PLATINUM2023

SCLERODERMA RESEARCH FOUNDATION

Research is at the center of all we do.

aka SRF   |   San Francisco, CA   |  www.srfcure.org

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Mission

The mission of the Scleroderma Research Foundation is to fund and facilitate the most promising, highest quality research aimed at new treatments and, ultimately, a cure for scleroderma.

Ruling year info

1987

Chairman, Board of Directors

Luke Evnin Ph.D.

Main address

220 Montgomery Street Suite 484

San Francisco, CA 94104 USA

Show more contact info

EIN

68-0087234

NTEE code info

Diseases of Specific Organs (G40)

Specifically Named Diseases Research (H80)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Scleroderma is a chronic autoimmune rheumatic disease that can be disfiguring, debilitating and even deadly. The disease often causes the hardening and tightening of the skin and connective tissues, but can also severely damage the body’s digestive, respiratory and circulatory systems. Eighty percent of those afflicted with the disease are women, though scleroderma also strikes men and children across all ages and ethnic boundaries. Often, the disease strikes in the prime of patients’ lives, when they are 30-50 years old. The cause of scleroderma is unknown, and although significant progress has been made in managing some of the disease symptoms, no therapies yet exist to halt or reverse it’s process. Patients continue to experience pain, deterioration, and debilitation – and many patients die.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Scleroderma Research

The Scleroderma Research Foundation's Research Program is governed by the Board of Directors and facilitated by a volunteer Scientific Advisory Board comprised of highly regarded scientists who are leaders in their field of expertise. The Board of Directors and Scientific Advisors meet annually with researchers and clinicians from laboratories across the nation to select and fund the most promising scleroderma studies aimed at developing useful therapies to help patients live longer, fuller lives - and, ultimately, a cure for scleroderma.

Population(s) Served
People with diseases and illnesses

As an innovator in scleroderma research, the SRF is uniquely qualified to provide the community with the most up-to-date and relevant news and information about complications, treatments, and related research free of charge.

Population(s) Served

Increasing awareness of scleroderma and raising funds for research is a critical function of the SRF. Each new person who learns about this life-threatening illness and supports the important work underway to find better treatments and a cure brings us closer to achieving our mission.

Population(s) Served

Where we work

Videos

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of research studies funded

This metric is no longer tracked.
Totals By Year
Related Program

Scleroderma Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Scleroderma Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Scleroderma Research Foundation is devoting every possible resource to solving the mysteries of scleroderma. We fund and facilitate the most promising, highest quality research aimed at improved therapies, and ultimately, a cure for scleroderma.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

Financials

SCLERODERMA RESEARCH FOUNDATION
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

SCLERODERMA RESEARCH FOUNDATION

Board of directors
as of 08/22/2023
SOURCE: Self-reported by organization
Board chair

Dr. Luke Evnin

MPM Capital

Term: 2002 -

Susan Feniger

Border Grill/Mud Hen Tavern

Eric Kau, MD

San Gabriel Valley Urology Group

David Knoller

Deann Wright

Caryn Zucker

Sharon Dobie, MD

Violetta Merin

Regina Hall

Omar Baker

Jeff Seaman

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable

Organizational demographics

SOURCE: Self-reported; last updated 2/14/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male
Disability status
Decline to state

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data