SILVER2022

NEVUS OUTREACH INC

The Association for Large Nevi and Related Disorders

aka Nevus Outreach   |   Jonesboro, AR   |  www.nevus.org

Mission

Nevus Outreach is dedicated to bringing awareness, providing support, and finding cures for people affected by congential melanocytic nevi and related disorders.

Ruling year info

1997

CEO

Lauren Isbell

Main address

361 Southwest Drive #353

Jonesboro, AR 72404 USA

Show more contact info

EIN

59-3455128

NTEE code info

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

People born with a rare skin condition often feel alone. Doctors may not know what it is. Parents want to connect with other parents to ask questions and to see others who are facing the same challenges. Nevus Outreach deals with large congenital melanocytic nevi. Nevus Outreach is dedicated to bringing awareness, providing support, and finding cures for people affected by congenital melanocytic nevi and related disorders. Founded in 1997 by three families of people with giant nevi, Nevus Outreach has worked tirelessly to improve the lives of people with large nevi. The Board of Directors are located throughout the USA. Nevus Outreach is a 501(c)(3) nonprofit corporation headquartered in Jonesboro, Arkansas.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Raising International Awareness

Publishing informational literature, hosting a website with information about the condition, working with other nevus organizations worldwide to raise awareness on Rare Disease Day.

Population(s) Served
Adults

Education and connection for all ages. People from all over the world attend this conference.

Population(s) Served
Adults

Nevus Outreach funds research advancing science on congenital melanocytic nevi and related disorders such as neurocutaneous melanocytosis.

Population(s) Served
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of conference attendees

This metric is no longer tracked.
Totals By Year
Related Program

International Conference and Reunion

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

380 registered for the 2018 conference.

Number of clients served

This metric is no longer tracked.
Totals By Year
Related Program

Raising International Awareness

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

More people find us through the Internet and join the Facebook group for support. Over 5400 in 2019.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. Include as many people as possible at the International Conferences.
2. Create regional groups to connect people who live in geographic proximity.
3. Connect with people on social media to provide support for parents, family members and adults with the condition.
4. Raise awareness by participating in Rare Disease Day and using social media platforms to spread correct information.
5. Fund research projects seeking a cure for congenital melanocytic nevi and related disorders.
6. Connect with the worldwide nevus community.
7. Create Centers of Excellence which serve as regional experts in treatment of CMN and NCM.

1. The 12th biennial conference will be held in 2022, delayed two years due to COVID19
2. Serve as a member of the Naevus International organization.
3. Attend national and international meetings where giant nevi are discussed.
4. Advocate for rare disease funding.
5. Increase fundraising efforts throughout the nevus community.
6. Create a design and implementation of a regional model.
7. Raise funds for research.
8. Connect with worldwide experts to establish criteria for Centers of Excellence.

We have a 20-year track record of success and have made connections with others around the world who are dealing with this condition.

The board conducted a strategic planning session in 2021 and continues to take charge of their governance role.

Successful completion of 11 International Conferences.

Funding of multiple research projects since 1997.

Held 11 biennial international conferences.

Held international expert meetings in Tubingen and Marseilles.

Connect with over 5000 in a private Facebook group.

Helped fund the Gavin Bailey Tissue Repository where people can donate tissue for research.

Informational literature has been sent to all dermatologists in the US and is available for people with the condition.

Developed a network of regional support groups.

Next:
Establish Centers of Excellence
Establish an Awareness Campaign of International Scale.

Financials

NEVUS OUTREACH INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

NEVUS OUTREACH INC

Board of directors
as of 11/17/2022
SOURCE: Self-reported by organization
Board co-chair

Paul Coleman


Board co-chair

Jenna Conners

Joshua Imbeau

Mike Loehr

Joshua Saipe

Mark Sanchez

Merilee Vance

Jennifer King

Maggie Mangold

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No