FRIENDS & FAMILIES OF CYSTIC FIBROSIS INC

To give back a little of what CF has taken away.

Grand Rapids, MI   |  www.friendsandfamiliesofcf.org

Mission

Care packages for children when hospitalized. Assisting with medical supplies and equipment not covered by other resources. Contributing to lung transplant procedures. Assisting in funding medical equipment or needs of patients through local CF Care Centers. Supporting annual CF Education Day for CF Parents. As an organization, our goal is to help improve the quality of life for those suffering with cystic fibrosis and give them back a small piece of joy the disease has taken away. *Our group is not operated, nor funded by the Cystic Fibrosis Foundation.

Ruling year info

2003

President

Michelle Ripley

Main address

4765 Paramount Dr NE

Grand Rapids, MI 49525 USA

Show more contact info

EIN

61-1441199

NTEE code info

Lung (G45)

Digestive Diseases, Disorders (G70)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

With advancements in treatments, those with Cystic Fibrosis are living longer, therefore, we are helping the adult side a lot more and their needs, cost of living are greater and more expensive.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Care Package

Provide a personalized care package to CF children during their first stay at the CF Care Center at Helen DeVos Childrens Hospital.

Population(s) Served
Children and youth
Young adults

One day a year a seminar is held to give parents of CF children a chance to meet vendors of various medical equipment and services related to CF. FFofCF sponsors the event and helps to secure speakers such as lead researchers for drug trials and authors who have written books and/or articles related to CF.

Population(s) Served
Adults

Help CF patients with out of pocket cost related to specialized equipment not fully covered under insurance.

Population(s) Served
Children and youth
Adults

Where we work

Videos

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Raising awareness and funds for those living and dealing with Cystic Fibrosis on a daily basis.

Several events throughout the year, word of mouth and social media.

We are an all volunteer organization, so we work hard as a team on our events, but our time and resources are limited.

We have been able to help all those that have made reasonable requests for assistance. We will continue to plan events in order for us to achieve our mission to help those living with Cystic Fibrosis on a daily basis.

Financials

FRIENDS & FAMILIES OF CYSTIC FIBROSIS INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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FRIENDS & FAMILIES OF CYSTIC FIBROSIS INC

Board of directors
as of 08/23/2021
SOURCE: Self-reported by organization
Board chair

Michelle Ripley

Michelle Ripley

James R. VanOeffelen

Dematic Corp. NA

Diane Durand

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Not applicable
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 11/4/2019
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability