Pulmonary Hypertension Association Inc

Empowered by hope

aka PHA   |   Silver Spring, MD   |  http://www.PHAssociation.org

Mission

The mission of the Pulmonary Hypertension Association (PHA) is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.

Ruling year info

1999

President & CEO

Mr. Matt J. Granato , LLM, MBA

Main address

8401 Colesville Rd Ste 200

Silver Spring, MD 20910 USA

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EIN

65-0880021

NTEE code info

Lung (G45)

Alliance/Advocacy Organizations (G01)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Empower Patients and Caregivers

• Provide volunteer opportunities, training, support and other resources to help and empower patients, caregivers and families of children living with PH.
• Host in-person, telephone and online support group and peer-to-peer meetings that offer those living with PH at different stages of their journey the knowledge, support, hope and empowerment they need to thrive.
• Strengthen and empower the PH community through the PHA 2020 International PH Conference and Scientific Sessions, regional meetings and online educational opportunities.
• Provide adult and pediatric PH patients, caregivers and families of children living with PH with the knowledge they need to successfully manage their disease from newly diagnosed to long-term survival.
• Enhance communications efforts to remain the primary resource for trusted, timely and actionable information for the PH Community.

Population(s) Served
People with diseases and illnesses
Caregivers
Adults
Children and youth

• Raise awareness among the public, health care professionals, policy makers, influencers and elected officials about adult and pediatric pulmonary hypertension (PH) patients’ needs, research priorities, and the impact of health care policies on access to care and quality of life.
• Educate and influence payers, policy makers, regulators and agencies at the federal and state levels on behalf of PH patients and the health care community to reduce barriers to care and to increase NIH and other funding for PH.
• Amplify the voice and impact of the PH community in affecting health care policy.

Population(s) Served
Adults
Children and youth
People with diseases and illnesses
Economically disadvantaged people

• Provide grants for innovative adult and pediatric research projects .
• Support the next generation of physician-researchers and scientists focusing on adult and pediatric PH through fellowships, young investigators’ awards, and early career grants.
• Collaborate with PH and associated disease patients, health and science professionals, government, and other organizations, to advise and gather new knowledge and information to share with the PH community.

Population(s) Served
Researchers
People with diseases and illnesses

• Educate health care professionals and researchers treating adult and pediatric PH patients.
• Increase access to quality PH care through a nationwide network of accredited adult and pediatric PH comprehensive care centers and regional clinical programs.
• Facilitate improvements in adult and pediatric PH patient care, research, and education by collecting, maintaining, and analyzing data in an observational patient data registry.

Population(s) Served
People with diseases and illnesses
Adults
Economically disadvantaged people
Children and youth
Researchers

Where we work

Accreditations

Charity Navigator 2014

Better Business Bureau Wise Giving Alliance 2014

Awards

Most Improved Newsletters - Pathlight 2010

APEX (Awards of Publication Excellence)

Most Improved Web & Intranet Sites - www.PHAssociation.org 2010

APEX (Awards of Publication Excellence)

Gelman, Rosenberg & Freedman Excellence in Chief Executive Leadership (EXCEL) Award - Rino Aldrighetti 2007

Center for Non-Profit Advancement

Award of Excellence in Design & Illustration: Calendars, Posters & Certificates 2011

APEX (Awards of Publication Excellence)

Abbey S. Meyers Leadership Award 2012

National Organization for Rare Disorders (NORD)

Financials

Pulmonary Hypertension Association Inc
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Pulmonary Hypertension Association Inc

Board of directors
as of 6/1/2021
SOURCE: Self-reported by organization
Board chair

Mrs. Colleen Brunetti

Michael McGoon

Physician, Professor of Medicine, Mayo Clinic

Tony Lahnston

Director of Operations, Tropical Nut and Fruit

Edwin Simpson

Professor Emeritus, College of Education at Northern Illinois University

Judith Simpson

No Affiliation

Traci Stewart

Nurse Clinician Specialist, Cardiomyopathy Treatment Program at the University of Iowa

Diane Ramirez

Advocacy Chair, Piedmont North Carolina Support Group, Lexington, N.C.

Karen Fagan

Associate Professor and Chief of Pulmonary and Critical Care Medicine University of South Alabama

Melisa Wilson

Pulmonary Hypertension Coordinator, Orlando Regional Medical Center

Jessie Kohler

Attorney

Nicole Creech

Cheryl Abbot

Lead Clinical Research Coordinator, University of Colorado

Frank Cann

Owner, FH Cann & Associates

Murali Chakinala

Professor of Medicine, Washington University

Colleen Connor

Ramona Doyle

Physician, UCSF

Anna Hemnes

Associate Professor, Vanderbilt University Medical Center

William Hoff

Kimberly Jackson

Nurse, University of Kentucky Medical Center

William Jansen

Managing Director, Commonfund Securities

Mitch Koppelman

Minerals Technologies

Ron Oudiz

Physician, Harbor-UCLA

Monica Penaranda

Doug Taylor

Matt Wall

Construction Manager, DPR Construction

Michelle Liu

Greg Elliott

Physician, Intermountain Medical

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No