Epilepsy Services of SW Florida

Sarasota, FL   |  www.epilepsy-services.org

Mission

To assist all uninsured adults diagnosed with epilepsy in the agency's eight county region to obtain medical, case management and prevention and education services so that they may overcome the problems associated with the disorder and to assist them in achieving independence, self-sufficiency and their maximum potential.

Ruling year info

1995

Principal Officer

Mr. Kevin Lindberg

Main address

1750 17th Street Bldg. I-2

Sarasota, FL 34234 USA

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Formerly known as

Epilepsy Foundation of Southwest Florida, Inc.

EIN

59-3281492

NTEE code info

Human Service Organizations (P20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Direct Client Services

The Direct Client Services Program centers on medical treatment for the patient and helping the patient overcome the problems associated with epilepsy. When a patient is referred to us a case manager will conduct an intake interview to gather the patient's medical history and schedule an initial exam with a neurologist. The case manager will educate the patient about epilepsy, ways to manage seizures and epilepsy first aid. Generally the doctor will order certain tests such as an MRI, EEG and/or blood work and an individualized plan of care is prepared for the patient based on the test results. The patient will then attend clinics, have follow up appointments and further testing, as necessary. Meanwhile, the case manager may assist the patient with enrolling in Florida's Patient Assistance Program (which may allow them access to free or low cost medications) or work with other agencies to assist with other social or medical issues.

Population(s) Served

The prevention and education programs center on education of patients, their families, friends, employers, co-workers and the general public on epilepsy, seizure prevention and epilepsy first aid. The program encompasses many different forms of prevention and education activities from one-on-one meetings regarding the disorder and ways to prevent seizures to first aid and seizure recognition training sessions to bike helmet fitting events. A stigma is often associated with the disorder. Many times in public settings a seizure may be mistaken for mental illness or a drug-related incident. This leads many patients to feel uncomfortable and awkward in public and/or social settings and to be treated unfairly. Education of police, fire safety, first responders, nurses and other officials and the general public can not only save lives but can go a long way to creating a positive outcome and interaction where lack of knowledge and fear may previously have prevailed.

Population(s) Served

Where we work

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Accreditations

Florida Department of Health

Affiliations & memberships

United Way Member Agency

Financials

Epilepsy Services of SW Florida
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Operations

The people, governance practices, and partners that make the organization tick.

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Epilepsy Services of SW Florida

Board of directors
as of 10/19/2017
SOURCE: Self-reported by organization
Board chair

Mr. Matt Sandburg

Attorney

Term: 2017 - 2019

Art Jackman

State Attorney's Office - Felony Supervisor

Jay Abrams

Insurance Agent

Matthew Sandburg

Private Practice Attorney, Law Office of Matt Sandburg, P.A.

Lane Carlin

Neurologist, Florida Neurology Group, P.A.

Julie Aranibar

Community Volunteer

Jane Kelly

Community Volunteer

Marilyn Kirchman

Sarasota Memorial Hospital

Cynthia Smith

Smith Wealth Management

Maria Vasconsuelos

MedSol

Margaret Yurewitch

Newsbank