000 plus, that is never covered by Medicaid, allowing children access to a life saving transplant. FOOD FOR FAMILIES - provides Food Vouchers for families so they can order food from their child's hospital room and eat with their child during hospital stays. KBC reduces the burden on the family by funding meals, so parents don't have to worry if they have cash in order to eat, as sometimes the simplest of problems becomes overwhelming during hospitalization. 2. FAMILY SUPPORT SERVICES MY ROOM - the transplant process is lengthy, with an extended stay away from the familiarity and comfort of home, and children become homesick. Themed hospital rooms put a child's distinct fingerprint on the place they will be calling home for months. KARING 4 KIDS - KBC provides; quarterly parties, special celebrations, and outings for children and their families. Bringing families together during the treatment process is a positive experience. Parents express it helps them to better cope, gives them a base of support, and deep friendships. Families have shared with KBC their appreciation for this program, emphasizing the impact of bringing families together in a safe environment, the joy in seeing their children happy, in between so many painful treatments and hospitalizations. OUTREACH AND EDUCATION - a trusted resource for the community and the children and families during treatment and beyond. KBC does awareness events, educating the community and families about stem cell transplantation, the need for donors, and how to donate. 3. KIDS BEATING CANCER PEDIATRIC TRANSPLANT CENTER KBC has entered the treatment arena with this named, unique only facility in Central Florida, offering cutting edge treatment exclusively available at a handful of centers nationwide.

The financial requirements for programs such as Fund the Match and the KBC PTC are significant and ongoing. On the one hand, KBC has had moderately successful fundraising events, such as our annual Hats & Heroes Ball. Although events like this raise some funds, they are not an enduring foundation for future growth and sustainability. Such events major value lies in presenting KBC and its mission to encourage the interest and commitment of individual and corporate donors. Of the many good causes for children, particularly ill children, KBC is the only non-profit of its kind, which serve to set it apart from others and to encourage long-term donor commitment in this very competitive marketplace. First of all, KBC serves children with cancer, leukemia, and over 80 other life-threatening diseases, which can only be cured with a bone marrow or stem cell transplant. Thus, from the very beginning, KBC's mission is defined as life itself. Even though this treatment is life saving, children without resources cannot even begin the process of finding a donor, or begin treatment without extensive testing that is never covered by Medicaid and most insurers. This compelling argument raises donors to KBC to a very high level from the very beginning. KBC programs assist children without which curative treatment is delayed or not accessible at all. Secondly, KBC takes care of children right here in Central Florida. Funds pledged to KBC do not go to some distant program with unknown people and unknown priorities. These are children and families right here in Central Florida. You can see them at the annual events, they may even be your neighbor's child. This is a powerful draw for local support. Finally, the credibility and strength of the organization is exemplified by the Kids Beating Cancer Pediatric Transplant Center at Florida Hospital for Children. This association gives legitimacy to KBC, which can be a powerful reassurance to any potential donor. Clearly, KBC is not some small, family organization that may not exist for the long hall. The association with the strongest hospital system in the state guarantees its credibility, quality, and safety for the organization or individual seeking to donate to a children's cause. These arguments underline a continuing approach to the community for long-term foundational support to carry out KBC's mission for the foreseeable future.

The concepts listed above are powerful arguments for the importance and credibility of KBC's mission and should serve to both inspire and convince potential donors. In order to reach these donors however, one must build a consortium of individuals representing or having contacts with those who can support and understand the KBC vision and its significance. With this in mind, KBC organized in 2015 and continues to recruit individuals of influence in the national corporate and local community to participate in the building and growth of KBC's financial program through a Development Advisory Board (DAB). Obviously, the philanthropic world is very competitive and requires committed individuals who will not only contribute personally, but also serve as ambassadors to the community at large.

Key indicators as to progress being made with programs, fundraising, and mission development, are as follows. 1) The absolute number of participants is a direct measure of interest and impact, particularly in the Karing 4 Kids programs. These qualitatively serve the community KBC is trying to reach, and success is measured indirectly by demonstrating a growing number of participants. For example, the Holiday Party, an annual event, has grown to nearly 400 in 2015, from 200 in 2008. 2) The level of networking or community assistance with the Karing 4 Kids programs is a measure of KBC's growing partnership with community organizations and providers. The Orlando Ballet - Kids Beating Cancer Dance Program is an example of this type of success. 3) Positive response to programs is a strong indicator of success. The Food for Families Program has been overwhelmingly positively accepted. Numerous families have expressed their gratefulness for this reduction of the financial burden of having a child hospitalized for prolonged cancer treatment. 4) The sheer success of accomplishing the establishment of the Kids Beating Cancer Pediatric Transplant Center has been a measure of the long-term goal achievement of KBC that stands alone. Continued measure of that parameter is ongoing by the number of patients transplanted and treated in the Center, and the referring physicians and hospitals. Continuing to measure the number of children that are enabled to enter the transplant treatment process because of KBC's Fund the Match Program is a concrete measure of success in the achievement of long-term basic goals of the organization. Measurement of success in the field of philanthropy will rest with the success of the newly formed Development Advisory Board (DAB). Success will be measured by increase in the level of supporting funds raised by efforts and their circle of influence.

In regard to the discussion of recent progress toward long-term goals, we go back to the one overwhelming achievement, the establishment of the Kids Beating Cancer Pediatric Transplant Center. This is an example of success on many levels. The raising of funds going directly to patient care, i.e.: pre-transplant testing and treatment and using the relationship exemplified by that commitment to obtain a joint commitment from a powerful community resource (another words Florida Hospital for Children) to achieve a KBC goal is exemplified in the transplant center establishment. What this exemplifies going forward is that an organization such as KBC with limited resources, but great vision and commitment, can, through alliances with powerful resources, achieve objectives that would otherwise be impossible. Continuing to build these types of alliances with powerful local resources and organizations through the DAB will be a cornerstone of KBC's plan going forward. The continued support of programs such as the Karing 4 Kids, not only directly supports the population we serve, but underline the human aspects of what we do and serve as a foundation enabling us to reach out to the community for support to achieve goals that we can not accomplish alone.

External Reviews

Affiliations & Memberships

AFP (Association of Fundraising Professionals)

Chamber of Commerce

Financials

Kids Beating Cancer, Inc.

Fiscal year: Aug 01 - Jul 31

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Operations

The people, governance practices, and partners that make the organization tick.

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2016
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

Middle Eastern

Sexual Orientation

We do not display sexual orientation information for organizations with fewer than 15 staff.

Disability

We do not display disability information for organizations with fewer than 15 staff.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity