The M.O.R.G.A.N. Project, Inc.

We champion the quality of life for children with disabilities!

Melbourne, FL   |  http://www.themorganproject.org

Mission

OUR MISSION: The M.O.R.G.A.N. Project is a national, community-based organization dedicated to promoting awareness and facilitating support of parents caring for their children with special health care needs. Our mission remains to champion the quality of life for children with disabilities by equipping their families with the tools and resources they need and by providing multi-sensory therapeutic enrichment activities for those with physical, cognitive and sensory challenges. Located in East Central Florida, we serve families nationwide.

Notes from the nonprofit

The M.O.R.G.A.N Project's mission is to provide support to parents of chronically ill, physically disabled children through used equipment exchange, guidance on diagnosis/treatment process, clinical study information, and much more. The M.O.R.G.A.N. Project website is a wealth of information about medical waivers, early intervention, and school services. MORGAN= Making Opportunities Reality Granting Assistance Nationwide. Every little thing that we have learned on our journey as Morgan's caretakers has come from another parent that has “already been there, done that" and we are better parents/caregivers/advocates as a result. We have learned from experience that this can make all the difference in the world to other parents who follow in our footsteps, and through The M.O.R.G.A.N. Project we hope to help light the way.

Ruling year info

2002

Founder & Executive Director

Kristen Malfara

Main address

4100 N Wickham Road Suite 107A-202

Melbourne, FL 32935 USA

Show more contact info

EIN

59-3744749

NTEE code info

Pediatrics (G98)

Brain Disorders (G48)

Autism (G84)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

There is a growing awareness that many activity and health disparities reported among children with disabilities are not a direct result of the disability or disorder, but rather a result of the challenges children with disabilities face in fully accessing the environment, community services and programs. Through thoughtfully planned environments and carefully selected play elements, communities can create opportunities to ensure that children of all abilities can be physically and socially active through play and recreation. Compared to the general population, research shows that children with physical, sensory, and cognitive disabilities have a substantially greater difficulty participating in regular activities that their able-bodied peers can. Our unique approach gives these children an appropriate place for expressive play and peer inclusion that simply does not exist elsewhere in our community.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Morgan's Legacy Gift

We offer small awards made in the form of new disability equipment (not cash) to families with a demonstrated need, and that have been unable to secure funding through insurance and/or Medicaid. In prior years we have provided adaptive bath/shower chairs and stipends for disease-specific parent support medical conferences. Please visit our website for a full description of our program as well as our minimum qualification criteria at www.themorganproject.org. This program is currently on hiatus due to the pandemic and will be reinstated in December 2020.

Population(s) Served

We facilitate a new/gently used disability equipment exchange program, where families that no longer have a need for an adaptive piece of equipment may donate to us, and we will in turn donate it to a family with a demonstrated need for the item. This program is offered free of charge to both the donor families and the recipient families. Please visit us online at www.themorganproject.org for a current listing of items in our inventory, as well as our online application for requesting an available piece of equipment or submitting a wish item request. This program is currently on hiatus due to the pandemic and will be reinstated in December 2020.

Population(s) Served

A comprehensive listing of useful resources for families caring for a loved one with a disability. Offered free of charge on our website, there is contact information as well as direct links to other organizations. This program is currently being updated.

Population(s) Served

We had initiated a unique therapeutic play option for children with special 
health care needs, allowing them the opportunity to learn and play in a facility that has been created
 specifically to meet the needs of these children with physical disabilities and/or various sensory processing 
disorders (Autism, etc.) and that will enable those with limited physical abilities and behavioral issues to enjoy healthy activities regardless of 
their limitations. Our state-of-the-art wireless indoor Sensorium and outdoor Garden Sensorium were alternatives to inaccessible playgrounds or "Chucky-Cheese" type play places, and both offered a multitude of wirelessly activated sights, sounds, smells, movement and touch equipment specifically designed for children of all abilities to utilize.

This program has been modified due to the pandemic and will be revised to bring these activities into the homes of families everywhere! Instead of coming to us, we are producing a series of do it yourself videos that we will release weekly, with each video dedicated to a specific sense and an activity that can be easily done in the home. These activities will embrace our decades of experience in the field of Snoezelen.

Population(s) Served

We had initiated a unique therapeutic play option for children with special 
health care needs, allowing them the opportunity to learn and play in a facility that has been created
 specifically to meet the needs of these children with physical disabilities and/or various sensory processing 
disorders (Autism, etc.) and that will enable those with limited physical abilities and behavioral issues to enjoy healthy activities regardless of 
their limitations. Our state-of-the-art wireless indoor Sensorium and outdoor Garden Sensorium were alternatives to inaccessible playgrounds or "Chucky-Cheese" type play places, and both offered a multitude of wirelessly activated sights, sounds, smells, movement and touch equipment specifically designed for children of all abilities to utilize. We also offered monthly Ask the Doc seminars at our facility on subjects related to disabilities.

This program has also been modified due to the pandemic and will be revised to bring these seminars into the homes of families everywhere! Instead of coming to us, we are producing a series of Ask the Expert videos that we will release every other week, with each video dedicated to a specific topic relevant to families caring for a loved one with disabilities. The videos will be moderated by professionals in the medical, therapy and legal fields.

Population(s) Served

Where we work

Accreditations

Charity Navigator 2001

Awards

VOICES 2007

Charming Shoppes and Montel Williams Show

All-Stars Among Us 2009

People Magazine and Major League Baseball

Women who make a Difference 2010

Longines and Town & Country Magazine

L'Oreal Women of Worth Semi-Finalist 2010

Points of Light Foundation

Classy Award 2012

2012 Classy Awards Finalist for Best New Charity

Affiliations & memberships

Alliance for Children and Families - Member 2009

National Organization for Rare Disorders - Member 1998

Points of Light Foundation 2008

The ARC of the United States 1998

The Grantsmanship Center (TGCI) 2001

Hands On Network 2006

National Organization for Rare Disorders - Member 1998

Points of Light Foundation 2007

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Total number of fields trips

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our program has become extremely popular with the exceptional education teachers in both the public and private schools in our community, as well as within the bordering 5 counties!

Total number of paid admissions

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Context Notes

Our clients are growing yearly. We were closed from 6/28/17-6/28/18 to recover from a devastating fire at our facility, and are just now starting to exceed our pre-fire levels of occupancy.

Total number of free admissions

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Our funding availability is the only limitation on this metric. We were closed from 6/28/17-6/28/18 to recover from a devastating fire at our facility, so these numbers will grow as funding comes in.

Number of accolades/recognition received from third-party organizations

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Morgan's Legacy Gift

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We again have earned accolades in our community by earning awards for both our Executive Director (AARP Volunteer Of The Year) as well as our organization (Daisy Awards, Stars of the Space Coast)

Average number of service recipients per month

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Pediatric Disability Equipment Exchange

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We were closed from 6/28/17-6/28/18 to recover from a devastating fire at our facility, and are just now starting to get back to pre-fire levels..

Number of new grants received

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Number of volunteers

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Number of clients served

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Total number of reduced fee admissions

This metric is no longer tracked.
Totals By Year
Population(s) Served

No target populations selected

Related Program

Multi-Sensory Enrichment Activities DIY Videos

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

We were closed from 6/28/17-6/28/18 to recover from a devastating fire at our facility, and are just now starting to get back to pre-fire levels..

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Enhance children's lives by providing access to quality necessary medical equipment, support families by awarding these products and services which improve the quality of their child's life, increase awareness of the need for funding and advocacy for special-needs children, build long-standing partnerships with other organizations in the community that share the same vision, expand and enhance our one-of-a-kind Interactive Multi-Sensory Enrichment Programs, establish a local parenting support network, and continue to conduct seminars and other educational programs to assist them in caring for their own children with special needs.

Time spent in a Multi Sensory Environment has been shown to increase concentration, focus attention, improve alertness, mobilization, creativity, social relations and communications, as well as general awareness of the surrounding world. The varied optical, acoustic, olfactory and tactile stimuli help hyperactive individuals concentrate and focus better. Multi Sensory Environments have not only provided alternative and powerful forms of sensory stimulation for individuals previously isolated in their perceptual disabilities, they have also managed to provide new ways of encouraging learning, motor development, cognitive development, language and social interaction skills. All of our programs are rooted in the cornerstone of multi-sensory play!

Although our world as we know it has drastically changed in the face of this unprecedented healthcare pandemic, our organization is uniquely situated and has a plan in place to continue to serve this vulnerable population in the post-Covid world. Through partnerships and in collaboration with other organizations in our community (working TOGETHER and not competitively), we will be expanding upon our protocols created in our Sensorium and instead of the clients coming to us, we will bring the sensory fun to them instead!

All of these partnerships offer us the opportunity to apply for collaborative grants, opening up yet another means of potential funding for our one-of-a-kind programs as well as increasing our reputation as being at the forefront of providing Quality of Life enhancement programs to these families raising children with special needs in the family home.

The organization's programs are the brainchild of an individual who has spent many years supporting the medically fragile community, and who has firsthand experience with the challenges faced by so many families of special-needs children. Specifically, she has become aware of the vast percentage of caregivers who find themselves in critical need of support regarding medical information and specialized equipment. The organization's core mission is to provide this support to parents and caregivers, and to act as a reference source for information, financial resources, used equipment exchanges, research and clinical studies, support groups, web links, and more. In order to achieve our mission, The M.O.R.G.A.N. Project has implemented programs which offer both access to necessary disability equipment and funding for products and services necessary to enhance the lives of medically fragile children. The organization will strive to ensure the future wellbeing and growth of clients by providing them with the resources necessary for future successes. Our efforts will be focused on those who are economically disadvantaged, and will include many individuals who come from diverse backgrounds. The organization's programs are created primarily to enhance the Quality-of-Life for children with special needs and the parents that son lovingly care for them in the family home. Our founder is well qualified for her position, having spent many years caring for her medically fragile son, Morgan, who has been her constant inspiration. Recently her efforts to improve the lives of medically fragile children with disabilities have been recognized nationally -
✴ In 2007 "Women on a Mission, Voices for Change" winner by Charming Shoppes andThe MONTEL Show,
✴ In 2009 "AllStar Among Us" by PEOPLE Magazine and Major League Baseball,
✴ In 2010 "Women who make a Difference" award from Longines and Town & Country Magazine,
✴ In 2013 "Humanitarian of the Year Award" by Space Coast Medicine and Active Living Magazine,
✴ In 2014 “Points of Light”, and "Children's Hero of the Year” sponsored by the Eckerd for Kids Foundation,
✴ In 2015 "Small Business Champion of the Year" by the Cocoa Beach Chamber of Commerce,
✴ In 2015 “Super Nova Award” from Brevard211,
✴ In 2016 “AARP Andrus Award” representing the state of Florida,
✴ In 2018 "Volunteer of the Year finalist" for Florida Today's Volunteer of the Year

We have initiated a unique inclusive option for children with special health care needs, allowing them the opportunity to participate in activities that all of us remember doing as a child! Traditions of childhood, such as sitting on Santa’s knee and telling him what we want for Christmas, participating in an Easter Egg hunt, as well as exchanging valentines with classmates and dressing up for Halloween are just a few of the incredible memories from childhood that we all hold onto so dearly and try to pass on to our own children. Our Traditions of Childhood Collaborative events recreate these moments and have been designed specifically to meet the needs of children with physical disabilities and/or various sensory processing disorders (Autism, etc.) and that will enable those with limited physical abilities and behavioral issues to enjoy regardless of their limitations. Our goal remains to offer these unique, one-of-a-kind multi-sensory programs to these families to ensure that ALL children within our demographics in our community will have equal access to our one-of-a-kind inclusive programs. Children with
Autism and related disabilities are an underserved population in our community that needs these programs!
We hope to be the leader in duplicating this philosophy of collaborative play nationwide!

Financials

The M.O.R.G.A.N. Project, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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The M.O.R.G.A.N. Project, Inc.

Board of directors
as of 9/17/2020
SOURCE: Self-reported by organization
Board chair

Sharon Jeavons

President

Term: 2015 - 2021

Sharon Jeavons

American Express

Kristen Malfara

Executive Director

Darren Scully

HLS Mortgage

Brenda Marvin

BB&T Bank

Mason Williams

Widerman & Malek

Julian Edelschick

Pediatrician

Jennifer Fitzgerald

Yacavone Therapy

Mike Moore

Accent Technologies

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 09/17/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female
Sexual orientation
Heterosexual or Straight
Disability status
Person with a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 09/17/2020

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.