Chronic Disease Fund, Inc.

Effective Compassion

aka Good Days   |   Frisco, TX   |  https://www.mygooddays.org/

Mission

We help to pay the prohibitively costly insurance co-pays of life-extending and life-saving treatments for people otherwise unable to afford those treatments. Good Days offers patients and families additional financial help, emotional support, and guidance to the best available information and support for each specific disease state. While this delivery model for costly treatments is not perfect, it is the only avenue providing relief for hundreds of thousands of people who otherwise face debilitating daily routines and fewer days on earth. We strive to fill that role as transparently as we can, until the day a better model is in place. Our first and foremost focus is on the patient.

Ruling year info

2005

Principal Officer

Ms. Clorinda Walley

Chief Operating Officer

Mr. Randall Odebralski

Main address

2611 Internet Blvd. Suite 105

Frisco, TX 75034 USA

Show more contact info

EIN

61-1462062

NTEE code info

Cancer (G30)

Fund Raising and/or Fund Distribution (G12)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Access to care can be prohibitively costly particularly if you suffer from cancer or other chronic and rare conditions. For patients faced with an unexpected diagnosis, out-of-pocket costs can cause financial hardship and contribute to medical debt that leads to bankruptcy. As a result, chronic illness sufferers often must choose between treatments that are vital to their health and affording everyday necessities. Additionally, through our Chronic Disease Day initiative: Chronic disease accounts for 7 of the top 10 leading causes of death and more than 90% of annual healthcare spending in the U.S. Chronic Disease Day is an awareness campaign that uses people's stories and voices to advocate to lower the number of preventable illness, advance access to care for unpreventable conditions, and build healthier communities. Chronic Disease Day is led by Good Days and more than two dozen national chronic and rare disease nonprofit patient advocacy and assistance organizations.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Medication Co-Pay Assistance for the Underinsured

Our vision is a world in which no one has to choose between access to care and everyday necessities so that people can have more good days.
Our Mission - Good Days is a national non-profit charitable organization that lifts the burdens of chronic illness through assistance, advocacy, and awareness.
About Us - Good Days is a national non-profit advocacy organization that provides patient assistance and financial resources for life-saving and life-extending treatments to people in need.

Population(s) Served
Adults
Children and youth
Economically disadvantaged people

Where we work

Awards

Platinum Transparency 2021

Guidestar

America's Favorite Charities 2021

The Chronicle of Philanthropy

Impact Rated NonProfits 2021

Charity Navigator (Impact Matters)

Top 100 2021

The NonProfit Times

Top Rated 2021

Great NonProfits

Best Customer Service 2021

LiveHelpNow

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of underinsured patients provided access with healthcare resources.

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, People with HIV/AIDS, Adults, Children and youth, Retired people

Related Program

Medication Co-Pay Assistance for the Underinsured

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Since 2003, Good Days has provided more than 800,000 grants and helped more than 500,000 people with access to healthcare resources.

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Children and youth, People with diseases and illnesses, Economically disadvantaged people, Retired people

Related Program

Medication Co-Pay Assistance for the Underinsured

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Increasing

Context Notes

Annual total amount provided to patients in need.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Our vision is a world in which no one has to choose between access to care and everyday necessities so that people can have more good days.

Our Mission - Good Days is a national non-profit charitable organization that lifts the burdens of chronic illness through assistance, advocacy, and awareness.

About Us - Good Days is a national non-profit advocacy organization that provides patient assistance and financial resources for life-saving and life-extending treatments to people in need.
Good Days makes life-saving and life-extending treatments affordable.

Good Days supports many patients with chronic and rare conditions across the U.S. by covering costly co-pays, allowing families to receive treatment without destroying their finances.

In some cases, Good Days also provides additional financial assistance for health insurance premiums and treatment-related travel expenses. Thanks to our expert Patient Care Navigators, Good Days provides emotional support over the phone and can connect patients and families to disease-specific resources.

•Good Days offers patient assistance programs. Qualifying and enrolling takes less than 5 minutes and is often completed while you are at your doctor's office or pharmacy.
• Good Days strives to make enrollment and re-enrollment as simple as possible so patients can focus on their lives, given their extraordinary situation.
• Good Days is a conduit to additional emotional support through foundations and other organizations dedicated to helping those with specific life-altering conditions.
• Good Days is a non-profit, and as such operates in complete transparency.
• Good Days is here to help you, and will work as your advocate. We are dedicated to our patients. We strive to relieve the burden of paperwork for patients and families.
• Our Patient Care Navigators are invaluable wellness partners for the patients they serve.

Additionally, we apply the following strategies:
Explore on, build and establish partnership opportunities who share a common purpose of helping and supporting the chronic and rare diseases communities with access to care barriers.
Collect, address and leverage feedback to improve organizational objectives.
Optimize collaboration efforts across all Good Days initiatives.
Ensure full compliance

Good Days provides financial support for patients who cannot afford the treatment they urgently need. Good Days has streamlined the enrollment process so patients can receive immediate determination of eligibility for financial assistance.

Good Days offers numerous funds for individual disease states. The status of the fund for each individual disease state may change throughout the year—from open to closed or closed to open—as funds are drawn down or more money becomes available.

Through our Chronic Disease Day initiative, we lead the Chronic Disease Alliance along with more than two dozen
national chronic and rare disease nonprofit patient advocacy and assistance organizations.
Additionally, we Engage with policymakers and health officials on issues impacting the chronic disease community as outlined below
● More than 30 governors officially proclaim July 10 as Chronic
Disease Day annually
● State and local health agencies promote Chronic Disease Day
content
● Members of Congress and their staff attend Capitol Hill Luncheon
and Len Rodgers Spirit Award
● Landmarks light up orange on July 10 across the country
including in New York City, Boston, Little Rock, Minneapolis,
Dallas, Houston, Honolulu and more

Since 2003, Good Days has provided more than 800,000 grants and helped more than 500,000 people with access to healthcare resources. In 2020, our programs supported greater than 236,000 individual patients with access to care resources.

Good Days regularly partners with leading healthcare organizations and advocacy groups to raise awareness and provide additional patient support wherever possible.

Good Days will continue to serve as a safety net for patients who find they are underinsured when faced with an unexpected diagnosis as well as continue to explore new ways to provide more holistic patient support.

We also continue to champion and grow our Chronic Disease Day imitative as outlined below:

State and city governments, national patient advocacy groups, and local communities across America came together on July 10 to recognize Chronic Disease Day with Good Days in support of chronic and rare disease communities during a time of unprecedented challenges for individuals who are immunocompromised.

With more than 133 million Americans suffering from at least one chronic illness, Chronic Disease Day helps raise awareness about the impact of chronic disease in America and equips people with the knowledge and resources to take action to reduce the risk of chronic disease.

More than 30 governors and numerous leading patient advocacy groups join us in recognizing this important national awareness day.
Good Days hosted a live streamed virtual educational webinar featuring special guest speakers including the Director of the National Institute on Minority Health and Health Disparities Dr. Eliseo J. Perez-Stable and Congressman Joe Kennedy.
Grassroots supporters across the country joined our “I Stay Strong For…” social media campaign to share who gives them strength as they cope with chronic illness.
At ChronicDiseaseDay.org, we made available a suite of public health resources that are free to access and watch.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.
  • Who are the people you serve with your mission?

    Good Days is a national non-profit advocacy organization that provides financial resources and patient advocacy for lifesaving and life-extending treatments to people in need that are affected by chronic and/or life-altering illnesses.

  • How is your organization collecting feedback from the people you serve?

    SMS text surveys, Electronic surveys (by email, tablet, etc.), Paper surveys, Case management notes, Community meetings/Town halls, Suggestion box/email, Social Media Platforms,

  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals,

  • What significant change resulted from feedback?

    The development and rollout of our new Reimbursement App. It is available in the Apple and Google app stores. It was creates to improve the convenience and turnaround time in patients submitting claims for reimbursement. Additionally, we have enhanced our chat, SMS (text) and email offerings to better provide more efficient avenues of communication for those that we serve. This was especially beneficial for those that we serve during the pandemic.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our funders, Our community partners,

  • How has asking for feedback from the people you serve changed your relationship?

    Feedback is essential to ensure that we are continuing to provide the highest level of service to those we serve as expected through our organization's culture and all regulatory and compliance requirements. By asking and receiving feedback, we are able to establish improved communication, consistency, transparency and trust with our internal and external clients/customers.

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded,

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback,

Financials

Chronic Disease Fund, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Chronic Disease Fund, Inc.

Board of directors
as of 04/27/2022
SOURCE: Self-reported by organization
Board chair

Honorable Glen Ashworth

Gary Barton

Dr. David Levine

Seth Kamber

Nhat Nguyen

Walgreens

Tricia Freels

Good Days

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 4/6/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
Multi-Racial/Multi-Ethnic (2+ races/ethnicities)
Gender identity
Female
Disability status
Person without a disability

The organization's co-leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male

Race & ethnicity

Gender identity

 

Sexual orientation

No data

Disability

No data

Equity strategies

Last updated: 04/06/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We disaggregate data by demographics, including race, in every policy and program measured.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.