ZERO-THE END OF PROSTATE CANCER

ZERO Out Prostate Cancer

Alexandria, VA   |  https://zerocancer.org/

Mission

ZERO - The End of Prostate Cancer is the leading national nonprofit with the mission to end prostate cancer. ZERO advances research, improves the lives of men and families, and inspires action. We're building Generation ZERO, the first generation of men free from prostate cancer, through our national run/walk series, education and patient support programs, and grassroots advocacy.

Ruling year info

1998

President & CEO

Mr. Jamie Bearse

Main address

515 King Street Suite 420

Alexandria, VA 22314 USA

Show more contact info

Formerly known as

National Prostate Cancer Coalition

EIN

59-3400922

NTEE code info

Cancer (G30)

Alliance/Advocacy Organizations (E01)

Ambulatory Health Center, Community Clinic (E32)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

In the United States of America, one in nine men will be diagnosed with prostate cancer in his lifetime. This year alone, more than 31,000 men will die from the disease. We are aiming to end prostate cancer and create Generation ZERO - the first generation of men free from prostate cancer.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Support

ZERO – The End of Prostate Cance's patient navigation program, ZERO360, is a free service to help patients access benefits they are entitled to, find supplemental insurance, locate financial resources from charitable and other organizations, and find emotional support. With ZERO360, patients can receive assistance for finances such as utilities, travel and lodging for appointments, medication, and more.

ZERO believes in the importance of peer-to-peer support programs to help improve mental health outcomes for men diagnosed with prostate cancer and their loved ones. Peer-to-peer support programs at ZERO come in multiple forms including online and location specific. These groups allow men and caregivers affected by prostate cancer to gain emotional support by providing a safe place to discuss concerns, feelings and hardships experienced due to prostate cancer.

Population(s) Served
Men and boys

Through our education and awareness initiatives, ZERO educates and supports men and families across the nation. ZERO provides comprehensive educational resources through our website, www.zerocancer.org, monthly electronic newsletter, podcast, and other educational programming including webinars, videos, fact sheets, and brochures. Through the ZERO Prostate Cancer Run/Walk series – the largest men’s health event series in the nation – ZERO activates local communities and raises critical funds and awareness. Additionally, we reach men and families through our endurance and golf event series. Through the ZERO cancer Research Fund, we provide grants toward promising research that will accelerate new treatment options and distinguish aggressive from indolent disease.

Population(s) Served
Men and boys

ZERO has a strong presence on Capitol Hill and in local communities across the nation, advocating on behalf of prostate cancer patients and survivors for access to care and new treatment options. Every year, we bring dedicated advocates to Washington, D.C. to collaborate and share their prostate cancer stories with their legislators.

Population(s) Served
Men and boys

ZERO directly supports cutting-edge research that offers the best return on investment, with a track record of expediting life-saving treatments from the laboratory to patients.

Population(s) Served
Men and boys

Where we work

Awards

4 Star Rating 2021

Charity Navigator

Number of participants attending course/session/workshop

This metric is no longer tracked.
Totals By Year
Related Program

Education & Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

ZERO - The End of Prostate Cance has a yearly summit to educate attendees about prostate cancer diagnosis, treatments, survivorship, and advocating.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

ZERO — The End of Prostate Cancer is the leading national nonprofit with the mission to end prostate cancer. Losing a man we love every 17 minutes to prostate cancer is unacceptable. We envision a future with zero prostate cancer deaths and an end to pain and suffering from the disease. We are uniting men and families impacted by the disease to make ending it a national priority. By advancing research, improving lives, and inspiring action, we're building Generation ZERO, the first generation of men free from prostate cancer.

--Research - ZERO serves to protect and grow the largest resource of prostate cancer research funding in the nation. Now infusing $110M in research grants annually, the Department of Defense's Prostate Cancer Research Program (PCRP) has generated three new treatments for late-stage disease and a new genomic tool in the last six years. ZERO spearheaded the creation of the program 20 years ago and within the past year, grew the program by $10M by hosting the annual ZERO Prostate Cancer Summit - where passionate patients, survivors, family members, and loved ones gather in Washington, D.C. to fight for making prostate cancer research and access to care a priority within our federal government.
--Local Impact - Our Summit serves as a catalyst and helps drive action beyond D.C. back in local communities year-round. ZERO Chapters are building vibrant communities of advocates, activists, and volunteers - all champions who come together in the fight against prostate cancer. Established in several regions around the country, ZERO's Chapters are part of the fabric of these communities - offering education and support. We host our national ZERO Prostate Cancer Run/Walk, the largest men's health event series in America, in 40 cities across the country. Prostate cancer has a 99 percent survival rate when caught early and each event raises significant awareness and funds local research, education, and support programs. ZERO has granted more than $10M to support local organizations that work tirelessly to end prostate cancer.
--Support - Ending prostate cancer also means stopping the pain and suffering endured by millions of patients and their families. Fighting cancer is difficult enough. No man should also have to fight for adequate and affordable care. ZERO provides support programs, such as ZERO360, MENtor, ZERO Connect and more. These programs help alleviate the often devastating medical, financial, and emotional impacts that come with a prostate cancer diagnosis through direct assistance, case management, and community building. ZERO supports community partners to host free testing programs and manages a nationwide testing database while operating a patient navigator program where case managers give each patient comprehensive assistance.

--Research - With a vast and diverse network of cause champions, ZERO matches patients, doctors, researchers, and government agencies together to better understand the importance of research on improving health outcomes for the disease; assisting to direct research grants appropriately.
--Local Impact - The ZERO Prostate Cancer Run/Walk is a friendly welcome into local communities dedicated to raising awareness for prostate cancer. We invite those impacted by the disease to take an active role in each community through volunteerism at health fairs, mentoring newly diagnosed patients, and educating their networks about early detection. Our volunteers strive to be ZERO Champions - community leaders tasked with raising awareness and recruiting advocates.
--Support - With more than 80 percent of men saying they needed more help at diagnosis and 40 percent of patients not even knowing what stage of the disease they're in, ZERO launched the ZERO360: Comprehensive Patient Support program to provide free, customized assistance to men with prostate cancer. This unique program, the only case management program exclusively for men with prostate cancer, helps patients overcome access to care obstacles and understand their disease better. In complement to ZERO360, the organization, with its expert staff and medical advisory board, serves as a powerful and comprehensive resource for information from diagnosis to survivorship. Other ZERO programs, such as MENtor and ZERO Connect aim to build community and dialogue around this awful disease. Further, we invest in a variety of content to appeal to different audiences with videos, webinars, social media, brochures, fact sheets, e-newsletters, and podcasts.

With the hard work and passion from our champions, we have made amazing progress by reducing prostate cancer deaths by 35 percent since ZERO was founded in 1997 and tripled the relative 15-year survival rate to 76 percent.
Specifically, ZERO has:
-- Led advocacy efforts to create and infuse more than $1.5B in research funding for the Prostate Cancer Research Program (PCRP), which has generated three life-changing treatments for men living with advanced disease as well as a new genetic diagnosis profile to determine the status of aggressive disease.
-- Successfully fought for an additional $10M in PCRP funding for 2018 for a total of $110M, only the second increase since 2001.
-- Provided more than 50,000 patients with direct assistance to fight prostate cancer.
-- Launched and rapidly grew the ZERO Prostate Cancer Run/Walk into the largest men's health event series in the country with 40 events annually in fewer than 10 years.
-- Tested more than 140,000 men for free so they can know their risk.
-- Worked with the United States Preventive Services Task Force (USPSTF) to update its “D" recommendation on prostate cancer screening to a “C" which advises men to have a conversation with their doctor about the benefits and harms of prostate cancer screening.
-- Recruited and worked with dozens of partners, celebrities, key leaders, and communities to make prostate cancer a federal priority; prompting a national dialogue about the disease that engages families to take action.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    ZERO serves anyone who has been impacted by prostate cancer. Our audience includes prostate cancer patients, survivors, and their families, caregivers, and all populations who are at higher risk of the disease including Black and Brown community members and Veterans. ZERO works with volunteers, medical professionals, and researchers, and partners with advocacy and community organizations across the country to support and provide solutions for patients and their loved ones. ZERO also serves the general population with awareness and education resources to communicate risk factors and the importance of early detection and screening.

  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Case management notes, Community meetings/Town halls, Constituent (client or resident, etc.) advisory committees,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    The COVID-19 pandemic changed the landscape dramatically for our patient population. Patients shared with us the increased obstacles they were facing ranging from loneliness and isolation to increased financial burdens to lack of access to care and treatments. As we know, prostate cancer didn’t pause during the pandemic, so it was critical to provide direct resources to patients when they needed it most. Our main focus became informing our community about the many free support programs we offer to help them during these unprecedented times. Connecting patients with the financial, emotional, and physical support to let them know they were not alone was our top priority. Since April 2020, our comprehensive support program ZERO360 has provided more than $2.1M in debt relief for patients.

  • With whom is the organization sharing feedback?

    Our staff, Our board,

  • How has asking for feedback from the people you serve changed your relationship?

    Community feedback has always been a critical way for us to build meaningful relationships with those we serve. We hear most often from our inspiring Champions, a nationwide group of dedicated and passionate volunteer leaders who generously give both their time and money to support our mission. When the pandemic forced us to pivot our events virtually, we relied heavily on our Champions to drive our decision-making. We listened and implemented their ideas, which resulted in a higher engagement with our community. Our Champions played key roles in leading these events from producing their own videos, to serving as coaches in the run/walk event app, to inviting others to get involved. Having this collaboration and teamwork has only deepened our relationships and made our community stronger.

  • Which of the following feedback practices does your organization routinely carry out?

    We aim to collect feedback from as many people we serve as possible, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive,

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

ZERO-THE END OF PROSTATE CANCER
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ZERO-THE END OF PROSTATE CANCER

Board of directors
as of 03/01/2022
SOURCE: Self-reported by organization
Board chair

Thomas Bognanno

Jonathan Schwartz

Alicia Morgans

Robert Ginyard

Ed Lomasney

Tom Hulsey

Cheryl Nikituk

Tom Bognanno

Kelvin Moses

Brad Lerner

Don Slaght

Alan Goldman

Daniel Perkins

James Schraidt

Jon Poindexter

Karen Jauregui

Marty Chakoian

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 1/31/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 02/15/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.