PLATINUM2023

National Alliance for Eating Disorders

The leading national organization providing eating disorder help, support, and education.

aka The Alliance   |   West Palm Beach, FL   |  http://www.allianceforeatingdisorders.com

Mission

The National Alliance for Eating Disorders ("The Alliance") is the leading national non-profit organization providing education, referrals, and support for all individuals experiencing eating disorders, as well as their loved ones.

Ruling year info

2001

Founder/CEO

Ms. Johanna Kandel

Main address

4400 N Congress Ave., Ste 100

West Palm Beach, FL 33407 USA

Show more contact info

EIN

65-1080905

NTEE code info

Eating Disorder, Addiction (F53)

Alliance/Advocacy Organizations (F01)

Mental Health Association, Multipurpose (F80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

At least 30 million Americans will battle an eating disorder during their lifetime. Eating disorders are devastating, biologically-based mental illnesses that know no bounds, affecting individuals regardless of their race, socioeconomic status, gender, sexual orientation, or body shape and size. Every 52 minutes someone dies as a direct result of their eating disorder, giving them the 2nd highest mortality rate of any psychiatric illness. Unfortunately, one of the leading causes of death for those experiencing eating disorders is suicide. An individual with anorexia nervosa is 31 times more likely to have completed suicide relative to their peers. Furthermore, 94% of women with eating disorders also suffer from other comorbid mood disorders. The National Institute of Health reports eating disorders are more common than Autism and Alzheimer’s disease, more deadly than drunk driving, and more costly than depression and anxiety.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

General Information about The Alliance

The Alliance is the leading national organization providing support, referrals, and education for all eating disorders. The Alliance offers accessible, comprehensive services, including:

- free, weekly, therapist-led support groups for those struggling and for their loved ones;
- educational presentations to schools, healthcare providers, hospitals, treatment centers, and community agencies;
- support and referrals through findEDhelp, our free, comprehensive help-line, website, and smartphone apps;
- unique and empowering scale smashing events and SmashTALK panel discussions nationwide;
- advocacy for eating disorders and mental health legislation; and
- low-cost, life-saving outpatient treatment to underinsured and uninsured adults in south Florida

Population(s) Served
Adults
Children and youth
Family relationships
Health
Sexual identity

The Alliance offers an extensive array of outreach and education programs, addressing eating disorders and co-occurring issues, to a variety of groups, including but not limited to healthcare providers, clinicians, treatment providers, and community organizations. The Alliance is able to offer continuing education units for many licensed physical and mental health professionals.

The Alliance is also committed to increasing education and awareness through educational presentations in schools, on college campuses, and in a variety of educational settings.

Population(s) Served
Adults

The Alliance is committed to the improvement of education, outreach, treatment, and research of eating disorders. Through meeting with elected officials in the nation’s capital and in numerous state capitals, The Alliance engages in various events to advocate for policies that may positively impact individuals experiencing eating disorders and other mental health issues.

The Alliance is a proud member of the Leadership Circle of The Eating Disorders Coalition (EDC). In the Fall of 2020, The Alliance’s Founder & CEO, Johanna Kandel, was appointed to the Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC), to represent people with lived eating disorder experience. The ISMICC has been tasked with improving federal coordination of efforts that address the pressing needs of adults with serious mental illness, and children and youth with serious emotional disturbance.

Population(s) Served
Adults

The only program of its kind in the nation, Psychological Services provides outpatient therapy to disenfranchised people in South Florida, for as little as $5/session.

Using evidence-based, data-driven research and best practices, and under the guidance of experienced clinical supervisors, Psychological Services trains two Postdoctoral Fellows each year in the complexities of eating disorders. There is no limit to how long clients may remain in the program, nor is there a limit to how often they may receive care.

Psychological Services provides low-cost, outpatient individual, couples, and family therapy, as well as therapeutic skills groups. Fee for service is based on a sliding scale, with no clients paying more than $25/session. No one is ever turned away due to the inability to pay.

Population(s) Served
Adults

The Alliance is the only national organization to offer free, weekly, therapist-led, in-person and virtual support groups for adults experiencing/recovering from eating disorders, as well as for their loved ones.

The support groups offered by the Alliance allow group members to reach their full potential by working through the struggles of their illness in order to move forward into a life of recovery.

All Alliance support groups are facilitated by licensed therapists who are specialized in the treatment of eating disorders. The Alliance offers Pro-Recovery, LGBTQ+ Pro-Recovery, Friends & Family, and Mom2Mom support groups.

Population(s) Served
Adults

Founded by McCall Dempsey, Southern Smash, a program of The Alliance, brings unique and empowering scale-smashing events and SmashTALK panel discussions to campuses and programs nationwide. Poor body image and negative self-talk have sadly become a cultural norm, but through innovative and engaging activities, Southern Smash fills a silent void by literally smashing the stigma associated with eating disorders and mental health.

Southern Smash programs educate the public about eating disorders and empower individuals to celebrate self-love.

Population(s) Served

The Alliance operates the nation’s largest and most comprehensive database of eating disorder treatment providers and programs, findEDhelp. To make the process more effective, we created the nation’s most robust, comprehensive, and inclusive referral database, findEDhelp. In an effort to further remove barriers to care, there is not a charge for providers to be listed in the database.

Our national, interactive database includes eating disorder treatment options at all levels of care. You can search based on specific criteria including zip code, populations treated, accepted insurance plans, treatment modalities, and levels of care offered. Further customization is even available to include what comorbid diagnoses can be treated; number of patients in programming; nutritional philosophies; and number of individual sessions offered each week.

Population(s) Served

Our helpline is run by licensed therapists specialized in eating disorders, and are here to help. Our free referrals, for all levels of eating disorder treatment and care and are based on the appropriate level of care needed, insurance coverage, co-occurring diagnoses, and more. Each individual seeking eating disorder care deserves personalized help. There are so many variables to be considered when searching for specialized care.

For assistance in finding appropriate eating disorder treatment options, please call our toll-free number at 866-662-1235 or email us at [email protected]. We can provide referrals to all levels of care from eating disorders specialized therapists and dietitians to acute medical stabilization.

The helpline is open from 9:00 am – 7:00 pm EST (M-F), and if not immediately available, we will return your call as soon as possible.

Population(s) Served
Young adults
Adults
Children and youth
Young adults
Adults
Children and youth

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients participating in support groups

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Support Groups

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Alliance is the only national organization to provide free, weekly, therapist-led support groups (in-person ad virtually) for individuals experiencing eating disorders and for loved ones.

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses

Related Program

Support Groups

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Alliance provides free, weekly, therapist-led support groups in communities nationwide and virtually. (In 2020 & 2021, due to the pandemic, all in-person groups were temporarily closed)

Number of therapy hours provided to clients

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with diseases and illnesses, Economically disadvantaged people

Related Program

Psychological Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Alliance's Psychological Services provides outpatient specialized therapy for individuals who are uninsured/underinsured in south Florida.

Number of direct care staff who received training in trauma informed care

This metric is no longer tracked.
Totals By Year
Population(s) Served

Economically disadvantaged people, People with diseases and illnesses

Related Program

General Information about The Alliance

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

The Alliance's clinical and non-clinical staff participate in mandatory educational trainings on a variety of topics, including but not limited to trauma-responsive care.

Number of clients participating in educational programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Students, Emergency responders

Related Program

Education & Outreach

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Alliance offers educational trainings for clinicians, students, professionals, medical providers, treatment centers, and more.

Number of referrals to resources offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with diseases and illnesses, Families, Economically disadvantaged people

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The Alliance's findEDhelp is the only free database of eating disorder-specialized clinicians and healthcare providers.

Number of attendees present at rallies/events

This metric is no longer tracked.
Totals By Year
Population(s) Served

Young adults, Adults, Students

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Southern Smash, a program of The Alliance, brings innovative and unique scale smashing events, SmashTALK panel discussions, and more to college campuses nationwide.

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

While eating disorders affect people from all walks of life, less than one third of those suffering will seek treatment for their eating disorder. The primary barriers are affordability, provider expertise, and stigma. Although issues surrounding mental health are becoming less stigmatized, many people experiencing eating disorders still often feel shame and guilt, due partly to the lack of knowledge about eating disorders. By making care more accessible and affordable for individuals in need, and by training medical and mental health workers on screening and treatment for eating disorders, we will continue to see a reduction in disease symptomology -- and we will continue to save lives. Full recovery from eating disorders is possible, and we are working every day in communities to help individuals continue their path to recovery.

Through educating medical providers and mental health workers across disciplines and specialties, we will continue to see early detection and proper, holistic treatment of eating disorders. Through educating young people on health body image, self esteem, and the dangers of eating disorders, we will help prevent illness and will reduce the stigma surrounding mental healthcare. By providing clinician-led support groups and affordable, outpatient therapy, we directly impact people living with, recovering from, and recovered from eating disorders, offering them safe environments and tools for success. By advocating for legislation which increases mental health coverage and reduces barriers to care, we will ensure more individuals with eating disorders have access to the specialized care they deserve.

The Alliance is a national leader in the prevention and treatment of eating disorders. Our dedicated staff works year-round to ensure the secrecy and stigma surrounding eating disorders is eliminated, and to empower individuals on their own paths to recovery.

In 2021 thus far*, The Alliance made more of an impact than ever before, including:
- 16,953 individuals attended an Alliance support group
- 29,415 education and training program attendees
- 163,398 referrals for all levels of eating disorder care via our therapist-staff helpline, website, and apps
- 2650 hours of low-cost, outpatient therapeutic care to uninsured/underinsured South Floridians

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback, The people we serve tell us they find data collection burdensome, It is difficult to find the ongoing funding to support feedback collection

Financials

National Alliance for Eating Disorders
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Operations

The people, governance practices, and partners that make the organization tick.

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

National Alliance for Eating Disorders

Board of directors
as of 08/23/2023
SOURCE: Self-reported by organization
Board chair

Mrs. Judy Rifkin

Arthur Fox, CPA

Arthur Fox, CPA

Lorraine Mari, PhD

Licensed Clinical Psychologist

Rebecca Seelig

Palm Beach Public Relations

Cherie Monarch

Gillott-Monarch Appraisal Group, Inc

Gillian Bush, PsyD

Private Practice

Nicole Carlisi, LMHC

Private Practice

Leah Wypych, MPA

ViaMar Health

Alicia Paulino-Grisham, Esq.

DI Law Group

Erica Waldron, LMHC

Private Practice

Frank Valente

Humane Society of the Treasure Coast

Margherita Mascolo, MD

Alsana

Allison Walsh, JD

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 8/23/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

Equity strategies

Last updated: 10/06/2020

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.