PLATINUM2024

American Association of Caregiving Youth, Inc.

aka AACY   |   Boca Raton, FL   |  www.aacy.org

Mission

Core Values of AACY – Collaboration, Compassion, Empowerment, Innovation, Responsiveness Vision of AACY – we envision a nation where the lives of caregiving youth are understood, appreciated, and celebrated on their individual path to life’s dreams and opportunities. Mission of AACY – we champion youth, who care for chronically ill, injured, elderly or disabled family members, support their role as caregiver, safeguard and celebrate their success in school and life.

Notes from the nonprofit

The American Association of Caregiving Youth (AACY) is the only organization in the U.S. dedicated solely to addressing all Caregiving Youth issues no matter the circumstances of those who they care for, (non-disease specific). AACY inclusively serves Caregiving Youth and their families of all ethnicities, countries of origin, income levels, gender identification, health conditions, disability, sexual orientation, marital status, and religions. We respect and demonstrate equality along with racial and social equity as we honor human dignity that is exemplified by our Core Values of Collaboration, Compassion, Empowerment, Innovation, and Responsiveness. The term "Caregiving Youth" was first introduced in the USA by the American Association of Caregiving Youth.

Ruling year info

1999

President and Founder

Dr. Connie Siskowski RN, PhD

Main address

6401 Congress Ave Suite 200

Boca Raton, FL 33487 USA

Show more contact info

Formerly known as

Volunteers for the Homebound & Family Caregivers

Boca Raton Interfaith in Action, Inc.

EIN

65-0866677

NTEE code info

Children's and Youth Services (P30)

Single Organization Support (W11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

AACY is the only US organization that is solely dedicated to unrecognized and vulnerable children who sacrifice their education, health, well-being and childhood to provide care for family members who are ill, injured, elderly or disabled. AACY works with systems of healthcare, education and community. Locally, the professional team of the Caregiving Youth Project supports student-caregivers in school, out of school and at home where families are also strengthened. With support from grade six through high school, Caregiving Youth learn they are no longer alone, reduce their isolation, manage stress, improve grades and progress to the next grade level, graduating from high school at rates greater than 98% and far exceeding the County average. Furthermore, more than 91% go on to post-secondary education. The success of the Project has spawned relationships and partnerships in locations throughout the country as well as the establishment of the Caregiving Youth Institute.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Caregiving Youth Project (CYP)

Responding to the psychosocial, developmental and academic challenges caregiving youth face, the Caregiving Youth Project (CYP) partners with schools and provides professional services in and out of school, and at home to strengthen student-caregivers and their families. Its model addresses ramifications which hinder well-being while producing economic and societal value to the student and family. The CYP also provides academic support including tutoring, respite, and mentoring for youth in preparation for graduation, post-secondary education and next steps to achieve future goals.

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Population(s) Served
At-risk youth
Caregivers

(CYI) is raising the level of awareness of the multi-system needs of caregiving youth along with solutions for their support through the multiple initiatives of C.A.R.E.
(Connection, Advocacy, Research, and Education). Through it the Caregiving Youth Research Collaborative has formed in partnership with the University of NC at Chapel Hill. There are professionals from nine universities who are members of the Collaborative

Population(s) Served
Caregivers
Students

The outreach initiatives of AACY include:
• National Advisory Council to provide expertise, perspective, robust guidance and direction on the development and execution of innovative resources to support Caregiving Youth
• The Caregiving Youth Institute to C.A.R.E. – Connect, Advocate, Research (including its Caregiving Youth Research Collaborative), Educate
• A growing Affiliate Network as a nonprofit franchise model
• National Partnerships – nonprofit and corporate including Cariloop, Hidden Helpers, National Alliance for Caregiving, Caregivers Action Network, etc.

Population(s) Served
Ethnic and racial groups
Caregivers
Families
At-risk youth
Economically disadvantaged people

Where we work

Awards

Purpose Prize 2009

Civic Ventures

Fellowship 2009

Ashoka

Top Ten CNN Heroes 2012

CNN Heroes

Affiliations & memberships

NonProfits First 2020

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Percent of high school graduates who pursue post-secondary education.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups, Ethnic and racial groups, Family relationships, Social and economic status, Health

Related Program

Caregiving Youth Project (CYP)

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

Nearly 90% of Caregiving Youth high school graduates enter college or other post-secondary opportunity including the military; more are working to help their family financially.

Number of program participants who receive a secondary school diploma or GED

This metric is no longer tracked.
Totals By Year
Population(s) Served

Age groups, Ethnic and racial groups, Family relationships, Health, Social and economic status

Related Program

Caregiving Youth Project (CYP)

Type of Metric

Outcome - describing the effects on people or issues

Direction of Success

Holding steady

Context Notes

The average over nine years is 98.1% based on 467 graduates among 476 active Caregiving Youth Project high school seniors!

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

AACY's ultimate goal is for no child in the US to have to drop out of school to provide care for family members. Family health situations impact children more than most people understand. This includes health professionals, educators and legislators.So what happens in families when there is no adult available? Perhaps mom or dad is working, ill or it is a single parent/grandparent household and that person gets sick? Children must step up to the plate! For most families, this works. For others, due to the types of illnesses, the severity or length of time of the condition or disability, the financial resources or the number of family members impacted, the responsibilities become overwhelming. A child has no experience bank. All caregiving families need support; especially those in which there are caregiving youth.The AACY created the Caregiving Youth Project (CYP) as a replicable model program to:1) Identify and prioritize caregiving youth beginning in sixth grade according to the types of care they perform and the time they spend in these responsibilities;2) Provide needs-driven support services in school, out of school and at home; 3) Strengthen the family with community resources to reduce their stress, anxiety, isolation and thus reduce the burden on the caregiving youth; and4) Protect the health and improve the overall well-being of the caregiving youth so he/she completes high school (at least!) and becomes a healthy, productive adult.In partnership with schools, AACY promotes social and system change by integrating healthcare (body), education (mind) and the community (spirit) to create a solid foundation of services. The impacts of the CYP are many and are exponential for the whole family. Members remain in school as confirmed by students, families and school records. Students report that they are earning higher grades and are feeling more confident in their caregiving and personally. They know they are no longer alone and have established friendships and remain connected with the CYP through high school as they learn how to prepare for their own futures. More than anything else, CYP youth want other caregiving youth to be given the opportunities and support they have received.
With its success AACY is in the process of establishing significant national partnerships, educating legislators who wish to introduce legislation to support teen caregivers and furthering an affiliate network as a nonprofit franchise model to assist its own sustainability as well as to reach more caregiving youth.

1. As resources are sought and realized, expand the Caregiving Youth Project in Palm Beach County to the north and to the west. A satellite office will be established with financial help from The School District, County and others. The initial focus is on Title I middle and high schools. Meanwhile, The School District is creating "go to" caregiving youth contact persons in each middle and high school and purchasing copies of a book for which AACY contributed, "I'm a Teen Caregiver. Now What?"
2. Further the work of the Caregiving Youth Institute with holding and participating in conferences to educate the public and professionals. The Caregiving Youth Research Collaborative (CYRC) is formulating several multi-site research projects as well as local initiatives in various states, especially, CA, NC and WI.
3. Educate and encourage legislators to include caregiving by youth in legislation and policy. A FL State Senator, Lori Berman is becoming the Caregiving Youth Champion to introduce legislative support in this state. Two PA Congressman are developing legislation to introduce bills to support teen caregivers.
4. Reach child caregivers in military families through a relationship with the Elizabeth Dole Foundation and listing on their website for Hidden Heroes. AACY is also partnering with other Veteran related organizations including Connected Warriors,
5. Develop the AACY Affiliate Network and appropriate partnerships with leadership from the AACY National Advisory Council. One such strategy is through a Workforce Development project with Leading Age. So far in 2018, there are two new affiliates, one in AZ and the other in PA with a possible second in PA.
6. Utilization of structured social media messaging and resources to maximize raising awareness. A dozen new minute videos have been created including youth, parents and AACY team members to assist with messaging.

To reach our short term goals and the long-term goal for no child in the US to have to drop out of school to provide care for family members, AACY's core assets include:
*Long-standing organization leadership including its Board of Directors, credentialed staff and dedicated volunteers and an operations environment which fosters continued process improvement
*The developing national presence through the National Advisory Council, affiliate network and opportunities to present data at conferences to educate and engage others in expanding their resources to serve this population
*Multi-media exposure including nationally through the NY Times, The Hill, CNN, ABC TV news feature and most recently Vice HBO news clip which has had in excess of 2.2 million views on all social media channels.
* Reaching yet untapped markets such as mommy bloggers, businesses practicing corporate social responsibility along with themed giving and naming opportunities such as with the Caregiving Youth Institute development.

AACY has solely dedicated itself to caregiving youth since January of 2010. The Caregiving Youth Project began at one middle school in the Fall of 2006 and is now in 35 middle and high schools. It has assisted more than 2100 youth caregivers and their families in Palm Beach County. Furthermore it has:
*Established credibility as the national leader in this field as demonstrated by engagement with universities, media, community, government, School Board, healthcare providers and other collaborating partners
* Long-standing organization leadership including credentialed staff and dedicated volunteers and an operations environment which fosters continued process improvement
*Significant CYP enrollment, progress and multiple case studies demonstrate track records of successes including high school graduation rates nearly 20 percent greater than the comparable demographic population in Palm Beach County
*Multi-media exposure including nationally through the NY Times, The Hill, CNN, ABC TV news feature and most recently Vice HBO news clip which has had in excess of 6 million views on all social media channels.

Financials

American Association of Caregiving Youth, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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American Association of Caregiving Youth, Inc.

Board of directors
as of 01/31/2024
SOURCE: Self-reported by organization
Board co-chair

Mrs. Debralyn Belletieri

Strikes Cigar Lounge

Term: 2020 - 2024


Board co-chair

Mr. Jeffrey Gordon, Esq.

Lesser, Lesser, Landy & Smith

Term: 2021 - 2023

Rosie Martin

Allegiance Home Health

Isabel Parrado

Retired Counselor

Debralyn Belletieri

Strikes Cigar Lounge@Boca

Jeffrey Gordon, Esq

Lesser, Lesser, Landry & Smith

Daniel Polen

Photo & Go

Gail Eagle

Marketing/Publishing Consultant

Connie Siskowski

AACY

Althea Ceasor

US Trust

Angela Stevenson

AvalonBay Communities

Patrick Ahern

Supplemental Health Care

Karen Brill

School Board of Palm Beach County

Scott Gottlieb, CPA

Gottlieb CPA

Dominique Renaud

Allegiance Home Health & Rehab

Romeo Siquijor

Cemex USA

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 12/8/2022

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.